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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    I read in another forum some people use club soda to minimize the reactions. It's thought that the quinine may have some benefit. Of course, if I'm going to use club soda, I'd be downing it as a vodka collins
  2. nettiebeads
    OH yeah, I feel that too, even after 9 years of gluten-free. Sometimes I fight it, other times I give in. I think it's that malasborption thing, not getting enough of what the body needs. I've been needing to lose weight for the past 5 years, no success so far. It's that stupid hollow feeling in the stomach that just can't be satisfied. I haven't had...
  3. nettiebeads
    I was thinking about this yesterday. I had to go gluten-free 9 years ago, and have always thought of myself as a person with celiac, not A celiac. I'm so used to it that I forget to mention it when a dr asks if I have any health problems. And once that was when I was seeing a gastroenterologist! (it was about something else entirely, but it came up in...
  4. nettiebeads
    I just ate out with coworkers - There's always that nagging "what if" even though I'm as careful as I can be and ask questions...
  5. nettiebeads
    You will find solace and encourgement here. I used to go ahead and eat wheat after I was first diagnosed. But then I decided the pain, fatigue and all the other symptoms just weren't worth it. It will take a while for your body to heal, but you will feel better. If you have to have your carbs, find a health food store and look for the gluten-free items...
  6. nettiebeads
    I was the same when I first had to go gluten-free. But then I started associating the stuff I wanted (bagels, cinnamon raisen bread) with the pain, diarhhea, gas and other "fun" stuff, the desire went away quickly. It got easier and for the most part I'm okay with it now, but every now and then I feel so isolated at company functions.
  7. nettiebeads
    I, unfortunately, did not get the weight loss manifestation of this disease. One thing I have found that is recommended is to go high protein in your diet. It will help with your energy levels. And the flours used in place of wheat flour are denser and therefore higher in calories. All of the advice given here is from experience. This is an autoimmune...
  8. nettiebeads
    Years ago I had an internist dr that told me I could eat wheat again. So if dr's don't get it, regular people won't either. If you were diabetic, they wouldn't force sugar down your throat. It's an autoimmune disorder that, if you have the marker, can be triggered by stress at any point in your life. The most important thing is to keep yourself healthy...
  9. nettiebeads
    Well, unfortunately that question cannot be answered by a definite number. There are many variables - how long were you being contaminated before going gluten-free? How long have you been gluten-free? Are you absolutely sure you're gluten-free? I had to go gluten-free 9 years ago and every now and then I still get cross contamination. Sucks. Anyhow...
  10. nettiebeads
    No question is silly especially when it comes to your health. I was upfront when I started dating my husband and he has been understanding from day one. He likes his beer and bread products and won't let me kiss him on the mouth until he's sure he won't contaminate me. We dated for two years and were married a short time ago. You have to be up front with...
  11. nettiebeads

    ARCHIVED Appetite

    nettiebeads replied to LRgirl's topic in Coping with Celiac Disease

    Have you tried grits?
  12. nettiebeads
    Definitely is a part of celiac. My husband accidently fed me wheat one night and the next morning I felt that old familiar rage inside. Fortunately for him I recognized it and was able to suppress it until I got to work. The longer your husband goes gluten-free, the more he'll be able to see what is celiac related.
  13. nettiebeads
  14. nettiebeads
    I've been brown bagging it for years - I rarely take things off of the store shelf. Do you have a microwave available? When I don't take a salad or leftovers, there are a few of the Campbell's Chunky soups that I eat that don't bother me. Of course it takes longer to shop because of the never ending label reading.
  15. nettiebeads
    Hi! I'm new to this forum, but not to celiac, unfortunately. I've been doing this on my own since my dr put me on gluten-free ten years ago to cope with chronic diahrrea I'd experience for 6 weeks. Yep it worked. I haven't had the formal diagnosis, but anytime I get gluten, I get the diahrrea back. Plus lots of other fun physical stuff that I'm sure...
  16. nettiebeads
    Hi! I'm new to this forum too. I've been a celiac for 10 years now and hardly even think about it. Although what does drive me crazy is eating out. I had to go to a conference where we were given a voucher to eat at the cafeteria (FREE FOOD!) but when I got there the only thing available was the salad bar. Oh goody. I could smell broasted chicken (breaded...
  17. nettiebeads
  18. nettiebeads
    I'm new to this forum, but not to celiac. Yes, you can develop celiac later in life. I'm 46, developed celiac at 36 or so. Just lately it has really really started to bug me, constantly monitoring food, not eating something (just in case) and the ENDLESS reading of food labels. I've done lots of internet reading on this, and stress seems to be the trigger...
  19. nettiebeads
    Things will get better. I promise. I can tell when I've been "poisoned" or gotten some cross-contamination. I feel like there's an inner rage that I find hard to control. The longer you go gluten-free, the better you will feel. I haven't had any tests, but I got lucky. I had been sick for six weeks and my gp took me off of all wheat. It was hard, but...
  20. nettiebeads

    ARCHIVED Appetite

    nettiebeads replied to LRgirl's topic in Coping with Celiac Disease

    I haven't had problems with oatmeal, or maybe I have and have attributed it to something else. My last contamination was two weeks ago and I am dead tired.
  21. nettiebeads
    I can't believe it's taken me so long to enter a chat room for celiacs. I crave PB myself at times. But it's on a carmel rice cake with apricot/pineapple preserves. Very calorie dense.
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