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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    Sounds like mom's intuition is the best guide for you. Testing on children, especially that young, is very often inconclusive. So what you are doing is the diet challenge and that is a viable diagnostic tool. (it was how I was dx'd 9 years ago. Never had any of the "official" tests) Go with how your daughter is doing and her reactions to gluten and the...
  2. nettiebeads
    Oh yeah, back pain! It's below shoulder blade (kind below the bra line area) and concentrated on the right side, mostly. I've had my attacks cause pain in my back starting on the right and then the left hurt also. Felt like I had been run over by a truck. BIG truck. I wouldn't wish the pain of an attack on my worst enemy (if I had one). My dr thinks...
  3. nettiebeads
    Anemia can be a symptom of celiac, but only one of 200 or so. I had a hard time donating blood because my count was too low until I finally cleared out the last of the gluten in my diet. I gave blood not too long ago - my hemocrit was 13! Highest ever! And I've always taken supplements with high iron, but it took me a long time even after going completely...
  4. nettiebeads
    Part of it is genetic - look at your parents and your grandmas. Where did they gain the weight? And after childbirth, I swear I'll never have a flat tummy again. And I was cleaning out my mother's apt and found pics of my in my h.s. days. Was I really that thin? Focus first on getting the gluten out and after your intestines have healed sufficiently...
  5. nettiebeads
    My dr. thinks that the testing isn't as sensitive and reliable as they probably will be in the future. I never did have any testing done, other than the diet challenge, which is a viable dx tool. And your body is telling you you have severe problems with gluten, so cut it out. It's up to you to listen and take care of your body. I know the dr's get paid...
  6. nettiebeads
    Amsterdam was my 3rd ex's dream vacation. I'd like to see it, but not the cafe's you were at.
  7. nettiebeads
    No, the diary you ingest isn't damaging your intestines. It's your body's reaction to gluten that does it. I was in the normal catagory of celiac (I think I just made that up) anyhow, after your villi heal, they will start to produce the lactic acid needed to digest diary. But I think it's very individualistic as to how much healing and how long it takes...
  8. nettiebeads
    Hmm I can't remember exactly, but I think it's too early for the "June gloom" You're right on the ocean and it's the Alaskan current right off shore keeping springtime cool in the morning, but you can expect 70's at least every afternoon. But too cold for swimming in the ocean. But if you head inland to the mtns you can expect 80's. If you can, make a...
  9. nettiebeads
    But please remember false negatives are common. Just in case it comes back neg. If it comes back pos, well, then you have no more questions. But like Nini stated - it's how your body feels being gluten-free that's the best indicator of celiac or not.
  10. nettiebeads
    Sounds like they caught it at the early early stages of damage. I would rule celiac in. But I'm not a professional dr, just been learning about this disease for the past 9 years.
  11. nettiebeads
    I'll definitely have to check that out. I went to the link and browsed a little. Looks promising! Thanks! Annette
  12. nettiebeads
    Could very well be celiac. I was dx'd 9 yrs ago just by diet challenge - stopped eating gluten and then the D stopped. No bloodwork and no biopsy. The fact that you have cut out gluten in the past and felt better leads to two things - positive diet challenge (it IS a viable diagnostic tool) and it may skew the results of any testing. Oh, and the diary...
  13. nettiebeads
    I can see why you're confused, but the biopsy isn't the gold standard that it was thought to be. It sounds very much like you do have celiac, but since you've been gluten-free for two weeks, you'd have to go back on gluten for 6 weeks or more to have accurate test results. Your choice. But if the D has cleared up along with what is probably DH, then I...
  14. nettiebeads
    Ahh! Bully's Mex North - La Jolla brings back so many memories! Whenever I go out I try to schedule it during non-peak hours so then the staff has a little more breathing room to help. And let the staff know that you have a condition and need their help. Most of the time people are willing to help. Do you have the Triumph dining cards? Those have been...
  15. nettiebeads
    Hmm, another link in my chain of "coincidences" that make me think my mother is where I got my celiac. She has spinal stenosis and a very pronounced dowagers hump - she used to be 5'10" but now has to look up to me - she's practically bent over in half and is in a wheelchair. How she's lived to 84 I don't know - except for being a plain ole' stubborn Swede...
  16. nettiebeads
    Don't you just love it when the drs. backpedal? The real question is - How are you feeling on the gluten-free diet? Is your stomach better? Head, fatigue issues, outlook on life in general better? I was dx's w/o biopsy, but I know I have celiac from all the symptoms I get when I ingest gluten. Only you have direct access to what your body is telling...
  17. nettiebeads
    Mine are thin when I eat something that aggravates my diverticulosis. It also causes pains in the transferse part of my colon and I don't feel much relief after going. I have to stay away from popcorn and small seeds like blackberries and strawberries. Don't know if that helps. Annette
  18. nettiebeads
    Hmm, that one has me wondering.
  19. nettiebeads
    Ooh, my kind of dr. If your body feels better withouth gluten, then you have ipso facto celiac. My dr. dx'd me w/o bloodwork or biopsy. It's called the diet challenge and is a very viable diagnostic tool. I'm glad you have a dr. that is taking into consideration everything you've been through and is paying attention to what your body is telling you. ...
  20. nettiebeads
    Whoa! I sure hope you have really competenct drs. The only thing I can add is have you ever done the totally gluten free diet? Some sufferers here have reported success on a carb specific diet. I don't know the details of that one, but if you were to type diet in the search, you might find it. When I would get glutened, I found the best source of comfort...
  21. nettiebeads
    I didn't lose at first, and didn't really gain until I went through a nasty divorce. Then the pounds piled on and stayed. It's been 5 years, but I finally got the last of the gluten out of my system and my energy has finally gotten back to a more normal range. It's been slow progress, but since I'm feeling better and doing more things, and finally able...
  22. nettiebeads
    I used to work at a grocery store. For a chain to make a 1% profit, all the stores in that chain have to make a 3% profit because of the high overhead and it's a labor intensive industry. You would think that with slim profit margins, stores would love to expand their gluten-free section, because that is a niche that has been growing at 19% or more each...
  23. nettiebeads
    Looks safe. Does the label contain the universal disclaimer "processed in a facility that also processes wheat products?"
  24. nettiebeads
    Don't feel guilty! McDonald's LIED, misled and refused to tell the truth. NO ONE knew the real truth except them!! And now they tell us that they are interested in their customer's health and that's why they have listed wheat and milk used in their products. NO - they were interested in their bottom line and that's the real truth. So, vent away here...
  25. nettiebeads
    Where would be the wheat in margarine? I use stick to keep mine separate from my hubby's tub o margarine. Mayo is egg based and I've never had a problem.
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