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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    Another option is the diet challenge. That's where you do go gluten-free for a period of time, see how your body reacts to no gluten, then introduce gluten again and monitor your symptoms. It is a valid dx tool, non invasive (read cheap) and as accurate as anything out there. That's how I was dx'd and no other dr's have questioned it since. Keep us posted...
  2. nettiebeads
    Uh, that would be a BIG clue for celiac. The malabsorption problems of celiac start with damaged villi. And why are the villi damaged? Because the body is attacking the gluten and misses and attacks the villi. And the yellow floating stools are another big giveaway for celiac. You need the celiac blood panel done (do tests in the search and you will find...
  3. nettiebeads
    it's gluten-free, unless processed in a facility that also process wheat. And milled means it's had the outer layer removed. Does that help? Annette
  4. nettiebeads
    Awesome! I agree with you re: testing. I never had the blood test; dx'd by diet challenge alone. My current gp thinks that there are too many false negatives from the current standard tests - they are not refined or sensitive enough to ensure reliability.
  5. nettiebeads
    I googled and found this site. The person used cornstarch in place of flour. Open Original Shared Link There wouldn't be any flour floating around, but if your son were to use gloves or something and was very aware of the cross contamination (wash hands immediately after handling stuff so he doesn't accidentally ingest anything) he should be okay. I've...
  6. nettiebeads
    How about white glue? 1 part water to 2 parts glue. Have you checked into wall paper paste?
  7. nettiebeads
    Boy do I understand! I've been on Zoloft for 5 yrs now. My gp was going to try and wean me this month. I tried half a tab every other night for two weeks. At first I was doing great, but that old black nothingness is back so I'm back to full strength Will try again in two weeks or so, but maybe at an even slower pace. But at least I still have something...
  8. nettiebeads
    I use the Rexall brand from WalMart with no problems. I feel better on them than off. Annette
  9. nettiebeads
    I sincerely doubt it was the Valtrex. I had a "cast iron" stomach my whole life, not counting food allergies (eggs, poultry mostly) until I developed the worst sinus infection in my whole life at age 36 or 37. At the time my life was full of stressors also. I took a prescribed course of Keflex, developed the good ole D common to celiac, but at that time...
  10. nettiebeads
    I emailed a hug to her, too. I'm an ex-Navy wife so I understand those long separations. At least I didn't have celiac at the time I was married to him. Don't know if I could handle both. Whoo, I'm still reeling over that parking thread, and none of it was directed at me! My gosh! I'm glad the rest of us are sensitive and caring... Don't want to go...
  11. nettiebeads
    Oh yeah, did I ever have the emotional roller coaster rides when glutened. Even a little bit of cross-contamination can put me in a depressed tail spin. (Almost as bad as being a teenaged girl again!) I don't miss them. I think it's more of the psychological aspects of being glutened that keep me on the straight and narrow than the physical. I have learned...
  12. nettiebeads
    It's quite a chunk of money and you already know his gene type. Think positive - maybe with him off gluten he'll hit a growth spurt and you'll need the money for new clothes! Annette
  13. nettiebeads
    I agree with the others. The celiac tests are notorious for false negatives in adults and even more so in children. I'm sure your son doesn't consider himself a child, but physically speaking his age could have skewed the tests. Also, maybe he hadn't been consuming as much gluten as needed for the test's accuracy...myriad of scenarios as to why the negs...
  14. nettiebeads
    You seem to have the classic diarrhea of celiac. That's what sent me to the dr--The pale, frothy, floating and oh so very stinky D!. Continue on with the diet and see if you don't notice improvements in other areas such as your energy levels and what is referred to as brain fog. After three months you might try adding back dairy. When the villi are damaged...
  15. nettiebeads
    Loved it!! (My dd is an exMc emp) And I'm not surprised by your KFC. Some people are so so SO IGNORANT! Or as we say here - ignernt.
  16. nettiebeads
    How long were you sick? You have just started the learning curve with celiac. It's a very individual disease, affecting us generally in the same way, but each of us have our degrees of sensitivities and related problems. I would insist on a gluten-free cake - - or compromise with your own special cake; I'd be worried about cross-contamination and getting...
  17. nettiebeads
    My current gp thinks that the tests aren't sensitive or reliable enough to put complete faith in them. There are way too many false negatives. Too many variables go into play.. How long were you sick? How much gluten is in your diet to begin with? Were you trying to be gluten-free before the tests? The fact that one part did come up pos would make one...
  18. nettiebeads
    Sounds like Celiac could be the culprit. There are lots of false negatives for celiac tests, Blood or Endo. My gp thinks that probably the tests themselves are faulty- not sensitive or specific enough for realiable accuracy. Remember, the medical community doesn't know everything, and celiac is one of the least understood diseases. You should read the...
  19. nettiebeads
    I understand your passion. I'm an ex-band mom and I remember the band teachers always on the go. Couldn't you teach english and be an unpaid consultant to the band and choir? Or tutor? or give private lessons? That way you're protecting your health and using your degree. Just a thought. I feel better when I eat a high protein diet with lots of veggies...
  20. nettiebeads
    Believe me margaritas are okay!!!!! Unless you're allergic to corn products. But Grand marnier and tequila are gluten-free!!! Not everything has been taken away from us!
  21. nettiebeads
    YOU ARE KIDDING!!!! OMG!
  22. nettiebeads
    It's the cross-contamination that's the problem. I know you wouldn't ingest the cologne but in applying it, or later if your hand touches the area and then you eat something with you touch w/o thoroughly washing your hands, you could ingest the pesky little protein. You can't absorb gluten through your skin. But some with wheat allergies do have problems...
  23. nettiebeads
    I agree with raven. I was dx'd by diet challenge alone. Hey, it's your body and if it functions better on a gluten-free diet, then great. So what if you get looks from family and others. It's not their body and they don't have to live with the pain that you're going through. I just got over a bout of trapped gas and boy, can I relate. My major symptom...
  24. nettiebeads
    When cross contaminated I used to have severe D within 20 to 24 hours (I was never a "fast reacter") but now it's constipation that lasts for two to three weeks but everything else stayed the same: Chronic, dibilitating fatigue brain fog general flu-like achiness depression
  25. nettiebeads
    Some posters have had immediate relief, others a slow lessening of symptoms. As an autoimmune disorder, it seems that celiac has a very high number of variables for each person with the disease. The fact that you found relief right away from the gluten-free diet as opposed to the ibs safe diet sure does make one suspicious of celiac disease for you. Remember...
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