heathenly
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by heathenly
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ARCHIVED Humira, Enbrel, Remicade
heathenly replied to saintmaybe's topic in Related Issues & Disorders
Oops-- didn't realized those initials converted to "celiac disease." He has Crohn's. -
ARCHIVED Humira, Enbrel, Remicade
heathenly replied to saintmaybe's topic in Related Issues & Disorders
My son has celiac disease and has been on Remicade for years, with very good results. Very few side effects (really just a little diarrhea and bleeding for a few days post-infusion; no pain), and the positive effect on his everyday life has been worth every second he sits in the infusion chair. Unfortunately, nothing else worked. He tried so many oral therapies... -
ARCHIVED Do I Really Have To Eat Gluten Again?
heathenly replied to heathenly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
And thank you all for the replies! -
From my son's experience with Crohn's, I know that not all GIs are created equal. Any good recommendations for a Celiac-knowledgable GI in Tucson?
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ARCHIVED Do I Really Have To Eat Gluten Again?
heathenly replied to heathenly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah, I know gluten is a problem, but if it's Celiac I need a formal DX. It would be useful for my family. My son has Crohn's and I think maybe other people in my family have gluten sensitivities or Celiac. Suddenly lots of things would make medical sense! Back to gluten until testing! Hopefully I didn't do too much "damage" (ha) by staying gluten-free... -
ARCHIVED Do I Really Have To Eat Gluten Again?
heathenly posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
...for testing purposes? After two+ weeks of eating gluten-free, the thought of having to eat it for one day (much less 90) makes me want to cry. But I do want a diagnosis. And am scared to death I'll go through this just to be told I'm not Celiac. Not that I want to be, but I seem like the poster child for Celiac symptoms, and I want medical permission...