AlwaysLearning
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Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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Scott Adams reacted to a post in a topic:
My only proof
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We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
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If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
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Blue-Sky reacted to a post in a topic:
are you going to take the vaccine
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Blue-Sky reacted to a post in a topic:
I had Covid 19.. did nothing much
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ELizardBreath reacted to a post in a topic:
Completely different symptoms all of a sudden?
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Wheatwacked reacted to a post in a topic:
Negative biopsy, positive blood test (included), GI says I have celiac disease
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If you read again, I was careful not to label her family members, rather described my own personal experience with people ... who have official diagnosis.
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Donna, it sounds to me as if your "friend" has some mental health issues. It reminds me of a couple people I know who have narcissistic personality disorder. Telling other people what to do, having no concern for their concerns, and seemingly ignoring anything they say is pretty typical of a narcissist. If this is the case with your friend, then they are...
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I don't have any medical advice to give you, but I hope I can offer some moral support in having shared experience. I didn't get my diagnosis until I was 42. Before that I had phases where I had symptoms and phases where I did not. In hindsight, it was linked directly to eating out (high gluten) vs. cooking for myself (low gluten). I knew something was...
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Scott Adams reacted to a post in a topic:
Chronic Hives
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I used to have problems with hives. Turns out it was actually a reaction to mold that I didn't know was in my house, which was causing my immune system to be suped up, which was causing my thyroid to be overactive, which was causing my body to produce too many histamines, which was causing hives. I have zero allergies but I would get hives on my hands...
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Ginger38 reacted to a post in a topic:
I’m Done and Feel Like Giving up
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I’m Done and Feel Like Giving up
AlwaysLearning replied to Ginger38's topic in Coping with Celiac Disease
Soup. I make big batches of it and freeze most of it. Two big pots nets me about 20 servings. Yes, you do have to take a couple hours to make them in the first place, but if you can get the kids to help out on the prep, you may be able to reduce that. And it can be super healthy, so worth the effort. The ones I make most often are kind of similar... -
higher risks of lymphoma in people with celiac disease
AlwaysLearning replied to MADMOM's topic in Related Issues & Disorders
I don't see her numbers, nor would I know what they mean, but from what she has said, I think she has stayed fairly stable, kind of like being pre-diabetic, sometimes a little better, sometimes a little worse. Knowing my mom and the way her brain works (how stubborn she can be when it comes to refusing that there could be anything wrong), I suspect... -
higher risks of lymphoma in people with celiac disease
AlwaysLearning replied to MADMOM's topic in Related Issues & Disorders
Before I say this, I want to state for the record that I whole-heartedly agree with Trents that a higher risk when the risk is already very small is not an area of concern. I have not been able to convince my mom to get tested for celiac or to go gluten free, despite having a ton of symptoms of autoimmune disease. But I did talk her into going gluten... -
Scott Adams reacted to a post in a topic:
Newbie
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Newbie
AlwaysLearning replied to huffalynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Congratulations on getting a diagnosis! Going gluten free can be tough. I think one of the most-helpful things I did was to make sure I found ways to see the positive and try to make eating an adventure instead of a hardship. Those early trips to the grocery store, when you realize that so many of your favorites are now off limits, can be tough... -
notme reacted to a post in a topic:
Negative biopsy, positive blood test (included), GI says I have celiac disease
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DevJac, I'm sorry to hear that you are facing some major life changes and don't seem to be ready for them, but congratulations for getting a diagnosis before your symptoms were too bad. You got lucky. I spent two decades going to doctor after doctor after doctor, desperate for answers, only to be told there was nothing wrong with me, that I was making...
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22 with MS from cross-contamination
AlwaysLearning replied to Melissa Mandrick's topic in Related Issues & Disorders
For me, the cold hands and feet, a problem I had for decades, was all from gluten. It went away completely within the first two weeks of going gluten free and never came back. My graves disease is triggered by mold and mildew. If I can keep everything uncontaminated, my thyroid calms down and is not a problem. -
I read a post a while back from someone else here that could explain your lack of reaction after five years of being gluten free. Apparently, your body produces little factories that make the antibodies that attack gluten. The longer you eat gluten, the more factories you have, the more antibodies that are produced. And it takes up to two years for all of...
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Before going gluten free, I would describe myself as either being asymptomatic or suffering. In hindsight, I realize that, for me, it was job dependent. If I had a job where there were few options for eating out, I would bring my own breakfast/lunch which were generally gluten light. During these periods, I had no noticeable physical symptoms but if...