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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    Hi Candy! and welcome to the board! And congratulations on taking the initiative to take care of yourself. Celiac, treated properly, is no where near a death sentence. And as far as other things considered, you don't have to take expensive meds for the rest of your life. You have done what's called a diet challenge which is a very valid diagnostic tool...
  2. nettiebeads
    Ah, you're the first one that got it!!!! My bead corner in my workroom is getting real crowded. I may have to cut back on my sewing material ! Can't live without my beading or my sewing. I actually have three comissioned pieces to work on this coming month. Three tumbled nuggets to be wire-wrapped, which I've never done, and the necklaces to put them...
  3. nettiebeads
    I know that that is SO frustrating. Somebody must have managed to c-c you somehow when your back was turned. Anyhow, hope you are feeling much better real soon!
  4. nettiebeads
    Don't worry about the weird feelings. It takes quite awhile for all of the damage to be healed. Have you laid off of the dairy? If not, you might try that for awhile. YOu didn't state how long you had been sick before going gluten-free. The chances of cancer or other awful things rises the longer your body is reacting to gluten, and it takes a long time...
  5. nettiebeads
    It was said that you were early stage celiac. It means that you probably hadn't had enough gluten to trigger the immune responses to show up, but the dr. doing the biopsy found proof of villi damage caused by celiac. You have it. How are you feeling now? Annette
  6. nettiebeads
    Hi janep and welcome to the board! It's a shame that the dr's didn't want to know why you were having problems. A good thing about celiac is that it doesn't need expensive meds to control it. Just eating more natural foods (ie eliminating overprocessed junk) that are high in protein content should help quite a bit. Even when I'm 100% gluten-free, if I...
  7. nettiebeads
    Thanks, guys. My SIL claims that the drs ignore Reliv because they are not nutritionists. That was her arguement when I said I'd try Reliv when I've seen the studies written up in the JAMA or New England Journal of Medical Science. I looked over the ingredient list on another of their products and it contained brewer's yeast. And of course, it doesn't...
  8. nettiebeads
    I had two holiday dinners (both families live in the same town) Eve was at MIL's house because it was also her b'day. The turkey was cooked sans stuffing, the gravy was gluten-free, everything else was veggies w/o flour or additives. Yummie!!! And of course, I couldn't eat the desserts others brought, but I had made a cherry cheesecake for my MIL's b'day...
  9. nettiebeads
    YAAAAYYY!!! I bet you have a very good argument for not going to the hospital. Promise the dr. that if your weight ever goes down just by even one pound, you'll let him know, and keep in contact with his office every day about your weight, maybe you won't have to be admitted. Besides, who ever got healthy on hospital food?
  10. nettiebeads
    You are 26 and allowed to make decisions for yourself, right? Can't you go 100% gluten-free and just let them know it's a personal decision for your own health? You could use the enterolab gene testing ($150 US, I believe) to help with your arguement. And of course, you don't need to be on gluten to do it. All other tests do need you to eat gluten. But...
  11. nettiebeads
    I really don't understand why drs insist on all of the testing. I'm not too up on bloodwork counts, but from what I've read on other posts, your numbers are elevated indicating celiac. That, plus your diet is another diagnostic tool that is indicating celiac. And betcha that if he puts you back on gluten and you follow his orders, your symptoms come back...
  12. nettiebeads
    Hi and Welcome!! Since you had the positive blood work and have reacted positively to the diet, I wouldn't bother with the biopsy. And now it would probably give you a false negative. The only thing it could do is to tell you how healthy your intestines are. I was dx'd 9 yrs ago just by the diet. If you feel good on the diet and can tell the difference...
  13. nettiebeads
    Age, puberty, and gluten are probably all working together. Most of us with celiac disease notice extreme mood swings after ingesting gluten. And being at the time of your cycle probably doesn't help any either. I used to have horrible cramps when I was younger. Much younger. That was before the days of advil. If you take advil (ibuprofen) just as the...
  14. nettiebeads
    I've had migrains nearly all of my life. The first time I noticed them when I was in grade school and connected them to IGA hotdogs (I think it was number 4 red dye that was the culprit). Then they subsided some, came back when I was in my mid-20's. Don't remember if they were hormone related or not (too long ago ) Anyhow, I've isolated most of my triggers...
  15. nettiebeads
    How WONDERFUL!!! Isn't it marvalous to see him grow and learn and develop? Uh, how's his hearing? That along with the gluten probably gave him a double whammy. Merry Christmas!!!
  16. nettiebeads
    Great article! I'm sure that the 18% and 9% increase in gluten-free sales will have other producers sit up and take notice. And the author did do a credible job in differentiating between gluten intolerence and celiac disease in the limited space available.
  17. nettiebeads
    Thank goodness I didn't get those side effects when I had my ulcer and was on Prilosec. See, everything good for you is bad in the long run, I guess.
  18. nettiebeads
    Uh, she hasn't been doing well on the gluten diet, so why prolong it? If she's better on the gluten-free diet, then that is a positive reaction to the diet challenge, ergo celiac disease. That's how I was dx'd by my gp 9 yrs ago, and I'm not about to go gluten to get a more "official" dx. I would strongly recommend for her the gluten-free diet. And she...
  19. nettiebeads
    I"m glad you can start your road to a healthier life now. Be sure to do what the drs says and get those films of your back to her. You are going to have to keep up your health for your son - he'll only get bigger and even more active!! And I think of my mother who used to be 5'10" but now is so bent over from osteoporosis that she has to look up to me...
  20. nettiebeads
    Good ole' negative association. Of course, for us it isn't hard. I look at that over-processed food and see wheat (BAD for me) hydrogenated oil, trans fats, sugar, more sugar and fat. Yum!. NOT! After having to be so careful about what I eat and preparing all of my meals, I'm much more aware of what is in the commercial stuff. I'll stick with this gluten...
  21. nettiebeads
    [i think someone should start a workout gym, but put it on the top floor of a tall building, and shut off the elevators.
  22. nettiebeads
    I had that experience also! It is now my favorite restaraunt when we go to St. Louis. It makes one feel so mainstream!
  23. nettiebeads
    It seems like my doctors don't consider the body as a 'whole' at all that is affected by everything, at least in my somewhat uneducated opinion Anyway, please share! Thanks.
  24. nettiebeads
    How old are your girls? On the whole the treatment for celiac will become second nature and just a fact of life for you and the girls. The rewards of seeing your girls healthy and smiling will make it all worth the effort. There are a whole lot more good substitutes out there than when I started my gluten-free life. Ask any questions you have; there is...
  25. nettiebeads
    Hey, Lisa!! Remember when you first started the gluten-free diet? Now you're talking like a pro!!!!
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