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guest134

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Latest Celiac Disease News & Research:

Everything posted by guest134

  1. guest134
    In certain screening populations it can reach a very high specificity to celiacs however it is never 100 percent as other more rare causes (that make up 2-4 percent of EMA positivity) such as intestinal lymphoma would need to be ruled out while celiac is confirmed through a biopsy. However in her specific case if it came up positive it would very well be...
  2. guest134
    Just ran into a new study that showed the endomysial providing an astonishing 64 percent specificity in their screening population. Open Original Shared Link Open Original Shared Link Effectiveness results EMAs had a sensitivity of 95% and specificity of 64%. The only predictor of positive biopsy that reached statistical significance was a positive...
  3. guest134
    Here are some of the many causes of villi damage: Coeliac Disease Cows Milk Protein Intolerance Soy Protein Intolerance refractory Sprue collagenous Sprue Immunodefiency Synodromes Mediterranean lymphoma intestinal ulceration Gastroenteritis Intractable Diarrhoea of Infancy Protein Calorie Malnutrition Kwashiorkor Tropical Sprue Parasitic...
  4. guest134
    That response does not make sense. Each machine has different methods, even the ELISA based tests will vary from lab to lab. Each lab will come up with appropriate negative values based on several factors. It is important to remember that if a normal test is under 30 and you have a reading of 25 it is not because you have some antibodies, it is against dilutions...
  5. guest134
    That sounds like the onset of diabetes and not celiacs IMO.
  6. guest134
    Try the gluten free and if it works it works, if it doesn't than no harm done. That being said though if you have a serious list of symptoms it is best not to self diagnose and get an actual diagnosis, many different diseases that cause similar symptoms to celiac, in fact celiac is considered the "great imitator". It would be best to find your ailment before...
  7. guest134
    What were your symptoms? Are you sure you didn't just go through a placebo affect that is now wearing off? Seems to me if you had an appropriate endoscopy taking enough samples and the blood work that you simply don't have celiacs. Did you have a gene test? That being said if you feel better off gluten and it makes you happy than stay that way, regardless...
  8. guest134
    Wow Nicole it sounds like you really went through hell to get your diagnosis. What were the doctors telling you for all those years? Let me guess... IBS. I know someone who has been having horrible bowel issues for years, he went two weeks without going to the washroom, TWO WHOLE WEEKS and the doctors say IBS. Of course they did not actually do any exclusions...
  9. guest134
    Great response, I am sorry if I sounded like I was over generalizing, it is just that I have seen many people (not all) say 100 percent specific, if it is positive you have it no doubt. I was looking for those people to chime in as to where they got their info from.
  10. guest134
    Does anyone have anything to add? A lot of people on the forum seem to think EMA has a strong correlation to celiacs in all population samples, can you guys comment or add some literature to support that? I am very curious as to why it is praised to such high specificity when I have seen nothing validating what it is either than "a reaction to ongoing inflammation...
  11. guest134
    With no digestive issues what made you think you had celiacs?
  12. guest134
    1- Where in the abdomen was your pain located? 2- How long after a meal would the pain come? 3- Would you get pains when eating non gluten food? 4-How would you describe the pain? (sharp and stabbing, dull, achy) 5- How often did you go to the washroom? Would you need to go soon after ingesting gluten? 6- Was the pain consistent like daily or would it...
  13. guest134
    Dug up some more info on specificity tests and how infections can raise antibodies. These are different than the endomysial but share the same specificity for their respective diseases. anti-Saccharomyces cerevisiae antibodies (ASCA)- This is considered the endomysial of Crohn's disease, with a 98.9 percent specificity to the disease. Now here is a...
  14. guest134
    It always shocks me how many people here seem to have their doctors overlook celiac. Like what the hell is wrong with the medical community? You don't constantly ignore crohns, ulcerative colitis etc... why do they always look past something so basic? Drives me nuts. Celiacs is MUCH more common than crohn's, I remember reading crohn's was something like ...
  15. guest134
    Great news, not going to have to wait until April to find out what the heck is going on with me. Kind of sucks that it is so close to Christmas and during the holidays but I will take that over waiting. Looking for a bit a comfort to make me feel it won't be so bad . My friend made it sound to be awful, saying you will just be choking on vomit as your...
  16. guest134
    Jeez, some of you seemed to have a real fun time getting a proper diagnosis. I hope my journey is a little easier.
  17. guest134
    Pulled up another good article on some of the tests and what they mean: Open Original Shared Link "Celiac disease is defined as the gut damage caused by gluten. When this happens, there is an over-reaction of the immune system in the gut. A harmful immune reaction is generated in the gut tissue. This tissue injury involves inflammatory cells and the production...
  18. guest134
    Just wondering if they did and what your results were if so.
  19. guest134
    The gastro is talking about the older tests, yes the DGP is not 100 percent accurate but with levels that high I would look further. The issue is that many of these tests can be elevated in other conditions, I currently have a positive TTG after gastroenteritis. What you are going to learn here is that celiac is not very easy to diagnose unless the person...
  20. guest134
    The deamidated gliadin is an antibody created in reaction to gluten, it is SUPPOSE to be very specific for celiac. I say suppose because it only came into play in 2008 and there are still many studies being done on it. However it is very likely that your son is having reactions to gluten with a level that high. The TTG IgA looks for damage in the small...
  21. guest134
    And another article on similarities in other gastro issues and celiac Open Original Shared Link After reading all that I have I would HATE to be a gastroenteroligist, the entire digestive system just seems like a mess and diseases from it are very difficult to diagnose with really no slam dunk diagnosis most of the time. Funny how things like...
  22. guest134
    Pulled up something interesting on biopsies and villi damage: "Small intestinal biopsy does however, have some limitations. For example, acute viral gastroenteritis and allergy to cow's milk or soy protein can cause abnormal small intestinal biopsies that are indistinguishable from celiac disease. However, acute viral gastroenteritis is not easily confused...
  23. guest134
    Ok great, so B12, B1, K, Iron, Copper, Zinc, Ferritin, Red blood cell count. What about glucose fasting? I heard hypoglecemia can occur from celiac, does anyone know if that is true? My fasting glucose in august was 3.8 but I was on bactrim which apparently will cause that so I am retesting it after I get rid of the H. Pylori.
  24. guest134
    The endomysial is a sign of ongoing intestinal damage, they will be released from the muscle layering of your endomysium when chronic villous atrophy occurs. What will happen is you receive damage in the small intestine for whatever reason, EMA ab's are then released, and yes they cause further damage to the tissue but their release was not from a reaction...
  25. guest134
    No, endomysial and TTG both are markers of inflammation. Will they be elevated in every single case of the mentioned causes of villi damage? No, but for some people they will, everyone has different reactions to things, the same strain of salmonella can barely harm one person and kill the next. I thought the same thing as you but have spoken to many surgeons...
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