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Sesara

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Sesara

  1. Sesara
    What about sunflower seeds? Sunbutter is a popular substitute for peanuts.
  2. Sesara
    Since my son's fecal tests for malabsorption came back negative, they are running a fecal elastase test on him...I dropped off the sample today. They are trying to determine if he has pancreatic insufficiency. I have read that the number 1 cause for this in children is CF, which we've already ruled out via sweat test, and another genetic syndrome which I...
  3. Sesara
    Even if pecans are out, there are other nuts that you can do. My son (23 months) is a big fan of nut butters, so peanut butter on celery (with the strings removed) is always popular around here. As are lunchmeat and sausages of any sort. He's a huge fan of gluten-free waffles, coconut milk, baba ganoush, raw or cooked carrots, broccoli, and cauliflower, cooked...
  4. Sesara
    Well, more news today...I'm not sure how I feel about it honestly. My son's fecal tests for malabsorption came back negative. Now, this was one of his better stools, so I'm sure a different stool might have yielded different results. But regardless, it does make me feel encouraged that healing is taking place, even if it is slower than I would have preferred...
  5. Sesara
    Thank you so much. I guess I should add that my DS has no official diagnosis at present, as his intestines appeared "normal" in the endoscopy and only showed elevated lymphocytes, and his antibody tests have come back normal. I do think that the time frame for his damage to occur wasn't long enough for them to see any sort of villous atrophy like they were...
  6. Sesara
    I would just like to add that I think the protective effects of breastmilk are probably capable of supressing some of the symptoms. My DS was virtually exclusively breastfed until his molars finally came in around 15 months, though he probably had wheat introduced close to 9 months in the form of a cracker or cheerio here or there. Gluten products in small...
  7. Sesara
    Right now, we're still working on diet overall. Half his problem, I'm sure, is that he's a toddler. He'll eat a lot of veggies raw but if you offer them cooked, he won't touch them - I think it's a texture thing and also a "ew, my food is all touching" thing because he doesn't like mixed up foods all that much. I also know that children have a higher need...
  8. Sesara
    I agree that it would be good to know her genes. DS has DQ 2.5, and so I'm more concerned about it in his future because of the correlation. However, I'm more concerned about getting our soon to be born baby tested because I just learned that I'm DQ8 positive, which means this kiddo may well end up DQ8/DQ2.5 heterozygous, which seriously increases the risk...
  9. Sesara
    Well, I'll be damned, my probiotic, Nature's Way, does contain FOS. He only gets 1/2 tsp per day, I hadn't eliminated it because we weren't full into the introductory GAPS diet yet. I was just reading about FOS the other day, but I didn't think to check it. We only have 2 doses left anyways. And my new one contains inulin, which is only marginally better...
  10. Sesara
    My son has night terrors, but we've noticed that they happen right before he gets a cold or is about to have a growth spurt.
  11. Sesara
    We had to wait for a while for our referral to go through. My ped's office told me the process should take a week, so if I didn't hear anything, call. So I did and somehow my referral had been "lost". After yet another week of waiting, I had to call again to find my referral had been "lost" for a 2nd time. I guess I should have taken it as a sign not to go...
  12. Sesara
    Naturally lactose free cheese is great. My son would eat a ton of aged gouda if I would just let him. We've been completely dairy free for the last 6 weeks, but I'm thinking about trying out a few bites of lactose free cheese on him just to see if it has any effect, since he misses cheese so much.
  13. Sesara
    I can't disagree with that! Some people have acted like I was a horrible person for testing him because "it's just wrong" to scope a 21-month old. Some people think I'm stupid for wanting some kind of official diagnosis for him because "their child had allergies and the school always worked with them". But yes, we are all just trying to advocate for our children...
  14. Sesara
    Well, we've been eating mostly Paleo for several weeks now, transitioning more and more, but I've transitioned my son more slowly because lets face it, when you have a toddler who is *always* hungry the way he is, snacks on the go are important, and it's hard to find things that travel well or quick foods - so I'm guilty of the morning gluten free waffle...
  15. Sesara
    I guess I just have a hard time picturing it because I had such a horrible experience drinking the barium myself when I had to do that test, and I'm pretty sure it was flavored, but I spent the whole time wanting to vomit it up - I couldn't even finish the amount they wanted me to. My son is a classic "spirited" child, which means "stubborn" in many ways...
  16. Sesara
    Mom2J112903...how do they get your child to drink the barium without forcing it down their throat? I'm not trying to be rude or anything, but I don't think I could subject him to someone force-feeding it to him and I can't see how else they would get the barium into him.
  17. Sesara
    He has been on probiotics for gut healing for months now - a good one, with 8 billion live cultures. When it runs out in a few days, I have a better one with 10 billion live cultures waiting in the wings. He also gets an EPA supplement. I also just picked up a cod liver oil supplement, as I've read good things about that addressing vitamin D and B12 deficiencies...
  18. Sesara
    I do want to find what else is going on, because I agree, it's something, but I don't even know how we would get him to drink the barium, so I don't know how we could do that test - I had it when I was 18 and it was not easy for me, and you can't reason with him that it's for his health at 23 months, kwim? And at least they didn't see any anatomy issues...
  19. Sesara
    We have now been gluten free for 6 weeks, and I have been gluten free for 2 weeks, and we're still not really seeing a huge improvement in his stools. And today, his poop was a little bit gritty/sandy again, so I'm not sure if he got glutened or reacted to something else. I've been researching gut healing diets and SIBO because I wonder if that's hindering...
  20. Sesara
    I'm so happy that you found that out. I was so unhappy with our experience, I would never wish it on anyone else if there was any other solution.
  21. Sesara
    I'm fine with testing things regardless. If they want to look for other allergies/intolerances, that works for me. If they want to look for other autoimmune issues, or enzyme deficiencies, I'm fine with that. My biggest problem is just that this GI isn't doing his job. He isn't looking. He's made up his mind (or at least that's how it feels) that this...
  22. Sesara
    Stephanie, what do you do about records? I mean, I have copies of most of my son's significant test results, fortunately, but do you explain that your child has been seeing Dr. So and So, or do you request a copy of your child's file, or what?
  23. Sesara
    I am also wondering why we haven't looked at food allergies. The dietician put it in her recommendations if we don't see improvement, and I know that if he's even temporarily developed an allergic response to something else, it could be delaying healing. I actually think that is what I was expecting when I went in, and what prompted me to ask about next steps...
  24. Sesara
    Oh, no, I didn't find the e-mail bad at all, just that it proved to me that this GI isn't really considering other causes at all now, just convinced that I'm underfeeding my son. My son is 22 months, so potty training is starting, but we will probably be in diapers yet for a while. And I doubt he is able to control his bowels with the loose stools he...
  25. Sesara
    Just to add insult to injury, I finally received a response back from the University of Chicago Celiac Center, who I had contacted several weeks back regarding a possible 2nd opinion. This was the e-mail they sent me: Only 1 week off gluten won't mask at all the results of the Prometheus tests. Keep in mind having only a genetic positive test (IF...
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