Dh122012
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Dh122012
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Yeah I feel like I am one of the lucky ones, low dose too. Maybe you need to up ur dosage? I would figure you'd have more relief by now! I am very new to all this but maybe the clobetasol propionate and Elidel I've been cramming into my skin for the last 15 years kept me from having the disease as deeply manifested in my dermis
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so do you think if I am ascribing to a GFD I can taper off the Dapsone now and it would potentially not come back? That would be very cool.... I imagine prolly not though
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I was told that I could come off the Dapsone after 6 months to a year of strict gluten-free diet, does that sound right? Is it really going to take that long for the GFD to kick in?
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ARCHIVED Help For The Itching, Stinging, Burning, Pain Of Dh
Dh122012 replied to squirmingitch's topic in Dermatitis Herpetiformis
I never had any luck with Triamcinalone (Kenalog) neither the cream or the shot :-/ I didn't get improvement with anything less potent then Floucininide, best result were with Clobetasol Propionate. I found this listing a few years ago and it's really helped me visualize the different strengths of topical corticosteriods. So every time I changed doctors... -
I love Sarna! Its the best OTC product I have ever used for the itch!!! It literally saved my sanity during pregnancy when I had to stop all the topical corticosteriods, topical immunomodulators and sedative antihistamines (before I found it was DH and was being treat for severe eczema). I bought it at Walmart. Online too sometimes (free delivery) then...
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Looks a lot like mine me thinks I was sucessful using clobetosol propionate to keep my itching low and the blisters controlled, but I was going through like 4-5 15mg tubes a month... on that high potency corticisteriod that's only supposed to be used 10 days at a time :/ Thanks for posting your pics it helps with my peace of mind... too bad it can't help...
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ARCHIVED Frustration With Diagnosis Vs Test Results (Pics) - Thoughts?
Dh122012 replied to Dh122012's topic in Dermatitis Herpetiformis
l've been nauseous all afternoon... could the gluten withdrawal come on that fast? I did as you recommended and searched it sounds like it, but I never imagined it would be this quick. Its funny, even though you recommended I get knowledgeable to ensure I don't think its something else, I still ended up taking a pregnancy test because I couldn't believe... -
Initial skin biopsy (punch): eczema negative, puritic vesicle observed Immunoflorescence IgA skin biopsy (punch): Weak Postive Blood Serum Celiac Comprehensive Panel (Quest Diagnositics - Ttg, EMA & EMA Titers): Positive Small Intestine biopsy (EGD): negative
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ARCHIVED Interesting Reading On Dh
Dh122012 replied to squirmingitch's topic in Dermatitis Herpetiformis
This really is a fantastic compilation of DH references! Thank you! It worries me a little that you talked about your itching though in follow up comments This Dapsone seems to be a miracle drug. I imagine you are off of it though and controlling your DH by GFD only. So, are you still itching? The GFD doesn't keep it all away? -
ARCHIVED Frustration With Diagnosis Vs Test Results (Pics) - Thoughts?
Dh122012 replied to Dh122012's topic in Dermatitis Herpetiformis
Thank you so much it's bittersweet though I must admit. I stopped buy my local liquor store today and they smiled and were happy to order me some New Planet and Green's beer. I was afraid of ridicule and misunderstanding but this is off to an ok start. -
ARCHIVED Frustration With Diagnosis Vs Test Results (Pics) - Thoughts?
Dh122012 replied to Dh122012's topic in Dermatitis Herpetiformis
Yeah I'd seen that even in medical journals as a professional perspective. But it all happened so fast and since I was easy going and no cost was to be incurred I humored them. I always interpreted that as saying it wasn't a necessary procedure in diagnosis, not that it would come back negative :-/ -
ARCHIVED Frustration With Diagnosis Vs Test Results (Pics) - Thoughts?
Dh122012 posted a topic in Dermatitis Herpetiformis
Hello all, I am super frustrated with my diagnosis journey over the last 15 years... a new city, a new diagnosis. Can you tell me if this looks right to you? For the last 15 years i was told I had severe eczema, that could not be controlled properly but by high potency corticosteriods, topical immunomodulators and sedative antihistamines. Now I am told...
