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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    Too early in the morning as I read this...my mind came up with an interesting mental pic....More Caffeine, please
  2. nettiebeads
    Had to go to a seminar where lunch was served, banquet style. In other words, the choices were chicken alfredo on penne. period. I was a substitute at the last minute so I didn't have time to explain before I got there what I could have. I asked if I could just have a piece of chicken with steamed veggies. A server brought me a plate of the regular choice...
  3. nettiebeads
    thanks. I bookmarked it; plan on returning to it again and again. annette
  4. nettiebeads
    RELAX!!!! (blame your anxieties on gluten according to another thread ) You're relatively young, I don't think you were sick that long either, (if I remember right) and you're feeling good. Focus on that. And we all have to die sometime anyhow. I plan on living long enough to be a problem to my child in my old age (hey, it's a goal), celiac or not. And...
  5. nettiebeads
    I don't really know myself, but other posters here have said that they have had problems with the stuff you mentioned. To me it would be playing with fire... Why take the chance? You don't need it for optimum health, and in fact it could be damaging you. When in doubt, do without. Annette
  6. nettiebeads
    You are new to this. After awhile your tastebuds "forget" what the regular wheat based products are like and so you won't be missing them like you are now. In that way it does becomes easier. I look at the cost of stuff as I'm eating this in lieu of an expensive prescription to keep my health. I mean, if I had to pay $25/month for meds that I had to have...
  7. nettiebeads
    My immune system was funky to begin with. Certain foods and things like pollen and dust . But lately it's gotten worse. I mean more things are being added. Like now I can't have even a little red wine or champagne when before I hardly had any reactions. But so far it's not everyday common type foods; my food allergies are items that are easy to avoid...
  8. nettiebeads
    Oh yeah! I have decided to become paranoid about gluten cross contamination. It's only my health, after all. I don't get the violently ill reactions as other do, but I can sure do without the brain fog, chronic fatigue and mood tailspins that even the littlist molecule seems to cause. No kissing hubby if he's "not safe"... I've gotten reactions from him...
  9. nettiebeads
    Are you now gluten free? I would recommend selinium supplement - I work with numbers all day and sometimes my brain gets "tired"; selenium seems to help. Also try L-glutamine. It's an amino acid that helps promote intestinal health which in turn helps absorption. Have you checked your toiletries and meds for hidden gluten? Maybe you haven't gotten it...
  10. nettiebeads
    Slightly abnormal villi... Didn't they want to know WHY???? Sheesh. Sounds like celiac to me. I suppose there are other diseases that could cause that besides celiac, but I'm putting that at the top of my list of suspect reasons. After all is said and done, try the gluten-free diet for 2 to three weeks and see how you feel. And stay away from barley...
  11. nettiebeads
    Same here. Annette
  12. nettiebeads
    Deb is probably right. The gluten-free diet is just a regular diet (plenty of fruits, vegetables, meat, diary as tolerated) but without wheat, oat, barley or rye products. After his visits w/ the drs, why not have him try the diet anyhow for two weeks? It can't do any harm, plenty of us live on it just fine. Keep us posted. Annette
  13. nettiebeads
    Healing is very individual for everyone, just like celiac affects us all about the same, but still different. You did not say how long you had symptoms before dx; how severe and such. The tummy issues are usually the first to be resolved after going gluten-free. The others take longer. Some people don't notice much change until after 6 months or more...
  14. nettiebeads
    Mollie is right. What she's referring to are the Triumph dining cards. They are well worth the money, come super laminated and I keep my set in my purse so I have them with me at all times. And she's right about beef. I was out with family and I thought beef tips would be safe. Had my card and to make a long story short, the tips came premarinated so...
  15. nettiebeads
    I have to agree with Vydorscope on this. My health is very important to me and I will not risk it knowingly in any way. I didn't have any symptoms while regularly ingesting cereals with malt. But was tired, brain fogged and developed peripheral neurapathies. I regularly thank God for this site since it showed me the errors of my ways and diet. The last...
  16. nettiebeads
    I can't speak for everyone, but I do know that I can't kiss my hubby after he's eaten bread or had beer. I can get cross-contaminated from that, and yes I have my own dedicated toaster. Why take chances? The severity of my reactions is in direct proportion to the amount of gluten ingested. I don't get so much intestinal issues as I used to, but the crushing...
  17. nettiebeads
    From what I've read, the biopsy isn't the gold standard. And false negatives abound anyhow. I agree with your decision to try the gluten-free diet for three months. I was dx'd by diet alone 9 years ago and that was good enough for my dr then and my current dr has no problems with the fact that I've never been scoped, tested or anything. It's your body...
  18. nettiebeads
    Welcome to the forum and feel free to vent anytime. This is a disease that most people just don't "get" and even drs don't understand it, so how can regular lay people? It's hard to believe that a disease that can be so debilitating can be treated so effectively by diet alone. Everyone is so used to taking meds for this or that. If you had diabetes, would...
  19. nettiebeads
    There are many variable factors in each case of celiac. You didn't state how long you had had the symptoms. Everybody heals at different rates. I'm glad you're not getting worse at least. You need to not only look out for wheat, oats, rye and barley and malt in foods, you also have to look for the offending glutens in other products - meds and toiletries...
  20. nettiebeads
    Okay, I think you win gfp. But I do understand why you did that. That brain fog is really horrible and insidious. I'm coming off of a glutening myself. When glutened, I avoid people to the point that I don't even come here! And this is a safe zone! Annette
  21. nettiebeads
    It is genetic so there would be pretty good odds that he may have at least a gluten sensitivity or intolerance. Or have him go gluten-free for 3 weeks and see if there's improvement. Or is he one of those that won't do it w/o a dr's say so? Annette
  22. nettiebeads
    I loved it. I'm still laughing after reading all of the rest of your post and responses. I never get over how uneducated people can be. But in the bakery? What do they think makes the bread rise the way it does? Bread fairies???? I was at a conference once and the meal served was chicken alfredo over penne. I said I can't have that, needed something...
  23. nettiebeads
    Thanks for the feed back. Sometimes I am rather negative at times. Sunday I was just exhausted, had been on the road for 6+ hours to go to my step-grandma's funeral the day before and I just didn't take the cartoon right. I should remember that I wished celiac and gluten intolerance was more mainstream, and how much more mainstream can you get than to...
  24. nettiebeads
    In Sunday's StL Post Dispatch the comics section carries a comic strip titled "Rhymes with Orange" by Hilary B. Price. I've never found the comic very funny to begin with, but Sunday's 3/26/06 strip was offensive to me. (My DH found it funny) It was titled "Today's Barnyard Blues" and shows a cat stating "I'm lactose intolerant", a horse saying "I'm gluten...
  25. nettiebeads
    It sounds like he's mending already. Glad to hear that. I understand your concern though; I have to sit and list all of my symptoms to see if it's a cross contamination or maybe a bug at times.
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