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Ziva

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ziva

  1. Ziva
    I just thought my eyes got tired toward the end of the day because I wear contacts. Maybe still the case. I don't notice my throat or mouth being dry. I'm not going to think about it. I think I have the food down pretty good. We don't eat alot of processed foods and usually have a meat, veggie and salad for dinner and I take leftovers for lunch. I do think...
  2. Ziva
    I always thought I was a little weird We haven't done any genetic marker testing on anyone else. I'm not really sure it would be worth it. I only did it because the GI doc said no to Celiac and he wanted it to rule it out further. I guess in his mind it gave him one more reason to say no. Thanks for adding the links, but they were greek to me! My husband...
  3. Ziva
    I have read the info on antibody tests several times and understand it a little more each time I read it. Thanks My generic marker test said what I posted earlier plus HLA-DQ (DQA1*05/DQB1*02) negative HLA-DQ8 (DQA1*03/DQB1*0302) negative HLA-DQA1* 01 HLA-DQA1* 03 HLA-DQB1* 0301 HLA-DQB1* 0603 Does it say something different than negative...
  4. Ziva
    How long of a learning curve do we get ??? I went back and read some previous responses and it said something about TPO antibody test. Guess I picked up on the T3 & T4 from somewhere else and requested them. So, with my recent thyroid test results, do I need to go back and request more blood work?
  5. Ziva
    Quess I don't know how to do the mutli quote, yet! Thanks for the reply. Are you saying that the recent thyroid tests I had done are not enough to rule out Hashimot's? At least for right now. My test through Quest said: "The patient does not have the HLA-DQ varients associated with Celiac Desease" As I work on getting my other daughter tested, I...
  6. Ziva
    She was biopsied and he again said "classic Celiac" as she was recovering from endo, but would have to see what biopsy showed. She went gluten free and we went for a 3 week follow up after endoscopy and the GI doc did a flip flop to No Celiac because biopsy was "normal". He went with IBS and said she could eat carbohydrate light. She feels better although...
  7. Ziva
    I am relatively new to Celiac and am trying to figure out what this all means for me also. I didn't know there was anything wrong with me until Dec. when a GI doc mentioned anemia during a routine colonoscopy at 50. As I have read more about Celiac, I can say I can identify with some symptoms and defiantly have some absorption issues resulting in anemia...
  8. Ziva
    I'm not sure if I can change the heading to something like...Been around for a short time, and still need input from those who have been around awhile! I had follow up appt with hematologist that believes I have Celiac. Even though GI says no. I had blood drawn the week before so he had results. The thyroid tests were: Doctor said these are fine. T...
  9. Ziva
    On Friday, I went with my 21 y/o daughter to her 3 week after endoscopy follow up appt. The doctor totally changed his diagnosis from "classic Celiac" after our initial appt and endoscoy findings to No to Celiac because "the Golden Standard" of biopsy was not met. He now says the ttg IgG result that was 9.3 was not really high. (<6 neg, 6-9 - weak positive...
  10. Ziva
    My daughter had her endoscopy & biopsy done and the GI said definatly Celiac. He said he would send off the biopsies and let us know if they show something different. What he said seems to go along with what I have read on this forum. I think she may have a doc who knows what he is doing! We also talked about the genetic marker test, hopefully I put...
  11. Ziva
    Thanks for the replies. The only test for thyroid was the TSH. I will request more thyroid blood work @ my appt. the 1st of May. I am a bit frustrated with my doctors. I have showed anemia for several years on my blood work but it didn't raise any flags with my pcp other than telling me to take some iron. I thought he knew what he was doing and I...
  12. Ziva
    I still have a few questions and would apprciate any input. Look at previous post for other tests results. 1. If the only test I showed any increased number to was Antiglaiden ab, IgA at 13 (11-17 equivocal) is that enough to say Celiac? Neg on biopsy and neg on genetic marker. Anemic and Vit D insufficiency. See above. 2. My daughter was tested and...
  13. Ziva
    I spent the day wondering what was wrong with me. I've had heart palputations before but today had them off and on almost all day which was not "normal" and very unsettling. I got on here to see what others had to say. I'm new at eating gluten free and am taking iron and Vit D. The iron is causing some issues so I was taking Citrucel, says it's gluten free...
  14. Ziva
    Very interesting! I could say I relate to more of the symptoms of menopause than to Celiac, but based on the conversation, I can't wait to see if going gluten free will reduce the heart palputations, night sweets, and hot flashes. Just new to gluten free and possible diagnosis of Celiac.
  15. Ziva
    If "some" of the genes associated with Celiac are negative, what are the chances you are Celiac? I don't necessarily need a formal diagnosis of Celiac, but I need to know if this is the answer to my Anemia and Vit. D deficiency. Otherwise, I need to look at other areas. Can gluten sensitivity / intolerance cause deficiencies? My doc only ran the tTG IgA,...
  16. Ziva
    My gene test for Celiac came back negative. How often can that test be incorrect? Can gluten intolerance also cause deficiencies in iron and vit D. or is that just linked to Celiac? Thanks
  17. Ziva
    I'm new at this so I can't give any information on the testing, but can say that the family doesn't have to know they are eating gluten free. Go with fresh veggies and meats, chicken & fish and stay away from processed foods. I found many of my spices were gluten free, but read their label. Good luck
  18. Ziva
    Thanks for the reply. On annual blood tests my thyroid level has been fine. I have one more test tomorrow and will see were that goes. If the two doctors can't agree, I'll just go gluten free and see what happens. I will pick up the gene test results tomorrow and see if they tested all parts listed under the FAQ. I found my past post under my content...
  19. Ziva
    Somehow I came across your strings of post and was curious because of your talks about anti-histamenes. I'm new to looking into Celiac for myself. It seems I aways have some kind of congestion, but would say I was allergic to anti-histamenes and not take anything because of how they made me feel. If I took Sudafed , I felt like I was in a fog, my head itched...
  20. Ziva
    I am new, January, to the Celiac board and to the possible diagnosis of Celiac. I posted somewhere before but am not sure where it went! I have read around in the board, but there is so much information that I am getting overwhelmed and don't know how to interpret all this information. Just when I think I understand, I find I don't know much. I went...
  21. Ziva
    Thanks for the link. I will do more reading.
  22. Ziva
    Still new at all this and trying to understand my tests! My tTG, IgA test result was < 3, can that be affected by the amount of gluten you are eating? Or does the amount matter at all? If you don't have Celiac, what would the number be? Also, if the endoscopy did not show any damage, is it worth doing any more tests to look further? Thanks for your...
  23. Ziva
    I can relate to what you are asking because I'm new at this also and have some of the same questions. I hope you get some good information. I need it too!
  24. Ziva
    I had the follow up appt. with gastroenterologist yesterday to review endoscopy results. He said there was no damage and did not agree with Celiac diagnosis from hematologist. I was disappointed to find out he took a biopsy from only one place. Also, he said the antigliadin antibody which was 11 on his test and 13 on the hematologists test is not positive...
  25. Ziva
    I am also newly diagnosed, this Jan. and testing was started because of Anemia. As we were going through testing for me, my husband is remembering he had to eat bananas and cottage cheese as a young kid. We had him tested last week and are waiting on the results. Either way he is going gluten free with me. The next step is to have our 2 college age daughters...
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