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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    Sounds like you're doing a fine job, mom!!!
  2. nettiebeads
    I've never had a "formal" test for my celiac. I had the BIG D (gassy, foamy, float and gross smelling) for six weeks, went to my dr, was put on the gluten-free diet. Immediate relief. At the follow-up he pronounced me celiac and was sent on my way. That was 10 years ago and all the drs since haven't bothered to refute the dx because of lack of testing...
  3. nettiebeads
    I'm allergic to lots of foods. Sometimes it does show up as a swollen spot on my lip - not the whole lip, just off to one side. It does subside on its own, but is annoying until it does. Annette
  4. nettiebeads
    Hope you're better this a.m. Sounds like you got glutened big time. Don't know about all of your symptoms, but it does sound like it was a shock to your system. Annette
  5. nettiebeads
    My mother used to use it a lot. I have two regimines. One is dried apricots and raisins every day. That usually works pretty well for me. If things aren't going well, then it's Citrucel. Usually two tabs in the a.m. get me going. If not, then I take two more at night and then two the next a.m. That's almost always done the trick for me. Of course...
  6. nettiebeads
    Where's Tarnalberry when you need her? Does there really have to be a difference? The diet is the same, and some have surmised that the amount of damage is the deciding factor. I don't think I had much damage when I was dx'd by diet challenge alone after 6 weeks of D. But that's the only test I had and I so won't ingest gluten knowingly for any other...
  7. nettiebeads
    I'd go for those tests. People who have had them are nearly 100% satisfied. The regular clinical tests have too high of a false negative rate to be as reliable as enterolab. Plus many of the more forward thinking dr.'s think that go by your body's reactions to gluten - on and off - is the most reliable test. It's called the diet challenge and is a reliable...
  8. nettiebeads
    I won't promote a specific brand or style, as each person is different. Look for cross-trainers and shoes made specifically for aerobics. The heels on the running shoes have too much of a flange to facilitate the lateral movements used in aerobics. Good support and cushioning is a must. Your better brands cost more, but well worth the investment. Try...
  9. nettiebeads
    Had some not too long ago - yummy and no problems for me.
  10. nettiebeads
    Because you're human. Maybe a little bit of denial? I was dx'd nearly 10 yrs ago by diet challeng alone. That was good enough for my gp then, and no other dr's have questioned the dx since. (except one internist that I don't see anymore) Do the diet challenge. If it works and you start to feel better, you'll be able to stick with it easier. It's the...
  11. nettiebeads
    I agree with Plantime. The biopsy has been considered the "gold standard" but too many false negatives abound. Some of the more progressive thinking drs are thinking that the best determination of celiac disease is how one's body reacts when gluten is removed from the diet, then introduced briefly about three weeks later. In other words, the diet challenge...
  12. nettiebeads
    Verner's is good too. I drink that when my stomach is bad. Annette
  13. nettiebeads
    Why should you feel like an idiot? You're a very normal human being that has a disease that is so not mainstream. It's frustrating at times. After nearly 10 years of this, I'll still look in the pantry and just want to give up - same ole same ole and I don't want to spend outrageous prices for something yummy or cook from scratch. At least this forum...
  14. nettiebeads
    Glad to give you a listen and a cyber hug. What you're feeling now won't last forever. It's just getting through it that's so hard. I tried to get off of my antidepressent (zoloft) but I couldn't. Period. But I sure can relate to the adjustment part and of course the depression caused by glutening. Whenever it happens to me, I'm sure I'm the most horrible...
  15. nettiebeads
    As the product is made from 56 or so herbs and spices, no telling what set off your reaction.
  16. nettiebeads
    Yes, celiac can really suck! But she has got to realize that gluten is POISON to her body!!! Does she want to get pregnant in the future? Untreated celiacs have a higher miscarriage rate than the general population. Does she want to be healthy when you both want to do things, go places, have fun? She can't if she's miserable. It'll take a while, but she...
  17. nettiebeads
    Well, the fact that you notice a difference in his D would seem to indicate it's working. I would feel slightly feverish when glutened - it probably throws the immune system out of whack. Just keep up the gluten-free diet - change is based on many things - how sick, how long sick, degree of damage, and how totally gluten-free the person really is. Watch...
  18. nettiebeads
    I'm sure it is. It's out of anise seed which gives it the licorice flavor.
  19. nettiebeads
    Oh the heck yes!!! By the way, you left out brain fog. Everybody's body is different and reaction times vary from person to person, and even in the individual. Get some L-glutamine in the health section of any store - it promotes healing of the intestine. But be sure it's gluten free, of course. But for the most part, the after effects just have to run...
  20. nettiebeads
    I sure hope that's true. Not that I'd go back to full fledged gluten eating, but if it would protect against the accidental glutenings I would be thrilled!
  21. nettiebeads
    Does he know about the Triumph dining cards? They have been a big help to me. And there are restaurants out there with gluten-free menus. Celiac isn't a death sentence when treated properly; but food is such a social event that I understand both sides of your problem. I'd like to eat out more-but my hubby is an ex-chef and doesn't like to spend money...
  22. nettiebeads
    My symptoms have changed over the years; at least the physcial ones. I used to get D - you know the special kind of D only celiacs have. But for the past 4 years or so it's been the C - severe enough to have to use MOM at times. But Citrucel is very effective for it. And I've found that bananas, rice and cheese really bind me up when before they were...
  23. nettiebeads
    Yep, I discovered them too! A Seasoned product that's SAFE!!!!! Even my husband, the ex-chef, highly approves of their flavor.
  24. nettiebeads
    Why are you going to eat a bagel?
  25. nettiebeads
    No horrible consequences. Could be all positive. I don't understand their thinking - There lots of medical conditions regulated by diet - not just diabetes. And believe it or not, I read where the newest thinking is that if your body responds positively to the gluten-free diet, then do it. I personally wouldn't wait until you got the results. Go gluten...
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