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Greyhound

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  • Gender
    Female
  • Location
    England

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  1. I tried one for the first time on Sunday. Was really nice - much betetr than expected. I was so happy. But I had (and am still getting over) a reaction to it so that's that I don't understand - I can tolerate (as far as I know) barley malt extract in my breakfast cereal but I can't tolerate 'gluten free' (<20ppm) beer
  2. Some people on here have mentioned getting tested for coeliac disease but please remember that if you test negative for coeliac disease: - it could be a false negative - you could still have non-coeliac gluten sensitivity (so if the diet is working for you, STAY on it!) I sometimes feel randomly suicidal for a day or two too. I did last week. I don't...
  3. I thought Marmite was gluten free in the UK but I might be wrong. I must buy a copy of the food directory.
  4. That's horrendous Thankfully my family's been very supportive over it. I eat at my parents' house every Friday and my mum says she doesn't mind if I want to double check any of the ingredients. I was really relieved because I was so nervous about telling her. I thought she'd think I was making it up. I think she's relieved for me though - she partly...
  5. I was diagnosed with mild Tourette's syndrome a few years ago (a year or two after self-diagnosing it). When I went gluten free I had half a hope my tics might get better, then I heard there's no connection. Ah well, I live in hope!
  6. For me, the constant aching was the second worst thing (exhaustion being the worst) and I began to fear I'd developed fibromyalgia, but all information about it said it could be identified by certain points on the body being particularly tender; I didn't have these points. So I wasn't dignosed with it but the pain became so bad that it did cross my mind...
  7. Spread THICKLY Haven't tried it since going gluten free but I've heard it's fine.
  8. There's no way I'm going to eat gluten just for someone to tell me I'm ill, so I'm not going to get an official diagnosis either. Hope no one will ever require it of me for any reason - like a medical note for something. I'm beginning to wonder whether I should tell people I have coeliac disease instead, but I'm afraid people will think 'DISEASE? Ewwwww...
  9. Thanks for the replies. My blood test was done within a week of going gluten free. If I'd had high levels of antibodies, they wouldn't have decreased to a normal level within that time. I was hoping a biopsy could have been scheduled pretty quickly - if my villi were damaged, they would only just have started to heal, but I give up - anything I do now...
  10. Thanks. I'm feeling a bit better today but it's up and down.
  11. My blood test results came back negative. The doctors refuses to put me through for a biopsy unless I eat gluten for six weeks beforehand. I told her I couldn't possibly do that. She won't even put me through for it just in case something is picked up. Now it's all left up in the air and I don't know what to do. Coeliac UK members aren't very welcoming...
  12. I'm feeling deeply sad at the moment. I don't know whether it's all part of the withdrawal or what but I feel like everything is completely empty and pointless and I don't know what to do about it. It started yesterday and when I got to work today I burst into tears at some tiny thing. Just feel so flat and low. I just feel like...what's the point in...
  13. I believe this was checked last year; the results were normal.
  14. Greyhound

    ARCHIVED Sad :(

    I'm feeling deeply sad at the moment too. I don't know whether it's all part of the withdrawal or what but I feel like everything is completely empty and pointless and I don't know what to do about it.
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