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guest134

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Everything posted by guest134

  1. guest134
    In the United States and Canada, Celiac is confirmed by a biopsy, this is very important for others with autoimmune diseases. The reason being is that other A.I diseases can cause a false positive on Celiac blood tests so the positive results must be confirmed with clinical presentation/Biopsy. You may have learnt by now that A.I diseases can commonly be...
  2. guest134
    I had some false positives for Celiac after a bad case of Salmonella, there are things that cause elevations aside from the disease. Your doctor should have the decency to sit down with you and discuss results while showing you the ranges. Perhaps you TTG was 10 times the normal range with a very high endomysial titre and your doctor is right or there can...
  3. guest134
    I also wanted to add to what Karen said, what makes this guy put "Dr." beside his name? There is conveniently no information showing any medical or P.hD degrees. I would be willing to bet a lot of money that he does not have his medical degree and if he does have a Ph.D in something then he is using the doctorate title in a misleading way to make people believe...
  4. guest134
    "Fortunately, revolutionary breakthroughs in gluten testing are now available from Open Original Shared Link." Stopped reading after that. How typical, a Naturopath creates an article on how wide spread Celiac is and how modern testing can't find it and then goes on to sell some useless testing product claiming to have all the answers. Although they pointed...
  5. guest134
    The associated Celiac genes are present in 30 percent of the world population while Celiac disease itself is present in about 1 so perhaps that is why your GI called the other guy a "quack". According to the University of Chicago Celiac disease center blood tests will provide with false negatives 1-2 percent of the time and false positives 2-3. A lot...
  6. guest134
    Just so you know if you were on omeprazole even 3 weeks before the H. Pylori test it will more than likely give a false negative (unless you are lucky).
  7. guest134
    Don't worry about the results, I know that is easier said than done but really Celiac is not that bad of a disease. Believe it or not anxiety can be a huge symptom of it and going gluten free often completely diminishes the angst from undiagnosed Celiac patients. What led you to Celiac testing?
  8. guest134
    Blood tests are often difficult to interpret, with the one weak positive it makes it even more difficult. That is what sucks about Celiac, often the diagnosis is up in the air and not so clear cut. I am not sure what you are speaking about with the Endomysial, the range you provided makes me think that you have mistaken that for your total serum IgA? There...
  9. guest134
    Just because you are over the average age of diagnosis does not mean you are immune to Crohn's but I really doubt that is it regardless so I won't go there. You need an endoscopy for Celiac, not a Colonoscopy. In Ontario there are two tests to order, one is the Celiac panel which includes DGP IgG/IgA, Tissue Transglutaminase and total serum IgA for $...
  10. guest134
    With numbers that high Celiac is likely. My G.I was telling me that asymptomatics are the highest risk group for complications since they will often doubt diagnosis and not want to stop gluten consumption without the classical symptoms. He told me a story about an old client who was referred due to early onset osteoporosis and weight loss, nothing classical...
  11. guest134
    Kerid, it sounds like you are in a situation many Celiac's fall into in which diagnosis is not always so clear sighted and easy. With her entire IgA panel being negative (including endomysial?) and a low positive IgG with a recent infection I would say that the test was likely a false positive. I really need more info to be of more help, what made...
  12. guest134
    Madagascar, if the woman you speak of says "If you have the gene you have Celiac" than she is horribly incorrect. Does she have her M.D? PH.D? What qualifications does she have to say something like that? It honestly gets me so angry to hear that people are going around spewing false information and making people believe they have a disease that they do not...
  13. guest134
    Did she have a recent infection or illness when the test came back positive? Celiac is not the only thing that can raise the TTG, here is a study of transient elevation during illness in children: Open Original Shared Link The tests can have both false positives and false negatives, so to tell which one is more likely the clinical evaluation/medical...
  14. guest134
    Hey all, so a quick recap: Had Salmonella this summer, was concerned about Celiac developing so had blood work done in September that came back as follows: Deamidated Gliadin IgA 5 (<10) Deamidated Gliadin IgG 11 (<10) Tissue Transglutaminase IgA 16 (<10) Endomysial Ab 1:5 So some of the tests came back very weakly positive, the endomysial...
  15. guest134
    You can't just ask your doctor for the blood work? It always surprises me how many doctors refuse, especially in the states. It is your money, your health, so who are they to deny a simple test if it will at least "shut you up" if negative? When I requested my blood work my doctor said "there is no way you have Celiac but if it will make you happy than sure...
  16. guest134
    I spoke of the importance of a proper biopsy procedure to declare a true non Celiac. Biopsies, like any test can produce false negatives, it is however considered pretty rare and dependent on an incompetent GI which is again rather unusual Only when the GI has not properly cut or produced enough samples would this come in to consideration. The Chicago Celiac...
  17. guest134
    Are you saying that 20-30 percent of true Celiac patients have false negative tests or are you saying that NCGI simply does not show up on blood tests most of the time? If you are saying that 20-30 percent of Celiac patients receive false negatives that is absolutely false. In fact, the University of Chicago and Maryland states that false positives are...
  18. guest134
    Where did you find that gluten intolerance causes dental issues? Celiac will, because of the absorption issues resulting in the lack of important nutrients that are crucial for dental health and because most diseases of the digestive track can show some signs in the mouth as well (all connected). Gluten intolerance is similar to that of an allergy and...
  19. guest134
    Random stomach cramps, fatigue, chills, indigestion, and on and off diarrhea. Look at it this way, like Celiac recovery it takes a while for the intestines to heal once the threat is removed. Some people with Celiac need a good year to have their intestines fully recover, others only a month. Salmonella is like gluten to a Celiac, once it is eliminated...
  20. guest134
    I had Salmonella this summer, the lingering issues is what led me to this forum. Although I am pretty much 100 percent now it took me like 5 months to feel good. The thing with salmonella, and any other bacterial infection is that it is not always as strong in one person as the other. Remember, it kills some people, while others don't even know they had it...
  21. guest134
    Here is a little understanding of antibody tests. To begin with, an antibody test is NOT a simple number of antibodies in the blood. It is not as simple as reading little dots and counting them like one antibody, two antibody, three antibody. The number you are seeing is a dilution titre to a reactivity staining pattern, the gliadin peptides are diluted...
  22. guest134
    Wow, just realized I misheard the biopsies taken. The G.I took 15 not 5, just noticed that on my follow up sheet. That is very comforting, I feel like if I have Celiac he will definitely find it, thank God I have such a determined G.I. He was very knowledgeable on Celiac and the implications of ignoring asymptomatic disease, was kind of morbid though. Went...
  23. guest134
    I would say shop around for a gastro then, I forced my regular doctor to let me choose mine after reading reviews. This guy was very well versed on Celiac, if I have it I know he would find it. What brought me in was a very slow recovery from Salmonella this summer, although I am better now it took quite a while. I demanded to be tested for Celiac and...
  24. guest134
    Yeah I had sedation, I can't for the life of me remember much after that second needle. The biopsy results come back in 3-4 weeks. Seriously, don't worry about the endoscopy I couldn't believe how easy it was, I slightly remember them taking it out and I said "That's it?". All I had was IV sedation and some sort of throat spray. I am not gluten free,...
  25. guest134
    Wow, I cant believe I was freaking out about it, I couldn't even remember half of it, way too easy. As for the results he said my intestines looked perfectly healthy, no visual signs of inflammation or ulcers or any of that sort. He took 5 biopsies and I will get the results in 3-4 weeks.
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