
ker0pi
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by ker0pi
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ARCHIVED The Honeymoon Is Over
ker0pi replied to ker0pi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you for the tips. I'm Episcopalian, not Catholic, often referred to as Catholic Lite, we do have communion every Sunday. I spoke with my priest today and the wafers she got for me were rice flour no gluten, Episcopalian's don't have that no wheat means it's not communion issue I've heard Catholics say. I skipped the wine again and we talked about... -
ARCHIVED The Honeymoon Is Over
ker0pi replied to ker0pi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This theme keeps coming up for me, I kept a sleep journal during the worst parts to be more clear with my doctor about the insomnia and what specifically was causing me to wake up 5-6 times a night and which supplements/meds seemed to help. I have been thinking the same thing, no gluten, piece of cake. We already eat an organic whole foods diet and my local... -
One of the swimmers, Dana Vollmer is Gluten Intolerant! They did a little news blurb about it after she won her gold medal. Open Original Shared Link This is the video link to the CNN story. I thought it was really cool. Gives me hope I might be able to run again some day.
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ARCHIVED The Honeymoon Is Over
ker0pi replied to ker0pi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
We were at the beach so I had my hubby pour water over my hands so I could clean them as best I could. When we got home I took my son straight to the shower for de-sanding and I do not recall any hugs or kisses before the shower. My hubby gave me "a talking to" after I handed out the sandwiches. He did the first round and was busy when I got asked for seconds... -
ARCHIVED The Honeymoon Is Over
ker0pi replied to ker0pi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I do get served first after my priest and the acolyte, my priest has been wonderful, her dear friend and fellow priest is a Celiac so she immediately spoke to her about how to handle my communion, there's a laminate step by step instruction on how to avoid cc with my wafers posted in the Sacristy. It's the ceremony part where she breaks the wafer, I'm concerned... -
ARCHIVED The Honeymoon Is Over
ker0pi replied to ker0pi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It does help. Everything I have read on this forum that leaves me thinking, "It's not just me!" Makes me feel a little better. I keep telling myself not to mark of days but weeks and then stretch it to months. I don't think I got CC, but I plan on refraining from the wine next week at communion, I get my own special gluten-free wafers. I had a moments... -
ARCHIVED The Honeymoon Is Over
ker0pi posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have determined the HONEYMOON is over. I am approaching 5 weeks gluten free and the first 4 were blissful. I have enjoyed watching all my crippling pain vanish and my bm's become regular for the first time in my life. I had oddles of energy and just couldn't slow myself down. Well now, I feel a bit crummy. It is no where near the crippling pain and... -
Anger, Quick Temper, Depression
ker0pi replied to gfgypsyqueen's topic in Coping with Celiac Disease
Wow, I'm amazed at how many threads I read where I'm left thinking "It's not just ME." Irrational anger has departed along with my gluten habit and I could not be more relieved. -
ARCHIVED Cookbooks
ker0pi replied to Razzle Dazzle Brazell's topic in Gluten-Free Recipes & Cooking Tips
My favorites so far have been The Gloriously Gluten-Free Cookbook: Spicing Up Life with Italian, Asian, and Mexican Recipes by Vanessa Maltin I have found these to be the tastiest and simplest recipes so far, very easy to adapt and it's about 10 to 12 bucks so not to spendy and my really good friend sent me The Gluten-Free Gourmet: Living Well without Wheat... -
The What's For Dinner Tonight Chat
ker0pi replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Tonight I made my favorite "Oh my goodness it's almost 5 what am I going to make tonight?" dinner. Something I thought would never again be my old stand by. Yummy grilled cheese sandwiches with tomatoes, fresh tossed salad and yummy acorn squash mango soup. Just cooked it up with some Rudi's gluten-free bread fresh mozzarella with roma tomato slices and... -
ARCHIVED What Are You Growing This Year?
ker0pi replied to alex11602's topic in Gluten-Free Recipes & Cooking Tips
We don't have a yard, but for mother's day my hubby gave me wine barrel planters and soil so my son and I planted a small vegetable garden which includes Radishes, Green Beans and Cherry Tomatoes. We already harvested all the radishes, I have never had sweet radishes before they were amazing and we even cooked up the radish greens and put them into the re... -
Hello, I am a "brain fog" sufferer. It was my first symptom, I thought my pregnancy "baby brain" just never went away. I was so forgetful and that was something I had never experienced in my life, I work with numbers and could quote any figure from a financial statement I had just looked over, that went away. I kept blowing off my husbands concerns...
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ARCHIVED When Did Your Neuro Symptoms Subside
ker0pi replied to ker0pi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am very lucky, one of my priest's dear friends who is also a priest is a Celiac and when I went to my priest about my diagnosis she consulted her friend about how to handle communion with regard to me. I get special rice wafers and she puts it in a small dish for me before the service begins to avoid CC then I take it out myself when she presents it to... -
ARCHIVED When Did Your Neuro Symptoms Subside
ker0pi replied to ker0pi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am so relieved that I'm not the only one who does that! -
ARCHIVED When Did Your Neuro Symptoms Subside
ker0pi posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello, I've been gluten-free for 4 weeks now and have seen a ton of my physical symptoms subside or reduce but my neuro symptoms, mainly forgetfulness, saying the wrong words and drifting off mid sentence or thought, like I just did trying to come up with the third symptom I just listed have not resolved. I don't walk into walls or door jams any more... -
ARCHIVED You Might Be Celiac If.......
ker0pi replied to AVR1962's topic in Introduce Yourself / Share Stuff
YMBAC if you laughed so hard you cried when your best friend sent you these... -
Here are some pics my good friend sent me for the ladies.
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ARCHIVED Tmi Bm Question
ker0pi replied to ker0pi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think I go off on a tangent ALL the time Thank You for the herbal suggestions. I actually worked at an herb store, keeping the books, for 8 years and have several good friends who are herbalist and nutritionist who have been immensely helpful and full of suggestions. I just feel odd talking to them about my BM's (see back on topic). And no one I know... -
ARCHIVED Tmi Bm Question
ker0pi replied to ker0pi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Lewiss - some of this sounds a little like me too, I had zero energy, I had to nap after grocery shopping - felt like I had run a marathon and was just exhausted. It hurt to walk for 4 years and got worse and worse, the toe nail thing is interesting - 4 years ago I developed fungal nails on 3 of my toes and they are just now starting to look like they are... -
ARCHIVED Tmi Bm Question
ker0pi replied to ker0pi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
YEAH!! Yes I have had really bad indigestion and heart burn over the years, one of the major reasons I started an organic whole foods diet, I was taking Zantac twice a day and still felt like I was dying half the time. Yes, I feel good, I feel incredible. I am off the anti-inflammatory meds, haven't taken a muscle relaxer since I started... -
ARCHIVED Tmi Bm Question
ker0pi replied to ker0pi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, firm. And I did not realize high fiber foods would go through undigested. I started back up the probiotics and I'm going to get some digestive enzymes tonight. It's very new for me this whole going every day thing. -
ARCHIVED Tmi Bm Question
ker0pi replied to ker0pi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks, I do not eat processed food my family and I have been on a whole foods organic diet for about 6 years now. Sugar has never really been a thing for me, I took fresh baked bread straight from the oven over sugary anything every time. I started my probiotics back up, I had stopped because it was causing very painful gas, but that was while I was on... -
ARCHIVED Tmi Bm Question
ker0pi replied to ker0pi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
[quote name='GFreeMO' timestamp='1342046529' post='810395' Just be careful and make sure that you are not getting CC from somewhere. -
ARCHIVED Before You Knew It Was Gluten...?
ker0pi replied to heathenly's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My hubby SAW the effects fruits and vegis had on me, he would watch the crazy sugar crash after I had an apple and think it was insane. I would have to have bread to stabilize and not feel so light headed and dizzy. I resisted trying a gluten-free diet for so long because of how I felt if I didn't eat bread or pasta. I can't believe there's someone else... -
ARCHIVED Before You Knew It Was Gluten...?
ker0pi replied to heathenly's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
1) Yes 2) No, I have always felt like I was starving I ate every 2 to 3 hours and I found simple carbs, fruit and vegis just left me feeling empty and hungry. The only thing that would "last" and kill the constant nagging hunger was bread or gluten of some sort. I ate toast or a bagel every morning for breakfast with my eggs. Had whole wheat pasta nearly...