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CeliacInSenegal

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Everything posted by CeliacInSenegal

  1. CeliacInSenegal
    Good luck with the tests. Hopefully it won't turn out to be anything serious. This may not be connected to your Celiac, but I think you're right that we (docs included) don't yet understand all the ways Celiac can affect other body systems and be linked to seemingly unrelated problems. Maybe the increase in Celiac and diagnoses will help improve our global...
  2. CeliacInSenegal
    Thanks for the explanation, D. It's true I'm not living in the U.S., but I have U.S. insurance and my doctor, who is an Osteopath, is there. I'll ask her about nutrient testing when I visit at Christmas. She doesn't have a deep knowledge of Celiac, but to her credit she is the one who suspected and tested for Celiac when I thought that was the least likely...
  3. CeliacInSenegal
    Blonde and blue eyed could make you more disposed to Celiac, only because it's supposed to be most prevalent in northern Europeans, who tend to have a lot of blue-eyed blondes. I happen to fit that description as well. I've also had the same experience as you where I can feel tired and low energy in daily life, but then when I workout, I get a burst of energy...
  4. CeliacInSenegal
    Thanks for your responses guys. D, that's really great that your levels have rebounded after initially getting worse and that you are feeling better. It's certainly reassuring as well, if you too had a nutrient dip originally on the diet and then have turned it around. Everyone says healing takes time, and I don't mind being patient, I just want to make sure...
  5. CeliacInSenegal
    Hi all, it's been about seven months since I got my Celiac diagnosis and started my gluten free diet. I thought I was eating well, avoiding most processed foods and cooking for myself, with plenty of vegetables and lean animal proteins. My gastro symptoms virtually disappeared, and I expected that my gut must slowly be healing and my vitamin absorption increasing...
  6. CeliacInSenegal
    It's true that there are other things that can cause a particular serological test to appear positive. Can you check what tests they did to see whether you had more than one that was positive and what tests those were exactly? After that, you'd have to research what the other potential causes of that particular test or tests being positive are and see whether...
  7. CeliacInSenegal
    Do you have any links to sources or data on a gluten-mold connection? I'd be interested to learn more.
  8. CeliacInSenegal
    Given that your blood tests were all negative and the gene test is never conclusive, it sounds like the doc is mainly going on the biopsy and symptoms. It definitely could be Celiac, but there are also other conditions that can cause flattened villi similar to Celiac (giardia for example). It's worth researching the various differential diagnoses to see if...
  9. CeliacInSenegal
    Thanks for the ideas, Kareng. We do have sugar, but no gluten-free granola, seeds, or coconut oil. I also don't have a food processor, but I think I may have to get one next time in the U.S. at the new year. In the meantime, maybe I could try making almond flour in a large wooden mortar and pestle. I wonder if it's possible to make some version of those bars...
  10. CeliacInSenegal
    Leftover deviled eggs, leftover soy-balsamic marinated chicken w/onions, and slices of cucumber and green pepper. Not the most exciting, but easy and still good.
  11. CeliacInSenegal
    Hi guys, apologies if it seems like this topic has been done to death, but I've had trouble finding answers that are workable for me where I live. Most of the helpful suggestions out there include either processed foods, or ingredients I can't get where I live (and nope, internet ordering isn't an option either.) I eat plenty of protein, but I'm really struggling...
  12. CeliacInSenegal
    Hey designerstubble, sorry to hear it. That must be scary, though as you say, it seems most uneven heartbeats are benign. Your post reminded me that I also experienced some irregular heartbeats in the last year or so, but only while exercising. I wonder now if they could have been related to Celiac, particularly before I was diagnosed. I went to see a doc...
  13. CeliacInSenegal
    Hmm, the BMR calculator link didn't show up, so maybe they aren't allowed. If this doesn't work, just check out the fat2fit radio bmr calculator. They have a very sensible approach to weight loss and their bmr calculator generates a table that tells you what your goal weight calories would be for your given activity level. (Open Original Shared Link)
  14. CeliacInSenegal
    Hi Butterfly Chaser, other medical issues may well be affecting things, but from what you said about your exercise routine and eating patterns, it seems like you are aren't nourishing your body enough for all that exercise. You've dealt with the starvation mode issue before, so you know that can make your body cling to every bit of nourishment you do give...
  15. CeliacInSenegal
    Ditto what CyclingLady said. Less processed foods and a lot more protein, to help you build and sustain muscle. As you are gluten free longer, you'll realize just how many things you can eat, especially when you still to natural, fresh food, and you won't feel as tied to the official gluten free shelf. Most things that are one ingredient are naturally gluten...
  16. CeliacInSenegal
    Hey designerstubble, Unless you are eating well over your BMR, restricting calories probably isn't the best way to go. Not giving your body the minimum it needs usually sets people up for failure. It's very hard to maintain your body in a deprived state, and doing so messes up the metabolism through muscle loss and hormonal changes, and then encourages...
  17. CeliacInSenegal
    CyclingLady, thanks for the explanation. I was unaware of that, as my employer-provided healthcare has never asked me any questions related to diagnoses or chronic conditions. Maybe they are hoping my ignorance of disclosure rules will allow them to get out of paying for benefits in the future! I'm glad to hear that will be changing in 2014. As for your...
  18. CeliacInSenegal
    Given that there is no medication that gets prescribed, does your insurance company necessarily know what the results of your biopsy are? It certainly doesn't seem fair to punish people with Celiac more than people with obesity, high blood pressure, etc, when a Celiac person can be completely healthy through diet alone. For me personally, I needed the...
  19. CeliacInSenegal
    Thanks, Laura. That's very reassuring if others haven't found fever to be a symptom. Hopefully it was something else then. I am feeling a bit better today, though still rather weak. But I've finally been able to eat something solid, so I think I'm on the mend. As for antibiotics, I try not to take them unless I have a diagnosis and know it's necessary...
  20. CeliacInSenegal
    Notme, thanks for your response. That's good that you can at least predict the progression, recognize the early symptoms and then prepare for what's to come. I hope I can get to that point. How long did it take you to be able to distinguish between your response to gluten and soy? If the digestive reaction can take 24-48 hours to kick in, that does make it...
  21. CeliacInSenegal
    Hey all, So how do you know if it's a glutening or something else? Since my Celiac diagnosis, I've been gluten free six months. I've never knowingly ingested any gluten since starting and have only once had pronounced symptoms of something that could have been a glutening, after eating at a friend's house. I'm still trying to figure out, when I don...
  22. CeliacInSenegal
    That must be tough to be intolerant to corn as well! I haven't done much baking yet, but I'm counting on being able to make corn tortillas and continuing to use corn starch as thickener in homemade curries. I agree about the seasoning cubes. Senegalese food is delicious without it, so it really doesn't need it. But people are pretty addicted to it here...
  23. CeliacInSenegal
    Hi Mistinguette, thanks for your response. That's great that you found it so easy during your 10 days in Nigeria. I travel a lot in the region and don't yet know how eating gluten free on the road in West Africa will go. As you mention, Maggi seasoning and Jumbo spice cubes have become ubiquitous in Senegalese cuisine, which would otherwise be gluten free...
  24. CeliacInSenegal
    Hi all, I'm a recently diagnosed Celiac living in Senegal. I'm wondering if there are other Celiacs in this forum currently living in Sub-Saharan Africa. The Africa-related threads I can find on here seem to be pretty old. I've just started my gluten-free diet 10 days ago and so far so good, I think. Dakar has a lot of fresh food options and quite a lot...
  25. CeliacInSenegal
    Raw almonds, an apple, and hard cheese are some of my go-to's to carry around when out. When I have time and need more food, I'll pack a salad with homemade dressing, some precooked chicken and veg, and maybe a yogurt. I also find a scoop of whey protein powder to mix with water can be good in a pinch, such as on long plane rides or when stuck late at work...
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