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CeliacShack

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by CeliacShack

  1. CeliacShack
    I spent the first two months after my diagnosis using black pepper and baking soda that "could contain traces of wheat". I felt like a complete idiot when I discovered it, after thinking I was being so careful reading lables... and wondering why I was still having setbacks. I already had those in my cabinet, and never thought to look at them.
  2. CeliacShack
    I just dreamed last night that I was frosting several huge chocolate cakes, then I accidentaly licked my fingers, and then panicked, lol. I have, in reality, had a few moments where I came very close to just popping something in my mouth without thinking about it. The other day I almost bit into a piece of regular pasta to see if it was done. Duh!
  3. CeliacShack
    Hmm, that's true, his uncle just had a clot recently, and he was getting tested for lupus, I hadn't thought of that. Thanks for the advice, I will check out different AI disorders. My father had the blood celiac test done, and it came back negative, apparently. He also has bone spurs and degeneration in his spine. He has a huge amount of crazy symptoms...
  4. CeliacShack
    I feel like the kid from the Sixth Sense, "I see celiac people". But seriously... I was just diagnosed through biopsy in June, and have been gluten-free ever since. My symptoms are improving, and I'm doing okay. However, I now have concerns that my husband could also be celiac. He's having quite a few health problems. I really just wanted to see if other...
  5. CeliacShack
    I am amazed at how I discover new things every time I come to this forum! Someone mentioned dry heels and elbows, that are now getting softer. I never attributed that to celiac, but yes, mine are softer now too. I always had a lot of trouble with my heels, and now they are fine. Amazing what gluten can do to your body.
  6. CeliacShack
    I went gluten-free after my diagnosis in late June, so I'm still fairly new, but I have had some changes. what changed for you after you went gluten free? - For a long, long time, I have had this constant pain in my left heel. I though I had possibly broken it, but after going gluten-free, it went away. It comes back whenever I have accidently been...
  7. CeliacShack
    Yep, I get grouchy and short tempered when glutened!
  8. CeliacShack
    Thank you for all the advice, I always find something new to research on this forum!
  9. CeliacShack
    Best of luck to you. It's so frustrating when doctors won't listen.
  10. CeliacShack
    Thank you all for the advice and the welcome, I will check out the products! I just had blood tests this morning (10 vials) to check my levels, so I'm hoping I'll get some answers.
  11. CeliacShack
    My doc was sure it was my gallbladder making me ill, but all testing came back showing it was okay. I was so frustrated at that point, I almost wanted them to take the darn thing, in hopes I'd feel better. Thankfully he referred me to the GI doc next, who discovered the celiac.
  12. CeliacShack
    One more thing, if anyone has any advice for strengthing hair and teeth, I'd love it. I've been losing hair like crazy and my teeth are weakened. I've heard calcium and iron?
  13. CeliacShack
    Hi, just thought I would formally introduce myself. I've been posting for a short while. I've had mysterious illnesses much of my life. I've had lifelong struggles with migranes, stomach problems, insomnia, fatigue, depression, panic attacks and anxiety. I would occasionally pass out. My weight has gone up and down numerous times, and my menstrual...
  14. CeliacShack
    LOL, well if you can't vent on a celiac board, where can you vent, right? One reason I struggled so long was because I was raised in a big family, not much money, and going to the doc was discouraged. I still feel guilt when having to go for expensive testing. I fully expected my mother to be difficult with my diagnoses. (I'm a grown woman, but...
  15. CeliacShack
    I thought I was crazy. All the illnesses and symptoms I have over my life, I honestly has to ask myself if I was "faking" or somehow doing it to myself. My father has numerous health issues, fibromyalgia being the most prominent. I myself think he has celiac. After my diagnoses, he got a blood test, but apparently it was negative. I know that isn't completely...
  16. CeliacShack
    I actually had very strong healthy teeth for most of my life. Lots of cavities as a kid, but then none for 25 years, until I started to really get ill in the past couple years. That was when the broken teeth started. This past dentist appt I had three cavities. Two of my three sisters have had tons of problems with their teeth, as well as other issues that...
  17. CeliacShack
    Sorry, one more post, lol, I'm a bit of a fertility knowlegde freak, after trying for four years. I learned so much about TTC by reading the book "Taking Charge of Your Fertility by Toni Weschler. (I don't have any vested interest in the book, just sharing.) I did the basal body temperature charting, monitoring cervical changes, all that fun stuff for my...
  18. CeliacShack
    Oops, I forgot to say, when I went low carb/low sugar, I felt better than I ever had in my entire life. I unknowingly was low gluten as well, which probably helped with my health, weight loss and successful pregnancy. At the time, I didn't have a clue that I had celiac.
  19. CeliacShack
    I was diagnosed PCOS in 2001 as well, like a previous poster. At that point I had no clue that I also had celiac. I tried to conceive for four years before finally having my twins. I was having many, many health problems at the time, ballooning weight, high cholesterol, high blood pressure... and all of this while I was a vegetarian. After a long consult...
  20. CeliacShack
    I feel the same way. I went to my PCP yesterday to talk about getting my levels checked, just need to call my insurance to make sure they'll actually pay for them. I'm so tired of being tired!
  21. CeliacShack
    I also had teeth break over the past couple years, before I was diagnosed. The dentist couldn't understand why they broke. There was no decay, no cavities. Now I know.
  22. CeliacShack
    I'm in a bit of sticker shock at all the changes I have had to make in the past few months, but I keep reminding myself, it is worth it! I just got back from the dentist this morning. I haven't had any cavities in 25 years, and now, due to the joy of weakened enamel, I had three filled today.
  23. CeliacShack
    Thanks I have a little pile of supplements I have been taking, but I definitly want to zero in on specifics. I keep forgetting about the probiotic, got to add that! I used to take them when I had infections that would not heal. Celiac is just so darn fun, isn't it?
  24. CeliacShack
    Yeah, that'd be nice! My PCP has been great, when I was in pain, he thought it was my gall bladder initially, and continued to send me for testing when they were not finding an answer. My gastro zeroed right in on celiac, so I am grateful for that, especially hearing so many horror stories on the forum. However, I would have liked more follow up and advice...
  25. CeliacShack
    I feel similar, tired most of the time. I've been taking notes from all over the forums about what specific tests to request, and I made an appt for next week with my primary doc, who has been very helpful. My gastro diagnosed me, but when I asked him about supplements, he said "No, just go relax and get better". That's not enough of an answer for me. I'm...
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