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Sarahsmile416

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Sarahsmile416

  1. Sarahsmile416
    Thanks so much! It just feels good to say it right now! Although I know I'm not out of the woods yet. I have my second HCG blood draw tomorrow and when I have the results of that, I will feel better. Until then, I consider it up in the air (despite the positive blood test). I am already tired all the time but yet when I go to bed I have a hard time sleeping...
  2. Sarahsmile416
    Well, Monday morning I went in for a routine blood work and monitoring for what I thought was my AF...and they called me a couple hours later and told me I was pregnant! I couldn't believe it! Now, they are going to check my HCG levels tomorrow to see if they are doubling appropriately. After everything I have read on here and because of my pre existing...
  3. Sarahsmile416
    I have never heard of these protein packets but I'm intrigued - partly because of the low carb options. This mighr be a stupid question, but what other ingredients can you add to the shakes?
  4. Sarahsmile416
    Thanks for the help. Hazelnut milk sounds really good - I've never seen that in any of the stores near me though
  5. Sarahsmile416
    So, I am two and half months in after being "labelled" NCGI. I was given Aciphex to control the extreme acidity and erosion of my esophagus and told that my other symptoms would start to improve after a couple months. Unfortunately, that has not happened. Instead, itseems my tolerance for foods has lessened. A month after my negative biopsy, I realized,...
  6. Sarahsmile416
    I understand as well. Eating out can be a crap shoot for me...sometimes I have no problems and other times it can be a nightmare...and sometimes, yes, I am forced to order something small in order to stay safe from a reaction but then I leave hungry. The other night, my husband and I went to Champps for the Super Bowl - I ordered a French onion soup sans...
  7. Sarahsmile416
    Thanks, I will do that. I had two at work today and immediately had sharp pains in my abdomen...but didn't know if it was a gluten reaction or a chocolate reaction. Either way, not going to try that again.
  8. Sarahsmile416
    Reading this list, I didn't see Hershey's Special Dark Kisses - are they safe?
  9. Sarahsmile416
    I am confused - can you clarify why you can't rule out celiac with a negative biopsy? Mine were negative as well, so I assumed that was the last word on the situation. I, too, have other AI issues so for that reason, I do not count out Celiac later on (I was pre-diabetic for years and then at 27, I developed Type 1 diabetes). I understand why after a blood...
  10. Sarahsmile416
    That is very interesting - thanks for putting it up there. Even though it specifically links anxiety and celiac, I would assume the same could be found, maybe to a lesser extent with NCGI? I have had anxiety almost all my life, from my phobia of throwing up to your more garden variety social phobia, I will be interested to see how staying away from gluten...
  11. Sarahsmile416
    I, too have an intense phobia of vomiting - and I'm so glad you brought it up, because every time I have been glutened or react to dairy, my phobia rears its ugly head. It's bad enough having panic attacks being near people I am afraid will throw up or have a virus, it's that much worse constantly being afraid when I am glutened that it will happen. Thank...
  12. Sarahsmile416
    I have to say reading your posts have certainly eased my mind a good deal! I am gluten intolerant but have a great deal of inflammation in my gut so am going both gluten free and dairy free and have been so for about a month. On top of this, I have Type 1 Diabetes and PCOS so definitely have an uphill battle ahead of me! My husband and I have just started...
  13. Sarahsmile416
    I have vitiligo in various spots on my body - I have pretty much come to terms with the spots that have been there since I was 13 going away, but I have noticed improvement in the most recent spot while on this diet, which makes me very happy. Hopefully, in a couple years it will be all but gone!
  14. Sarahsmile416
    Question for those of you in the know - does the presence of more than one autoimmune disorder leave one more susceptible for another? For example, I tested negative for celiac (blood test and endoscopy), but I have two other auto immune disorders - does this mean that the possibility of developing celiac in the future is greater for me?
  15. Sarahsmile416
    Yes, the Brunner's gland hyperplasia was the most glaring thing I saw. I looked it up and saw it was a benign tumor in the duodenum - which didn't really worry me just confused me that my doctor wouldn't tell me that. And yes, mushroom, I agree, the definitions of those words do tend to lead to more questions than answers, haha.
  16. Sarahsmile416
    Thanks, Opa. Formally, I was diagnosed with gastritis, esophagitis, and duodenitis...so I knew about the inflammation in all of those places. What I really wanted more information about were the words mucosa, hyperplasia and those types of medical lingo. Since I am not a doctor I don't know what those things mean in the context of my esophagus, duodenum...
  17. Sarahsmile416
    Want to clarify - diagnosed myself a month ago after negative blood tests and negative biopsy as NCGI and have been gluten free since late December. Went to the doctor two days ago and was pleasantly surprised. Apparently it is just her nurse who is a moron...I did find it funny that the nurse wanted as little to do with me as possible after I excoriated...
  18. Sarahsmile416
    Thanks for the advice regarding the yogurt...I don't think I will try it quite yet, but when things start to heal, I will give the plain Fage a try...although the taste kind of scares me...maybe as you said, I'll add something I know I'm okay with to mask the taste...or just find something else. I actually had a sweet potato yesterday with butter and...
  19. Sarahsmile416
    Hehe! And ooh a pudding with bananas - I will have to check out that section! Thanks!
  20. Sarahsmile416
    Oh trust me, not about to touch soy milk. I was drinking flax milk for awhile which I really liked. I think I need to find some non-dairy substitutes for pudding because after what I have heard about lactaid pills, I don't really want to try them...besides I have enough meds and vitamins already, I really don't need to add another!
  21. Sarahsmile416
    Thanks, mushroom! Appreciate the reply and the explanation. It does make sense...my doctor recommended today that I stay off dairy for awhile. Like an idiot today, I tried my tapioca which I previously had been okay with and 5 minutes later, I got sick. Well, I guess if I needed proof, I got it - in spades!
  22. Sarahsmile416
    Out of curiosity, where in RI do you live? I know of some folks near URI...
  23. Sarahsmile416
    Thanks so much for the invite, Loey!! I certainly appreciate the thought! Wish I could come but the little girl I take care of is having a BD party the same day and I promised her I would come! Sorry to miss it though
  24. Sarahsmile416
    A little update. Went to the doctor today and was pleasantly surprised. Apparently it is just her nurse who is a moron...I did find it funny that the nurse wanted as little to do with me as possible after I excoriated her on the phone. The doctor on the other hand, when I told her I was still having problems she said that I might easily be gluten intolerant...
  25. Sarahsmile416
    Hi - Was DX about a month ago as esophagitis, gastritis, and was told I did not have celiac. Of course, knowing myself and my reactions to gluten, I went gluten free almost immediately following the endoscopy. I have been doing well since then most of the time. Because I have read on here about avoiding dairy if you are Celiac or NCGI, I have done my...
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