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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    If your Sunday paper carries the Parade magazine insert - check it out! In an article titled "Can Food Change Your Genes?" there are several paragraphs under the title "Gluten sensitivity: the great masquerader". Good article and gives a good discription of the various diseases that celiac can mimic. It's by Dr. Mark Hyman. Maybe celiac disease is becoming...
  2. nettiebeads
    Blackflies are something I sure don't miss from my years in upstate New York. I would swell immediatly - much worse than mosquitos.
  3. nettiebeads
    Celiac causes malabsorption. Your body's various parts are not getting the nutrients needed to perform and stay healthy. The problem is as an autoimmune disorder it affects everyone individually. No two people have the exact same reaction to gluten and malabsorption; there are generalities though. Neurapathy is your nerve endings (myelin) not getting...
  4. nettiebeads
    You HAVE GOT TO STAY gluten-free!!! I didn't, even though I knew better. I was eating cereals with malt flavoring and drinking Smirnoff twists and other malt beverages. I wasn't having reactions like I normally did when I ingested wheat. But I developed neurapathy - felt like I was walking on stumps every morning. My face was numb and was having other...
  5. nettiebeads
    If she's your friend, then why wasn't she more concerned for your health? Some people would rather remain ignorant. It's easier for them. Try the triumph dining cards. It'll help. Annette
  6. nettiebeads
    I keep meaning to order these, but I haven't gotten around to it
  7. nettiebeads
    oh yeah. Been there many times - so tired of watching, worrying, cross-contaminated... I was at a seriously low point when I found this forum. It's been helpful, especially knowing that there are so many others in the same situation. Keep at it - you are not alone! Annette
  8. nettiebeads
    Annette, I am french-canadian of mixed origins, probably some first-nation heritage and some scottish, Irish and French mix as well. Also - my son had severe colic for his first 4 months, when I cut starches and dairy (breastfed him 12 months), it went away. Could he have celiac disease also?
  9. nettiebeads
    OOH! Chesterfield! I'll have to mapquest that one. We usually go to El Maguey's on Manchester. I don't know if what I've had there is gluten-free, but I haven't ever had a reaction. Thanks!
  10. nettiebeads
    I personally can't wait to try more of her recipes. My hubby (when we were dating) bought me one of her books nearly three years ago. I finally tried her pizza - it was great!!!!!! Now I have to rearrange my pantry so I can have containers with all of her mixes. I know it seems pricey, but it's SO worth it and having yummy bread substitutes is worth every...
  11. nettiebeads
    It so sounds like celiac is a definite possibility. What is your ethnic background? Anyone in your family complain of tummy problems? Celiac is the great pretender of all of the autoimmune diseases. With 200 symptoms it can be hard to dx, and then there are some who are asymptomatic who have celiac! If you have been regularly ingesting gluten products...
  12. nettiebeads
    I did not know that! Thanks for the info. My hubby (who can eat wherever he wants) balks at taking me to PF Changs or Outback. (too pricey) Maybe I can get him to try this place. But our all time favorite eatery is Hannigans on the Landing. I've used my Triumph card there and haven't had a problem (real chef, not a cook - makes a big difference) Annette...
  13. nettiebeads
    It's a SUPPORT group. If they look down on you, then they have a problem. You self-dx because of necessity, not for attention or because you needed to belong to a group of some sort. Go, if they ask you questsion just smile and say you found out you had celiac. End of story.
  14. nettiebeads
    You are right to be concerned about ingesting gluten again. What you have done is the diet challenge and it has come back positive for gluten. I was dx'd that way 9 yrs ago. No tests, not even bloodwork. My gp announced celiac and said the gluten-free diet was for life. He's since retired, but none of my other drs have questioned the dx. I tell them...
  15. nettiebeads
    Malt-o-meal Fruit Dynobites aregf, and if you access to Always Save brand (generic with yellow lables) their Coco Crunchies are gluten-free too. Or you can do grits.
  16. nettiebeads
    I've had rib pain, but it usually coincides with gall bladder attacks. I'm sure mine will come out in a few years. But I figure it's not dibilitating or keeping me from work, so I'll let it go. How bad is yours on 1 - 10 with 10 being the worst? That's the best way to gauge whether to see the dr about it or not. Annette
  17. nettiebeads
    I don't know about Crohn's but a lot of people start out with mashed potatoes until their tummies settle down. Jello, hot rice, some fruits and well cooked veggies and grits are good starters while you heal. Hope you're better soon Annette
  18. nettiebeads
    It's called a macro - computer short cut in other words. So for girl friend it would be Gluten-free or G.F. or something like that. Otherwise it will be read as gluten-free. I used the initials "celiac disease" when posting about my walkman or discman as they now are. posted as celiac disease walkman. Makes for strange posts.
  19. nettiebeads
    I don't know exactly what is in pectin, but think of it as a type of gelatin. It is gluten free, that I do know.
  20. nettiebeads
    My celiac was dx only 6 weeks into the disease, so I probably had very little damage done (dx by diet challenge, no tests). But it still took me quite awhile to tolerate yellow cheeses. I think nearly 6 months. I still don't drink as milk and eat as much cheese as I did pre-Celiac.
  21. nettiebeads
    FYI-I think Quaker rice cake are heavily cross contaminated, and last time I looked Rice crispies were flavored with malt so they aren't gluten-free.
  22. nettiebeads
    Could be a lot of reasons for your dd not making it to the bathroom. Could she have a mild UTI? The malabsorption from celiac can cause lots of different problems. Sometimes I have problems too. The urge is just so strong that I can't quite make it to the b'room in time. Frustrating. Anyhow, the flours are a little pricey to make your own treats so...
  23. nettiebeads
    Very likely. Here's an idea - why don't you both go gluten free for a week? See what happens. The problem with tests is that there are lots of false negatives, especially in children because their immune system may not be fully developed. You both could eat all the meats and fruits and veggies you wanted. You may want to limit dairy as dairy intolerance...
  24. nettiebeads
    I've eaten refries many times with no problems.
  25. nettiebeads

    ARCHIVED Good News About Bad News

    nettiebeads replied to Claire's topic in Doctors

    Make him eat it. Not prescribing an antibiotic was plain negligence on his part. Besides, I've heard crow tastes terrible. Annette
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