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Eclara

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Eclara

  1. Eclara
    Looks like I had (negative) TTG-IGA and IGG done in 2012, but not until I had already been gluten free (without avoiding cc) for nearly 2 years. My rosacea is better than it was and I don't really expect it to improve more than this- it is less bumps and residual redness at this point and more hypersensitivity, flushing and extreme dryness. It does get...
  2. Eclara
    So what's the verdict on false negatives? Because I had my biopsy four years ago and it was negative, my IGA was ignored because it was always 10-20 points below the normal range- but my stomach has never completely recovered from the hellish 8 week pre-biopsy gluten trial I did in 2012 and I have been progressively more sick each year in new and exciting...
  3. Eclara
    Thank you for the kind replies! I don't really tolerate many other meats or vegetables right now, which is why my diet is so limited. It's part of what I was hoping would improve- I'm dying to get sweet potatoes and cauliflower back especially! I also avoid dairy and soy. The only dairy I tolerate is lactose free kefir which I haven't been drinking the...
  4. Eclara
    I have been as gluten-free as possible (living in a mixed household, have my own cookware) since my negative biopsy 16 months ago. Ever since the gluten trial I did beforehand I am intolerant of almost everything but especially grains. I eat about as well as can be expected. I'm on a kind of paleo I guess, all meat and vegetables and small servings of fruit...
  5. Eclara
    Upper stomach symptoms for me means extreme bloating and pressure, sometimes nausea, and sometimes cramping. I sometimes bloat out so far that I can't fit into my pants comfortably anymore. It usually feels like throwing food into a balloon that's stretched to capacity, and it often feels like the stomach lining itself is very irritated and sore. Overall...
  6. Eclara
    I was gluten-lite for about two years before I did an 8 week gluten challenge for an endoscopy in December. I had horrible symptoms the whole time, but my biopsy came back negative. I went gluten-free the day after the endoscopy, so it's been 9 months completely gluten-free. It took awhile, but most of the symptoms cleared back up. But I developed upper stomach...
  7. Eclara
    I've been feeling extremely off for the past week or so. Originally, I thought it was leftover from agitating a different food intolerance earlier in the week, but the symptoms are very different. The only thing I changed in my diet was that I started using quite a lot of Archer Farms ground ginger. I read online that they sometimes add small amounts of flour...
  8. Eclara
    Thank you for the replies! They say they're certified gluten free, and their policy says: "All of our products and processes are inspected, tested and certified gluten free by the Gluten Free Certification Organization. Additionally, suppliers are required to provide negative-allergen documentation to guarantee their ingredients are gluten...
  9. Eclara
    I had a TERRIBLE reaction to the "Food Should Taste Good" sweet potato chips, and I'm not sure why. Ingredients: Stone Ground Corn, High Oleic Sunflower Oil and/or Safflower Oil, Sweet Potato, Corn Bran, Evaporated Cane Juice, Sea Salt I've eaten these chips on several different occasions, but I always had something else I blamed the reaction on. Twice...
  10. Eclara
    Thank you so much for your response! Unfortunately, that is outside of my driving range as I don't have a license and the only person available to drive me can generally only take a couple hours of out his day. I will definitely make note of it for future reference though!
  11. Eclara
    Anyone have any recommendations for gluten intolerance and celiac-educated doctors, particularly gastros, in the Twin Cities and the southern surrounding areas? Basically anywhere between-ish Lakeville to Minneapolis. I've been to three doctors in the MN Gastro chain so far, and I don't know if I just happened to pick the worst ones but they were enormously...
  12. Eclara
    Thank you all for the replies! I agree that it was probably the gluten, although the wine probably didn't help with the stomach pain. I guess I've learned my lesson about slacking now! I'm doing a little better today, the drugs from my wisdom tooth extraction are masking most of the other symptoms, so there's a plus! Weirdly, the glutening actually turned...
  13. Eclara
    I went on a road trip this past weekend, and had my first ever drink of alcohol on Sunday night. It was Arbor Mist wine, which from my research appeared to be gluten free. I didn't have much, maybe 2, 2 and half little glasses. I didn't really feel the fun part of it, all it did was flare my rosacea and make my brain fog worse and my stomach a little burny...
  14. Eclara
    Hello! To recap: I was gluten-free at the suggestion of my then-doctor, but was not careful and not avoiding CC. I did this for about one to two years. I did a gluten trial from mid-October to early December in 2012. Biopsies all came back normal but the trial made me very very sick, triggering gastritis, fibromyalgia, a spike in my thyroid levels, and about...
  15. Eclara
    Thank you for your reply! I was on 50mcg of levo for 3 years, and I'm on 30mg of Armour now. Do you think I could be having hyper symptoms this fast? I think it's only been five days and I had symptoms after I took it the first day.
  16. Eclara
    I switched from levothyroxine to Armour a few days ago. We called the pharmacy before I started taking it and they said the pill itself was gluten free, but it was processed with other non-gluten free pills. I was desperate to try something new and went for it despite feeling iffy about it. I got symptoms of anxiety and dizziness on the first day I took it...
  17. Eclara
    I'm strangely comforted to know I'm not the only one having run-ins with horrible doctors! I did a gluten trial last October and had a (negative) biopsy after 8 weeks of it. I had terrible psychological and physical symptoms that have taken until this past month to start calming down. When I went in two months later to see the gastro who'd recommended...
  18. Eclara
    Thank you for your replies! I thought it was an odd thing for him to say. I probably should have been more specific. I am completely gluten-free! I was gluten-lite (not outright eating gluten but not avoiding cc and still consuming questionable foods like soy sauce) for two years before the gluten challenge, during which I ate a loooot of gluten and got...
  19. Eclara
    I had a negative biopsy last December after an 8 week gluten trial that triggered a whole host of new symptoms for me. I went to see a new gastro last week because I'm still having so much stomach pain and he was the absolute worst. He made some confusing comments to me that I was hoping for some insight on. Me: "What should I do about the stomach pain...
  20. Eclara
    Thank you all! I have finally come to terms with the fact that I will never have a conclusive diagnosis and am trying to settle under the umbrella of gluten intolerant. I have started weaning myself off the Prilosec, and after a rough first week my stomach is feeling much better than it has in a long time! I have also been doing pretty well with avoiding...
  21. Eclara
    Thank you all for the replies! I probably should have clarified more. I got a bit swept up in my pity party rant and kind of forgot what question I was even asking, apologies! I am eating gluten-free now, not lite, and have been since early February. I cook and prepare all my own food, have my own pots and pans and a tiny cupboard for my gluten free things...
  22. Eclara
    I need advice on the best next step for me. I'll try to make this short. I have been sickly pretty much my entire life, had terrible stomach pain and constipation from age 5 on, started getting autoimmune-ish and mental symptoms at 13, been all downhill from there. I was gluten-lite (an uneducated attempt at gluten-free, no avoidance of cc whatsoever and...
  23. Eclara
    Thank you all for the replies! I will definitely mention gastroparesis and cystic fibrosis when I visit the doctor next, but I'm not sure the symptoms fit me quite right after reading about them. I'm thinking now that a lot of my problems are actually coming from the gastritis which is refusing to heal. I've been on Prilosec for 5 weeks now. For some reason...
  24. Eclara
    Yes, I struggle a lot with nausea and constipation and mild bloating, I probably should have mentioned that from the get go! The nausea is a new one for me, it only started happening when I developed the gastritis (December), but the constipation has been lifelong with occasional periods of regularity and the bloating goes back a few years. Thank you for...
  25. Eclara
    Yeah I've tried several probiotics over the past few years, but I never noticed any difference from them. I had a colonoscopy/endoscopy and a full abdominal and pelvic CT in December and January and they couldn't find anything really wrong with me apart from mild gastritis. I will try the food journal, but it seems like it's a pretty consistent discomfort...
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