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Renaye

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Everything posted by Renaye

  1. Renaye
    I have been gluten, dairy and egg free since 2011. I have been on plaquenil for possible sjogrens disease also. I recently got tested for sjogrens with a new more accurate test and tested negative so now I am trying life without plaquenil. Recently I started researching dairy with low amounts of lactose to try to see if I can tolerate it. Earlier attempts...
  2. Renaye
    Hello!! I have been gluten free since 2011 and today I went to my gastro, who did not see me in 2011, with my original Prometheus paper work which has high DGP's on them. Previously he brushed my verbalizations off that I had it and could not find the test in the mound of transfer papers so I presented the hard copy today. So I officially have a doctor...
  3. Renaye
    Thanks for the suggestions! It is difficult to travel and always raises my anxiety about eating with others. Here is what I have planned. Tomorrow I am cooking a few chicken breasts and hamburgers to take along. I have gluten-free buns. I have one taco soup in the freezer that I will possibly take. I may also take some lunch meat and spinach to make...
  4. Renaye
    Hello, everyone! I am going on a trip to watch my son play baseball this Wednesday and will be gone for 5 days. We are traveling with the team and may not know what we are doing for meals since baseball times are based on whether you win or lose. I really feel embarrassed going out with the team because they usually decide on a place that I am unable...
  5. Renaye
    I saw a nurse practitioner a month after my attack (took forever to get in) and she did a SIBO test which was negative, changed my acid reflux medication and checked my lipase level. It was 220 which was the maximum number to be normal. ?? I also found out that I have bile reflux and I started carafate. I don't believe that I have been glutened. Anything...
  6. Renaye
    I am very well aware of the difference in the organs. My gallbladder came out because it was causing problems with my pancreas. My gallbladder was not functioning normally and they suspect I had gallstones although they believed I passed them before it was taken out. Thus no evidence of gallstones.
  7. Renaye
    Hello! I have been gluten free for about 5 years with no official diagnosis. I have been doing good until October when I had some sort of stomach attack that took 6 weeks to fully recover. I thought it was pancreatitis which I had several years ago but the doctor has told me that I should not get that again since they took out my gallbladder. Whatever I...
  8. Renaye
    I know that there was a lot of information a few years back on this milk indicating that it was not gluten free. I am having difficulty with digesting other milks and was wondering if it is affecting anyone negatively now. Hoping not. Not sure why they still advertise gluten-free if it is not. I can't find any other brands locally. Please let me know...
  9. Renaye
    Plaquenil helps my fatigue and joint pain. It is also supposed to slow down the progression. I see the rhuemmy every 6 months and get blood work every time. I am doing well and my doctor thinks my sicca symptoms are in remission due to the gluten-free diet. He plans on seeing me yearly after this next visit since I am stable.
  10. Renaye
    I did not get a final biopsy report but the last one was taken in 2013 and my discharge papers indicate scalloped mucosa in duodenum and duodenal mucosal changes consistent with celiac disease. This was 2 years after going gluten free. Biopsies were taken and nurse called that they were negative. Yes, I am doing fine on the diet but did not have typical...
  11. Renaye
    I am on plaquenil also. It is the first thing that they put you on if your symptoms are mild. Plaquenil has worked wonders for me but the only risk are eye problems which you would need to have an ophthalmologist follow you. I don't have antibodies but have a positive ANA and dry symptoms which are much better since treatment. The key is finding a good...
  12. Renaye
    Back in 2011, I had a Prometheus test run which consisted of a +DGP IgG, +DGP IgA, -TTG IgA, -EMA IgA, Total IgA was normal. My gastro did a genetics test which was unable to interpret but started me on a gluten-free diet and sent me to a rhuemmy doctor. A later biopsy was negative. Now that doctor is gone and my new doctor which I like, does not think...
  13. Renaye
    I don't believe in weight loss products like these but wondered if anyone has used them? I noticed they have a gluten free brand, not sure about dairy. I don't need it for weight loss or energy but heard that it may help constipation and I am in desperate need of help in that area.
  14. Renaye
    I discovered this place last week and they have dairy free and gluten free options on their menu and website. I am anxious to try it. Has anyone had any experiences with this place? I noticed that they use a separate blender for each drink you order.
  15. Renaye
    I was always told to only eat Bush's beans but I notice that Aldi has naturally gluten free chili beans and refried beans in a can. Are they safe?
  16. Renaye
    Thanks for the boost, Colleen. I will keep trying. I have a step and need to start using it. I get up at 5:30 to go to work at 7:30 already but sometimes I wish I had more time. I can't sleep in on weekends because I don't go if I miss my time. I tried coffee and it bothers my acid reflux. I have not acceptable "manageable" yet. I am 44 and want desperately...
  17. Renaye
    Ravenwoodglass I have been gluten-free since 2010 and there has been no changes in my constipation. I am on Dexilant, plaquenil, vitamin D and take calcium but was constipated way before taking calcium. Insurance only covered 10 sessions this summer which was very time consuming for me. She did diet training and exercises to strengthen my muscles but...
  18. Renaye
    I am struggling with my new me and wanted some help. I have positive DPG tests. I also have food intolerances to eggs, peanuts and dairy which I have probably had from day one of life. I am treated with plaquenil for fatigue, mild joint pain and dryness. I also have chronic constipation which I thought was related to celiac but there has been no change. I...
  19. Renaye
    I have some sort of dysfunction where my lower colon muscles don't work. I take miralax and eat more soluable than insoluable fiber and this seems to help. I have done everything and now have just accepted it.
  20. Renaye
    I ate them today!!! I eat them for breakfast with milk and when I was little they used to be one of my favorite snacks. I would melt a tablespoon of butter in a pan and add honey nut cheerios. Buttered honey nut cheerios!! Yum!!
  21. Renaye
    Thanks for the recipe!! I went to a health food store the other day and found soy free mayo but it was $7 for a tiny jar. So my next step was looking up a recipe on line. I think this one looks simple enough and I think I got all of the ingredients except white pepper! Renaye
  22. Renaye
    I had blood work for food allergies several years ago and I took out the foods that were moderate reaction to both delayed and immediate reactions. Almond, soy and several others were mild responses. It may be worth taking them out. I watch my soy carefully and the only things I eat that contain soy are my mayo and occasional bread/cracker products by...
  23. Renaye
    I have been gluten free for several years and have also taken other things out of my diet. No diagnosis but have improved with taking out eggs, dairy and peanuts along with gluten. Last year I had pancreatitis and the doctor took out my gallbladder although there was no definite cause. This week I have been feeling bad, my stomach is bloated, constipated...
  24. Renaye
    I know there is a lot of discussion on safe supplements now but I am running out of vitamin D and also calcium and was considering changing brands to help with my continuing problems. I have osteopenia and low vitamin d so I am not able to get the amount that I need through food only. Any suggestions? Thanks!
  25. Renaye
    I saw a naturopathic doctor a few years ago who diagnosed me with multiple food intolerances and also an unidentifiable parasite. He wanted me to do a cleanse which would make me sick. Insurance didn't pick up anything so I ended up not seeing him anymore. If he was able to identify the parasite then I would have thought more about it. I also have other autoimmune...
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