Mahee34

FINALLY!!!!!!!! I CAN HAVE ABSOLUT APEACH!!!

When I go to TGIFridays I eat their Potato Skins....we can have them in the box where you buy them in the store so I don't see why it'd be any different at the restaurant.........

yea, looks like Paul from guest relations didn't get the memo out celiac disease

There is a support group in Gettysburg, PA that meets twice a year and has a meeting coming up on November 7th, I believe.  We have about 40 people and the chairwoman contacts numerous gluten-free companies and gets an awesome abundance of gluten-free samples.  I usually come home with several shopping bags of free food.  Meetings are on Monday nights.  There is also a group that meets in York twice a year, but theirs is on a Friday night.  Since they are much larger (100+), they are able to get some great speakers to come in, i.e.  Dr. Fasano. Camp Hill, PA also has a group.  If you want more information, just e-mail me:  prock@pa.net

Mom 2 to 2

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wow, i live in gettysburg and i've never heard of these groups! thanks for the info!!

Hello there.  Thanks for reply.  Is there a Group in your area?

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not that i'm away of, yet anyway

Hey everyone......I was wondering if anyone had any issues with the allergy medicine Alavert...I took some yesterday and I had a serious attack, the worst that I've had in a long time, thank goodness I was at home.

I didn't really think to look to see if I could even have it, needless to say it didn't help my allergies and brought on some other not so awesome symptoms...

thanks for the help!

Alrighty then, so Applebees is a no go........what' about Garfields or Ruby Tuesdays, anyone have any things to say about there?

I actually work at a bar and those cranberry and oj drinks have made me have some sort of reaction....also, be careful when eating out at a bar....they cook everything together , even if you ask them not too, i had to learn my lesson the hard way

I'm sure this has been posted before BUT i was wondering if Applebees had anything gluten free or if anyone has had any experiences with them?

Thats great.  How did you get in contact wth malibu? Yes,alittle Rum & Coke.

-Joe

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I've always had Malibu as my drink of choice, from my understanding all rums are gluten-free. I've been drinking Malibu for years and never had any problems. And I'm one of those extremely sensitive people where I could just ingest a small bite of something and get sick.

I'm actually eating Branch's candy corn now and I've never had a problem. I guess it just depends on how you react to things, I know a lot of people have problems with MSG and I personally never have

Thanks for reply. As i said, the cities named are the farthest out I could possibly go. Let me know what you are up to. 

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I live in the battlegrounds.....but currently am away at graduate school, should be back in that area on and off throughout the next year though

The past few times that I've been to Outback they can't find their gluten free menu and I've gotten sick at least twice. I really think that all restaurants need to hire someone like us to modify and make sure that the menus are followed. I work in a bar and grill and they don't even really care about people like me!!

How do they do a test to notice that you have endometrioso?

D = diarrhea

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ha i didn't realize it had its own nickname!

I am new to the forums and i would like to say that I am 15 and i have been taking imodium for 3 years, 2 tablets everyday. Now my parents want to find a soulution..i havn't been diagnosed, but if i do do anyof you know any goood anti-diarrheas?

Thanks.

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I've always used Immodium, however, you should only take immodium if you need it, taking it everday is dangerous just like taking any medication everyday for 3 years. Even if you dont' get diagnosed, try the Gluten free diet, your use of immodium will cut down emmensly.

Yes, for the last few years.

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what's the big "D"

I understand the frustration about going from being very thin to gaining some of the weight back and having that flucuating. Although being thin is nice, it isn't always healthy in the way the weight comes off. The best thing you can do is be patient...if you're still having food problems see a nutritionist, I had an easier transition because my mother is one, but she had to do a lot of research in order to help me out. But don't think that the entire issue is solved. celiac disease is a life changing disease and it takes time....there are some days that my stomach hurts so badly that I contemplate the whole not eating thing too, but it isn't the way....just remember, you aren't alone, we all are going through the same thing!

I freeze the ones i don't use, but not for a long period of time...you can keep them however you like, once again, not for a long period of time. It's usually better to keep them in an air sealed container...

as for pizza.......chebe bread is very good you can go to www.chebe.com

Sheesh.

Can't we ever feel normal? I mean isn't it bad enough that we have this celiac disease but we have to have all these other issues too. I almost forget what it feels like for my stomach not to feel weird or for my body not to ache...thanks for the support though everyone....hopefully we'll figure out ways to fix what ales us.

as for the guys reading this, i know they didn't make it past my first post if they did! ha

I know this is a little bit akward for some people, but, every since I've been diagnosed with celiac disease intercourse has been incredibly painful. Does anyone else have this problem. I've tried lubracants, even talking to my gynocologist and she isn't very helpful, maybe she just doesn't know the disease. Any help or support at least?

SO whats the deal now that Frosty's aren't gluten free? I've had the baked potato with the broccoli and cheese and to be honest there have been times that I've felt sick from that, which is annoying since it's stated on the gluten free list. The thing that sometimes tricks people is that when they use like a cheese sauce, some companies use wheat as a thickener...that's something that drives me nuts, soups should be safe, but they usually aren't...we can't win!

SO whats the deal now that Frosty's aren't gluten free? I've had the baked potato with the broccoli and cheese and to be honest there have been times that I've felt sick from that, which is annoying since it's stated on the gluten free list. The thing that sometimes tricks people is that when they use like a cheese sauce, some companies use wheat as a thickener...that's something that drives me nuts, soups should be safe, but they usually aren't...we can't win!

You can always contact your school's head of the cafeteria and explain your situation, my undergrad was very accomadating. good luck!

I think cereal will always be a dilemma, the sugar thing is a part of celiac diesease that I have a problem with because of a history of diabetes. The eggs, waffles and pancakes are always a good idea, but I understand that you're short on time. I like to make muffins or rasin bread on my days where I have more time so I have those quick breakfast in the morning. If that doesn't work there is always toast and jelly!!

Apples are naturally known to make you go to the bathroom. Making sure that nothing was sprayed on it is key.