GladGirl

Hi, Kamma, My last MRI was on Nov 23,2013 showing that the tumor had totally been resected...the biopsies (5) in total I have, but would prefer to share via e-mail. My next follow-ups at the Mayo Clinic are with my neurologist, Jan 20th for follow-up about epilepsy and other issues...and then I will be testing with Hematology and meeting with my neuro...

Hi, Kamma, I thought I would send some notes from my neuro surgeon that approaches the protocol of my own new MRI...his concerns were as follows: ASSESSMENT AND PLAN My impression is that Mrs. Pfeiffer is a 61-year-old female with a left temporal lesion. I cannot differentiate at this point a brain tumor, primary or metastatic, versus cavernous malformation...

Hello, I have not been here for quite awhile basically because of my health issues. I was diagnosed with Celiac Disease 3 years ago, but it took a very long time in coming....and now I have developed "Idiopathic Hypertrophic Pachymeningitis"... Too shorten this I first would like to say that I was having Epileptic seizures without realizing that is what...

Hi, All, I have not been on this system for some time...basically it is due to such unusual changes, I still find it difficult to understand. I was diagnosed through Hematology for Celiac Disease (latent) 3 years ago, became gluten free and so many things got better! My liver enzymes became normal again, my frozen shoulder was painless again, and I...

Oh, yes a "rye" bread recipe would be great!! I do miss my reuben's!! Tonight I made stuffed bell peppers with onions and garlic sauteed first in the skillet with virgin olive oil and then browned the ground round, added diced tomatoes and steamed rice, spooned into the prepped fresh peppers (got them at the Farmer's Market just today) and then a small...

If you are gluten-free already, these tests will probably not be conclusive since they look for the Gliadin reaction! the "gene" test however is not conditional to this. Here is one of the best labs testing currently for Celiac Disease, and they have good notes. This site also explains "testing" as well..good luck Open Original Shared Link

OH, Yes!! This is one symptom that led my brother and I to celiac disease!! We both started developing increased levels in our Liver Enzymes AST and ALT, and then the frozen shoulder! (my right, his left) After going gluten-free for three months, my pain in my right arm really diminished and my liver enzymes went down as well. Now being 6 months gluten...

I love it!! The Pancakes are superb! My hubby who is not gluten-free, but a diabetic has actually enjoyed the gluten-free products more than the old products. So, he said, go ahead, just make everything gluten-free and SF...we're good! LOL! He really likes the gravy I can make using this product as well for our beef roast, chicken, or pork roast!

Thank you for sharing, very interesting study done!

Although this thread is a little old, I was glad it was here! I just came back from my new Dr's office and found out that I have over-supplemented Vitamin B12. I have some "toxic" side-effects, mainly "joint pain" popping up in my extremities. The Dr. and I both think because excess Vit B12 can be stored in the liver, and my major issue with Celiac has...

Hi, All! Well,new to this as you may well remember. My gluten-free diet has made me feel so much better! However,I am concerned about some lingering issues, such as some fatigue, lethargy, and so on...So, now that we know our bodies are not able to sufficiently absorb/use nutrients of vital minerals/vitamins....I have been looking into the Iodine factor...

It is so unfortunate when we patients are not "trusted" to be believed by our Medical support system. Our Dr's need to know that "trust" is a two way street! So, I just changed Dr's due to that very reason. My new Dr and I will be developing that patient/Dr relationship. I let her know how dismayed I have been in the past by some of the medical society...

Well, here we go! New Dr. recommended by my Insurance's Nurseline is Dr. Janice Nord, MD, Internal Medicine. She is part of a group called the Millenium Group in Southeast Florida. I met with her yesterday, she asked several questions, especially about the Hematologist I went to whom she also knows. I took copies of all my test results, and then her eyes...

I found this very interesting article on a link on Celiac Disease and thought I would share it. In this piece, there is quite a bit of "eye-opening" relative information. The fact that there is some "typing" makes sense and then there are the "Marsh" types as well that hold more definite terms. The part I really like is the added information on what needs...

Hi, Christian Mom, Well, I just got off the phone with the MA who works with my new selected Dr. She is an internal med Dr. and I will be meeting her for the first time tomorrow afternoon. Like you, I am hoping she has the "knowledge" your new young Dr. has. Praying for a good informational consultation and moving forward towards healing. Let...