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ryebaby0

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  • pricklypear1971

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  1. ryebaby0
    My son is finishing up his freshman year, living on campus and eating in the dining halls, at Penn State UP. He has a frig and microwave in his room, for starters. I was really skeptical at first (and we had visited Ithaca, and it is impressive) but he has had a great year. All the dining halls have a gluten free station that is stocked with pasta, chicken...
  2. ryebaby0
    Your school really is required by law to offer you food. Did you pay for a contract, or are you living off campus? It's not okay to have salad forever. My son is a freshman, in his room he has: peanut butter,gluten-free pretzels, minute rice, raisins, yogurt, almonds, nachos, pasta (we freeze cooked pasta in single-serve microwaveable bowls), sauce (for...
  3. ryebaby0
    This is similar to my son's course of diagnosis -- first dx with juvenile rheumatoid arthritis, then celiac. The gluten free diet did not improve his health, but people told us to be patient and wait. It was a dietician who insisted he be hospitalized and there he was dx additionally with something called autoimmune enteropathy. Basically, an misguided attack...
  4. ryebaby0

    ARCHIVED Transitioning To An Adult Gi

    ryebaby0 posted a topic in Doctors

    My son was dx almost 10 years ago, and has been under the care of the same group (and basically the same doctor) at Children's Pittsburgh all that time. He has an additional dx that necessitates immunosuppressive meds and monitoring. Anyway, son wants to stop driving 6.5 hrs round trip for the checkups twice a year (it will be particularly hard to schedule...
  5. ryebaby0
    The scope is scarier for you than her. The biggest thing is for you to be calm. Completely calm. At 2, she's not gonna understand a lot and she might not like all these strangers bugging her. Bring things to distract her (I used to bring Pokemon cards and we'd get engrossed in unwrapping them and seeing what we got). Stay calm. The scope itself is pretty...
  6. ryebaby0
    Rafferty's in North Conway: Open Original Shared Link which is not really near Storyland at all, but well worth the trip. It's like a regular restaurant, only with it's own gluten free menu. With actual choices. We have family in Rye and always drive the whole stinkin' way up to Conway just to eat lunch there!
  7. ryebaby0
    Huh. I came to the travel thread just to post about Hershey Park, bc my son was there on a class trip this week and had a great experience. Ate at Minetown and had hotdogs and cookies, which came wrapped up so he didn't worry about contamination (he did not eat the hotdog in a bun, although they offered). He brought food with him in his backpack and no one...
  8. ryebaby0
    Open Original Shared Link Really impressive work on the part of PSU to step up it's gluten free programs
  9. ryebaby0
    ^ good point ...son is going to University Park , aka main campus. I don't know what the other campuses are up to.
  10. ryebaby0
    My son is about to attend Penn State, which (for a huge school) is doing pretty well accomodating celiac students but isn't as impressive as Ithaca College. IC has a dedicated kitchenette at the cafeteria which will prepare whatever you want; also has a gluten-free section in the convenience store and a gluten-free student advisory committee. PSU has interns...
  11. ryebaby0
    Actually, he is 18 already. And already making decisions and managing his healthcare, with varied results and competency. I appreciate more than I can say that if we dropped dead tomorrow, he needs to be able to care for himself, by himself. That's how he went on the beach trip last year, doing exactly that. And the problem here is that there...
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  14. ryebaby0
    It's asinine to plan a trip out here that time of year, if the intent is to work outside (unless you're arriving acclimated from another desert). If they are working inside, that's another story (although I'd want to know if the place where they are working has a/c - if it's on a res it may not). I've seen people of all ages and health ranges get heat...
  15. ryebaby0
    The group itself is not the problem -- he's belonged to this youth group for 2 years, his friends are all part of it and our home church does not have a youth group. So I'm fine there, but the whole "pick up something to eat" part bugs me. I'm often overly cautious so I'm just checking! Seriously, how often do we go into a store and there's little to eat...
  16. ryebaby0
    My son wants to travel with a small group from a church, across the country, the week of his high school graduation. They will fly out, spend 3 or 4 days in service projects in the Southwest, and then fly home, arriving the day before his graduation. He would pay for the trip. I want to be fair, but I was exasperated. Their flight arrives around 9, after...
  17. ryebaby0
    My son has the same struggle -- he's 5'11" and weighs 126 soaking wet. And he has braces right now, which doesn't help. Our advice: 1. take a multivitamin with zinc 2. his daily diet looks like this: milkshake (ice cream, whole milk, cream, sometimes chocolate syrup or jam), 2 or 3 scrambled eggs (with butter) OR a donut OR yogurt. He's not a morning...
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