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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    No, no tunnel vision, but when I get glutened it is almost impossible for me to do my counted cross stitch. My eyes don't seem to focus as well Annette
  2. nettiebeads
    I agree with Carriefaith - need empirical evidence, or published articles in the New England Journal of Medicine or JAMA. But I'm from Missouri so you have to show me. My brother and his wife tried to get me on Reliv with claims of people who were "cured" by the nutritional supplement. I figured it out by looking at the ingredients - one was L-glutamine...
  3. nettiebeads
    You're right, it does contain misinformation and outdated info. But I'm happy to see more awareness about this disease. Annette
  4. nettiebeads
    I can relate. Even after 9 years of this, I still envy people with grocery carts crammed with stuff, able to just take anything off of the shelf and not have to read the labels. Sometimes I wish I could tell them how lucky they have it. And as for being "normal" at functions - I never considered myself normal, even before celiac disease. Just one more...
  5. nettiebeads
    I feel that way a lot, too. But I try to think of the money I'm saving - eating out 5 meals a week can be pretty expensive.
  6. nettiebeads
    Campbell's select tomato with italian stuff and select Butternut squash. Progresso has clam chowder and Chicken cheese enchilada style (I know, it sure sounds like it would be off limits to us, but they are following the labeling law and I've read the ingredients twice.) Campbells Chunky has Grilled Siroin steak and Honey Roasted ham. Health choice has...
  7. nettiebeads
    Well, beer is definitely out, and also beer substitutes like coolers - they're made from malt and that comes from barley unless otherwise stated. I'm having a problem with what you said your dr said about most regular cereals probably being ok. Most regular cereals AREN'T ok. Most are made with malt for sweetening (barley again) and/or wheat starch. You...
  8. nettiebeads
    Uh, you lost? Are you free from her legally? Then consider it a win. I hope you don't have to pay alimony or have to deal with her in any way after all this. But you've gained a lot of support here, if that's any consolation. Keep us posted! Have you made a dr's appt yet? Have you written down your medical history and problems and everything in detail...
  9. nettiebeads
    To eliminate a quote in your reply, just start at the top of the quote, hold down the left button on your mouse and drag to highlight all that you don't want, or the whole thing to eliminate it. Then hit delete. It's that easy. I've had a problem with salt since my one and only pregnancy 22 yrs ago. (How time flies!) I retain water like crazy, plus...
  10. nettiebeads
    What tests did the dr order for the bloodwork. As the blood has already been drawn, why not start him on the gluten-free diet for a couple of weeks and see how he feels? There is a good probability that he has celiac disease, as you are a first relative and have it also. Not to mention the symptoms fit. Annette
  11. nettiebeads
    It shouldn't burn if you have the pot on low all day. My dh (ex-chef) recommends a little more liquid in the am when you start out, and it should be fine.
  12. nettiebeads
    Hi Ellen and welcome. The first thing is to go totally gluten free. You have done that with your diet, but you also need to check meds, cosmetics and toiletries. Give the diet time. After your intestines start healing, then we can deal with the weight. I've been looking for a diet partner as I am 46 and also overweight. Last time on the scale I found...
  13. nettiebeads
    Good work Judy! It is great to know that we are being listened to! Annette
  14. nettiebeads
    Have you tried the totally gluten free diet? The fact that you felt some relief on cream of rice makes me suspicious of celiac. That and the (probably mis-)diagnosis of IBS. Since your bloodwork was probably already skewed by the mostly gluten-free diet, you might as well try it. And also, the diet challenge is a valid diagnostic tool. That's how I was...
  15. nettiebeads
    I have problems with low iron and always cold. I've been told that the iron that is easiest for your body to use is ferrous fumerate. That came from a pharmacist. And your hair falling out after gluten - gluten causes major stress for your body and the hair falling out is a symptom of the stress, and the fact that your villi are damaged by gluten and so...
  16. nettiebeads
    I was very fortunate in that I also only had to suffer for about 6 weeks with D before I went to my gp. He had me cut out gluten, two weeks later on my follow-up, I didn't have anymore D; he pronounced me Celiac, go and eat gluten no more. End of story with him - 9 years ago. I've learned more about Celiac from this board than I had in the previous 9 years...
  17. nettiebeads
    So sorry to hear that. But you're among friends here. The laws and rulings in this country tend to favor the woman. Did you have kids involved? I'm glad you're keeping yourself hydrated. A couple of other things you might try, carefully of course, is ginger ale. If you can't stand the bubbles, then let it go flat. Or Chamomile tea. Can you tolerate...
  18. nettiebeads
    It isn't lactose as from milk. It's a derivative of corn (usually) and used as an inhibiter of pathogins. Sounds nasty but safe.
  19. nettiebeads
    Thank you very much for the time and effort you put in to your research. You definitely get a gold star for today! Annette
  20. nettiebeads
    I agree - a combination would probably be very helpful. However, I would almost bet that the article was edited for space because it just said depression. It didn't state if it was the blues, hard-core intractable depression, also known as dythymia (what I have) or somewhere inbetween. I wouldn't doubt that excersize and the gluten-free diet might alleviate...
  21. nettiebeads
    Wonderful news! So glad to hear that you're doing so much better. For me, my depression started when I was 9. I'm sure Celiac just aggrevated the issue. I can't wait to start trying to cut back my Zoloft in April or May. And didn't I read on another of your posts that schizophrenia and celiac might be connected? My mother's brother had schizophrenia...
  22. nettiebeads
    Any of the beer substitutes made with malt. Zima, twisters, the bicardi ones; seagrams and B&J's made with malt. You may not have an immediate result, but as malt is from barley and the product isn't distilled, you will get gluten from it. But on the bright side, I found Frutezia at Wal-Mart in the wine section. It's tasty, inexpensive, and a very...
  23. nettiebeads
    What a wonderful company! Even when things were at my toughest, I would always believe that there was a reason for everything. And sort of totally off of the subject, what part of Sweden are you from? All I know about my family is that some came from around Lake Siljens. Some Grandpa or Uncle was originally named Hanson, Hannson, or whatever, didn't like...
  24. nettiebeads
    LOL! LOVE IT!!!!
  25. nettiebeads
    You may not have what is now proven to be the celiac genes. Or the sensitivity genes. There may be other genes involved in this disease that haven't been recognized or marked. And don't ever be sorry for being confused. Even the learned medical community doesn't agree!!!! How are we as lay people supposed to know? You're listening to your body and...
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