Jump to content

Owlmuse

Advanced Members
 View Profile  See their activity

  • Posts

    17

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Owlmuse

  1. Owlmuse
    I'm visiting Puerto Rico next month - my first big trip since being diagnosed celiac just over a year ago. I already am prepping a list of all the food I'll bring with me in my suitcase. However, I want to eat at restaurants. I love eating out and I'd love to figure out if I can do it safely in Puerto Rico without being limited to national chains. I know...
  2. Owlmuse
    Thanks Gemini! That was a really nice response. I dont know anyone who has had their thyroid nuked (except a friend of my mom's daughter but she had cancer and had her thyroid removed first!) so it was really nice to hear that real individuals were fine after. And you are right - spooky is totally the word for the treatment. I keep picturing myself glowing...
  3. Owlmuse
    I'm on Tapazole which is a thyroid and immune supressant. Been on it with very little dose deviation for 8 years. I expected to have to go down on my dose after going gluten free and each doctor I tell I am having thyroid problems assumes I'm too hypo from too much meds now. Not the case. I'm too hyper and just went up to the max dose of tapazole. I've had...
  4. Owlmuse
    I've done that a little but mostly with relatives because of the increased chance that they could have it. Unfortunately the two I think most likely to also have it are rather flakey and I don't think have done anything about it. On the other hand my immediate family got tested after I was diagnosed and my brother's doctor (a rather prominent guy) said he...
  5. Owlmuse
    So my fear has been realized! My thyroid function as continued to get worse and I found out today that I'II have to have radioactive iodine and nuke my thyroid : ( Just wanted to post my question again and expand it a little. Has anyone one had an autoimmune disorder that after going gluten free changed? Got better? got worse? I keep asking doctors and...
  6. Owlmuse
    Has anyone settled this yet? There I was sucking my delicious werthers' hard candy only to see it has glucose syrup made from wheat in it! I was horrifid!! I've since done some research on glucose syrup but I'm still very confused! I've found that according to the werther's site, gluten free living magazine site and (in another post) the Australian New zelend...
  7. Owlmuse
    That's a really good idea bartfull! Not for everyday excursions but for staying at my grandmother's. Thanks!
  8. Owlmuse
    Im visiting my grandma next week and she lives down the street from the best ice cream! So of course I started to really question how safe it is for us celiacs and thought I'd ask! What has others experience been with delicious frozen treats at ice cream parlors. I've been gluten-free for months but have no symptoms (I beleive) when glutened so it's hard...
  9. Owlmuse
    Hi! I'm been confirmed Celiac and gluten-free now for almost 7 months now. I also have had Grave's Disease (autoimmune hyERthyroid) for 8 years and have been on meds ever since. All of a sudden 3 months ago I started to feel just really rotten and 6 weeks ago found out my thyroid had become very over active again despite being on meds (the same dose I've...
  10. Owlmuse
    I usually bring some gluten-free turkey from the deli, some cheese and cracker and some snacks like fruit, applesauce, cookies, yogurt (if I brought an ice pack). It's not that far off from what I brought for lunch back in high school but it's tasty, dependable, easy, not fussy and in a pinch you can pick it up at the grocery store on the way. I went to the...
  11. Owlmuse
    I just got a great baking cookbook from the library (the Blackbird Bakery Gluten Free) but there are several recipes, including muffins and brownies that include almond meal. I'm allergic to nuts but despite lots of Internet searching I haven't found a substitute. I was thinking maybe teff flour as it is a high protein flour. Anyone have suggestions?
  12. Owlmuse
    Wow thank you both do much for responding! It's really nice to get reassurance and understanding. My parents and brother try (most of the time) but they don't understand. As to squirmitch's questions. I'm a 24 year old female and was diagnosed in January. I have had my vitamins levels tested and was iron deficient so I'm taking a supplement for that...
  13. Owlmuse
    squirmingitch - has your symptoms finally subsided? I've been dealing with the same thing. I'm incredibly moody, extremely tired, insomnia, when I do sleep I'm still tired, my appetites all over the place, my brain is foggy and this week ive been so nauseas. I've been gluten free for 3.5 months now. And what really gets me is that I was silent. I didn't have...
  14. Owlmuse
    See this is what was making me curious about the relationship of OAS and Celiac (and now Graves). I mean it could be all a coincidence. I don't know.
  15. Owlmuse
    That's really interesting, I have Grave's too! I know it has a correlation with celiac but with OAS too? I was diagnosed with OAS 10 years ago, Grave's 8 years ago and Celiac 2 weeks ago (although I was told I probably had it longer than I have had Graves). It's interesting you were diagnosed for the same three conditions in a very different order. I doubt...
  16. Owlmuse
    I'm new to forums in general but I had a question I couldn't find answered anywhere. It seems that there are quite a few Celiacs out there who also have Oral Allergy Syndrome (the cross-reaction condition where your body views certain fruits, nuts, and/or vegetables as tree pollen, grass pollen etc). I am one of those number. I had read a couple posts (which...
  17. Owlmuse
    I don't know if you are still checking this post but I just wanted to mention you may want to check into non allergy and non thyroid conditions. I have Celiac and OAS too as well as a thyroid condition. I also have a condition called PCOS (Poly cystic ovarian syndrome). It can cause I variety of symptoms including weight gain, inability to lose weight and...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.