nettiebeads

Are the receding gums a part of celiac disease?  I have just been told that I need a gum graft for my receding gums.  I wonder if there is a celiac disease connection?

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I think I read somewhere that there is a connection. My teeth shifted some after developing celiac disease. All those high school years in braces and now not much to show for it!

I'm the only one in my immediate family and don't know of any aunts, uncles, grands or cuz that have it. But it's probably from my mother's side (100% Swede and as stubborn as they come)

Hon, you are not a loser because you cry and have moods. I remember being soooo angry over celiac disease. I loved to bake, Christmas and Thanksgiving were my favorite times of the year because I would bake pies, and stuffing and cookies, ohmy! It does get easier, your taste buds can still remember vividly the taste, texture and everything else that goes with the now forbidden foods. The memories of that will fade, it takes time. But on the flip side, you get to explore your creative side to replace what you miss. I can make a great corn bread now to go with my husbands killer chili that even he thinks has regular flour in it. And you have this forum where everyone understands and can certainly empathize with you.

I know it won't help you now, but on nights that my brain won't shut down, I take an OTC (gluten-free of course) antihistimine. Cheap, non-habit forming and works. Dr. Gott (he has a newspaper column) recommends it.

canola oil is gluten free but not always rec for people on a gluten-free diet?

I always use canola oil on my son's rice pasta...does anyone have any info regarding canola oil?

can I continue to use it..should I avoid it??

Thanks, Kim

Thanks for writing. Since I've been at this forum I've become bolder in addressing my celiac with drs and talked to the owner of our one and only health food store. The gluten-free offerings have been expanded so I mentioned that I probably am not the only one in the area with celiac disease. I'll probably post something on their bulletin board to start a group here. But it can't be an official support group because one has to be a member of one for two years before a new support group can be formed. And St. Louis is a little far to drive on a week night.

Anyhow, I agree with eating out to be a luxury. I love the experience of dining out, but to me the risks usually outweigh the enjoyment. But I've learned a few tricks to turn store bought stuff into tasting gourmet. Made chicken alfredo last night. I serve it over spagehtti sqaush. I poached the chicken in a broth made from herbox bullion cubes, diced up onion, green and yellow peppers, sauted that with some minced garlic. Added the Ragu classic alfredo to that. thinned it with a cheap white wine, simmered it to get the raw taste out, added the chicken and it was great! One of my favorite recipes. Sure keeps me from feeling deprived.

Is Hydrogenated Vegetable Oil gluten-free?  I can't remember if it's Hydrogenated Vegetable Oil or Hydrogenated Vegetable Protien that is not gluten-free, or both (or neither?).  I'm trying to track down what's making me sick again.

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hydrogenation is a process to turn oil from liquid form to solid form so plain old hydrogenated vegetable oil is gluten-free.

lead a mostly normal life?  Pain being headaches and muscle pain sometimes depression. 

Thank you,

Cheryl

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I get through my depression after accidental gluten ingestion by remembering that it isn't forever. The gluten-free diet will work, but it takes time and everyone responds differently and at different rates. But it will go away. Just go one step at a time, get through and do what you absolutely have to and then rest, relax, restore yourself. Make sure you are getting adequate nutrition - protein for energy and your B's for coping.

If I get stressed or angry (like I did yesterday after my crappy doctor appt) my body just doesnt handle it well at all. I get terrible headaches after the tiniest amount of stress and I'll feel like I've taken a huge step backward in my recovery. Is it normal for my body to be easily run down or should I worry about other causes? I've only been gluten-free a few weeks so does it take awhile for my immune system to bounce back?

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I'm so sorry to hear of your crappy dr appt. Why do they forget that they are in the healing profession? And are supposed to help, not hinder? Your body has been through quite a lot, so give it lots of time to get better. I sometimes have problems with stress still. Maybe it's just a by-product of celiac disease. So when I get through with the stress (like my annual audit at work) I make sure I take care of me with plenty of rest and my favorite hobbies (sewing and beading) But as time goes on and you continue to heal, you will be able to bounce back faster. Hope that helps.

I'm starting to get interested in buying my grains in bulk and grinding them myself. Do any of you grinding your own grains and what do you use to grind with?

Thanks

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My husband uses an electric coffee bean grinder. Real cheap (got it at an auction)

I went to the doctor yesterday, and the doctor laughted when I said that I thought I might have celiac diease.  He said he rarely see celiac and when he does the people are rail thin with bloated stomachs( I'm 5'6 140lbs.)  He said he thought my symptoms were just stress from my job(teacher)  He did go ahead and do the blood tests, but he also said that it was just IBS and he gave me a prescription for Dicyclomine.  My results come back on Friday. If they are negative what should I do?  Should just keep eating normal and take these pills or should I get a second opinion?

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OH for Pete's sake!! Where is his professionalism?!? IBS is just a catch-all dx in my mind. It seems that there are more dx that correspond with pharmaceutical ads than anything else. If the results come back neg, it could be a false neg, but if the results are pos, then you have celiac disease. If they come back neg, you could always try the gluten-free diet on your own. If your symptoms lessen and you start to feel better, that most likely means you have celiac disease and the diet challenge is a legitimate diagnostic tool for celiac disease. (that's how my dr. found out I had celiac disease) Keep us posted.

On another note you really don't NEED to see a doctor. There is no cure and little they can help you with. Reading online, such as this site, will tell you more about following the diet (which is a must, and your only treatment) and answer questions better than any doctor can.

Merika

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You are right Merika. My dr diagnosed me nine years ago and simply told me no wheat, rye, barley and that oats was questionable, but to stay away from it just to be on the safe side. I rarely discuss my celiac with my drs anyhow. I've educated myself through websites and now this forum, which I love. I've become more aware of cross-contamination issues (my old wooden spoons went bye-bye) and hidden sources of wheat (health and beauty aids) through this site and I'm feeling better than I have for a long time. It takes time, but trust us, it does become simply a fact of your life and after awhile it won't be such a big deal. And thank God there are still things on the list that we can eat - the most important to me is chocolate

I missed work and have a chance of getting laid off and missed 2 test at school. All because I had 4 bites of ice cream. Its not fair and nobody understands. They all just look at me and shrug their shoulders. Its like I am crying for help to them and they cant hear me or dont care to listen. Sorry needed to vent a litlle thanks guys.

Your symptoms very well could be celiac disease. Have you been to other websites looking for info? A good one I found in very simple to understand terms is:

Open Original Shared Link

I would find a printout of all the symptoms of celiac disease, highlight all that you have and take it to a dr. Or try the gluten-free diet. That's how I was dx with celiac disease. And the diet challenge is a valid dx tool. Hope you get better soon!

I sure can't blame you for being so frustrated. Abdominal pain is hard to diagnose, but I think your dr is using the "dx of the day" or IBS as an easy out. I've had the same pain you've described - so nauseated that I couldn't hold down tap water. ER dr. didn't have a clue. Said it was my celiac. I think it was a gallbladder attack for me. The pain and nausea fit that pattern. And gallbladder problems are associated with celiac disease (don't we have fun?). Do you have to stay with this dr?

Hmm, I would try to eliminate the obvious bread and pastries. The more natural the food is, the less likely that it has been contaminated with gluten - fresh veggies, broiled meats, etc. I would try that for three weeks and see what happens. If the achiness and fatigue lessen, then you probably are on the right track.

I am so sorry to hear of your loss. Please take make sure you take good care of yourself. The stress is going to really zap you - keep your protein levels up, don't forget your supplements if you take them, and don't forget to eat.

Kroger makes a gluten free one, surprisingly. If you have a Kroger nearby, look in the international foods section, and in there, look around the chinese or thai section. It's regular Kroger brand, and it has no gluten or wheat whatsoever. Doesn't taste too bad either 

It is also only like $2.00 per large bottle... compared to the 7 of Tamari.

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Wow!! I never thought to look there! It's funny how sometimes the name brand will be okay and the local brands not, and vice versa. Anyhow, thanks for the tip!

The local Denny's where I got glutened has asked me to give a 5 minute presentation to their staff next Wednesday at 7 am.  Any suggestions on things that I should cover would greatly be appreciated.

Armetta

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CROSS CONTAMINATION!!! How if a spatula is used to flip a bun, then is used to do a gluten-free burger, the burger won't be gluten-free anymore. I have order things that I know are naturally gluten-free (omlettes) but have always wondered if maybe the food wasn't really gluten-free. Or that putting a piece of toast on the plate, then taking it off, the plate isn't gluten-free anymore. Explain to them what the body does to people with celiac disease when gluten is introduced to their system. Explain that it is an autoimmune disorder that won't kill us (not if treated correctly) but there isn't medicine to counter -act the trigger (gluten) like there is with allergies (anti-histimines) Get graphic if you want on how sick we get and how long it can last. Ask them if they have ever swam up a molasses river in January. Or had your head stuffed with cotten. Felt really weirded out. Or have wild mood swings. How fun it is to know that if you aren't careful and keep contaminating your body with gluten, you are at a much higher risk of colon cancer and other goodies. I'm sure celiac3270 or richard have lots of ideas. I don't think celiac disease can be compressed into 5 minutes, not when it has 200 symptoms, but at least you are getting a chance to educate some more of the general public.

I use the rice crackers. I'm Lutheran (MO synod) and give mine to the elder who puts it in the tray right before I come up for communion. I haven't had a cross contamination issue because the regular wafers are more like styrofoam and have a hard finish, so it doesn't seem to bother me. But the regular wafers will set off a definite gluten reaction for me.

Wow. Thanks for all the replies...but....can't do any of them. I've tried senna before and thought I was gonna die (won't go into detail).  Can't do salad, grapes, raisins, aloe....I tell ya'....I've tried everything.  This has been going on for three years. No joke. I had a short period of time where I was actually going too much...but that has ended, and now I'm back to this clogged mess. I do exercise some, but my energy and time levels are limited. I usually walk every day, probably a quarter to half of a mile, depending on how energetic I am. Plus, I do lots of housework.

Sorry for the rant. But thanks for the concern. I crave all those good for you foods something terrible. I'm sure the fact that I eat meat and cheese all the time doesn't help. But it's all that agrees with my stomach. I homeschool three kids, so I don't feel like I can "afford" to be down for a day.

Ok, done with my pity party.  Thanks again. Keep the ideas coming if you have them!

~Brenda

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Well, for me bananas, rice and cheese bind me something horrible. I can do citrucel, which you say you can't. How about dried apricots? Usually three in the morning for a few mornings works for me. When things are really bad there's always good ole Milk of mag. I have to be careful with that. One little sip and the next day I'm really loosened up, if you get my drift.

Is paprika always gluten-free? 

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I use the McCormick brand a lot and have had no problems.

Someone mentioned Johnsonville when discussing brats - I hadn't seen anything "official" on thier site so I wrote them.

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Yea!! I had been eating the ones w/o wheat or beer mentioned in the ingredients. It's just nice to know that I don't have to worry about the safe ones - they ARE safe!!! One less worry, and a big thanks!

After 9 years of gluten-free, I found out my reactions differ - sometimes a really good bout of D, sometimes not, sometimes brain fog w/o the D,but that would be in varying degrees so I didn't pin it to my food intake, sometimes fatigue with or without the D. It varies still so much for me. I am trying to be even more careful than I have in the past and am feeling better than I have in a long time. And no, I'm not going to chew you out or anything - I understand completely being tired of the constant monitoring and denial of just plain ordinary food that every one else gets to eat. It does get easier and will become such a part of your life that you won't even have to really think about it anymore. But it's still not much fun.

Oh wow!!! I just love this forum. I've had those itchy bumps for years on my fingers, fortunately they were just irritating but not painful. Just like on the upper left hand pic. on your link. THANKS!! My dr. said the bumps were probably because I handle paper all the time. He said that the copy paper is coated to help it slide through the copiers and printers and that the coating can be an irritant. I didn't really think so since I would occaisionally get them on my feet, mostly my heels. Learn something new every day.

BTW, boils are nothing to fool with - get thee to some medical help!!!