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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    Are you using "post" celiac utensils as opposed to pre-celiac utensils? I threw out all my wooden spoons, pitted plastics and anything that I was afraid couldn't be scoured completely clean of gluten.
  2. nettiebeads
    My daughter's m-i-l has alopecia. She doesn't have celiac, but HER mother has been diagnosed with celiac, but claims to "have a mild form". But since autoimmune diseases can be hereditary, I would think that there's a link.
  3. nettiebeads
    Every now and then I take a small swig of M.O.M. (cherry flavor. Mint to me is awful), but only if I've been having problems for three days or more. My regular routine: Two fiber pills in a.m. and 2 in p.m. Raisins in my cereal. I find my two biggest no-no's are cheese and rice. Even rice products stop things for me. Lots of water. Lots of dried fruit...
  4. nettiebeads
    Not all of Zatarain flavors are safe. You do have to read the labels. Unfortunately I used up my last box so I couldn't tell you what I was using - I think it was Jambalya. I wouldn't worry about the soy - the women in Japan have a much lower incidence of breast cancer and their diet was based on soy - until it became westernized with our much greater...
  5. nettiebeads
    I doubt if the muscle patch would have something bad for you in it. Is there an 800 number on the box you could call and ask? You are lucky in that your dr. dx'd without all of the testing other than diet and he knew about celiac. Must have gone to the same university as my dr. did. I was dx'd via diet alone 10 yrs ago. One thing I could highly recommend...
  6. nettiebeads
    Anything with the word MALT is bad for us, (unless the malt is from a safe source which is rare. It would be stated on the label ie: rice malt). If the word MALT is byitself, it is made from barley.
  7. nettiebeads
    I swear by L-glutamine. It really does work! I was accidentaly cross-contaminated awhile back but had been religious about taking the supplement and my recovery time was greatly reduced along with the symptoms. (even the irritability!) I would highly recommend taking it as a matter of course even after healing in case of accidental glutening or cross-contamination...
  8. nettiebeads
    How was the beef flavored? Did they use teriyaki? Soy sauce anywhere? Even if the restaraunt itself didn't use soy sauce somewhere, beef is now processed with flavor enhancers and such to make it more tender and flavorfull. And who know WHAT is in that solution. (saw it on Food channel or Discovery. Can't remember which). And yes, the reactions to gluten...
  9. nettiebeads
    BUT FRUITY PEBBLES ARE OKAY >... right... I can't remember, but as always read all labels. I'm pretty darn sure they are, but I buy the malt-o-meal dyna-bites - much cheaper. But I do buy the coca pebbles when I want to take a dessert to a gathering. I use them to make Rice Krispy treats.
  10. nettiebeads
    I think the possibilities of cross-contamination with such a product would be too great to risk it. I stay clear of all toiletries containing gluten in any form.
  11. nettiebeads
    I don't think celiac should slow the healing - the thing is if she's eating appropriately and not triggering any responses to gluten, then her body will be absorbing all the nutrients like it should. But it will still seem like forever to her. Annette
  12. nettiebeads
    Ok, let me tell you my story - it's a little long but I hope to save people by relating my mistakes - I USED to eat cereals with malt - no ill effects I thought at the time. Then after years of this I noticed numbing in my face and when I would get out of bed it felt like I was walking on stumps. Peripheral neurapathy - scary as I'm not even 50 yet. And...
  13. nettiebeads
    I agree with Carla. But lots of times those with dairy problems can eat dairy later after being gluten free for awhile. You might want to go gluten-free for about three weeks and then see how you respond to cheese. But I would start out with a white cheese - it took me months before yellow cheese stopped bothering me.
  14. nettiebeads
    I used to do that at the beginning when I first found out I had celiac. It gets better as you go along. Just hang in there.
  15. nettiebeads
    I go there frequently myself. Lots of recipes can be made gluten-free with a little ingenuity.
  16. nettiebeads
    You're very welcome and have fun! Annette
  17. nettiebeads
    Ooh, Ouchie wow wow! Thanks everyone; I'll talk to my boss; she's pretty much convinced that it must be celiac/DH since the drs in his area are without a clue as to what is causing his problems. (Now there's a big surprise!). Funny, but not. Annette
  18. nettiebeads
    Breakfast- I usually have cereal - malt-o-meal fruity crispy whatever. It's gluten-free (for now at least. I always check bags to make the ingredients haven't changed). Coca pebbles is safe too. Grits are okay. There's eggs and fruit. Some people have reported great success with the specific carbohydrate diet. You might do a search on that in this forum...
  19. nettiebeads
    One of my favorites too! Annette
  20. nettiebeads
    thanks. The next time my boss's d-i-l is in the office, I'll pull up some pics of DH and see if they look similar. Annette
  21. nettiebeads
    My boss's son has been having health problems for quite awhile, and specifically a rash with blisters that hurt that have not responded well to any treatment. I'm suspecting DH, and my boss is starting to think that too. I don't have DH but do have celiac, so I'm wondering if this could be DH? Any opinions? TIA Annette
  22. nettiebeads
    OOH, sounds like celiac disease to me. Why don't you go gluten-free the day of the tests? As soon as you get home even. There are lots of people on this board who haven't had the "official dx" but know that their body is better without the gluten. And by trying the gluten-free diet for three weeks, then reintroducing gluten to your system and monitoring...
  23. nettiebeads
    I've had floaters since I was a kid and way before celiac. Nothing has ever made mine reduce in number. But I've always been severely myopic. Don't know if that has anything to do with it. Annette
  24. nettiebeads
    I caused my own neuropathies by ignoring that little four letter word "malt" in cereal. Took me a long time to develop it, but after eliminating that from my diet it seemed that my muscles would "jump" like the nerves were coming back alive. As for the deep red tongue and pink lips - probably iron in your system that your body couldn't absorb before! Pink...
  25. nettiebeads
    Sure.
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