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Mr J

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Everything posted by Mr J

  1. Mr J
    as many of you would know, its a haphazard process for non experts such as ourselves to search the net for possible causes. I once came across the symptoms of gall bladder problems which seemed to fit. There is a procedure for forcing out possible obstructions called the liver flush which I posted here: Open Original Shared Link this showed that my gall...
  2. Mr J
    I too have heard some of the things you mentioned and about a year ago I was chronically fatigued - that problem really exists its not all in the mind. But there is so much information on what is supposed to be good or not good to eat, where does it end? something has gone horribly wrong with my digestive system some of which I describe on Open Original...
  3. Mr J
    I've gone round in a circle trying to figure out and guess what has gone wrong with me. Originally though enzymes, but found enzyme supplements didn't help much (but thats coz I didn't know much about what are the good ones and how much to use). suspected too little stomach acid, but drinking vinegar and taking acid capsules didn't help. Doc suspected...
  4. Mr J
    just following on from my previous posts... I've contacted both my regular doc and the gastro doc about my worsening condition, that way it will be more difficult for the lazy gastro specialist to ignore me. despite my elastase test coming back normal - this was over 6 months ago. I don't think my pancreas is functioning properly. There are other tests...
  5. Mr J
    Satori, is your situation such that your pancreas is ok, but the enzymes help overcome other problems? on the subject of finding another doc the gastro specialist was unresponsive, so I had asked my primary care kaiser doc to prescribe me Creon, but she balked at this request due to inadequate experience in this field. this might partly have been coz...
  6. Mr J
    thanks for that info Satori, I just looked up ultrase mt 20, also goes by the brand name Creon which is what I asked for. It was the suggestion of the nutritionist that I go on this . Of all the healthcare professionals I met, the nutritionist was the most understanding of my condition and appreciated just how difficult it is for someone like me to eat sufficient...
  7. Mr J
    I stopped posting here for a while, partly because I was feeling better and partly because I had given up finding out what had gone wrong with me and any improved methods of fixing/coping with digestive failure. I'm really doing the same thing as when I joined this forum. Separating out the carbs from protein and taking massive doses of enzymes. There are...
  8. Mr J
    regardless of whether the pancreas is working or not , even a perfectly functioning human body produces no cellulase fibre digesting enzyme at all. So why would I ever want to take this? a cow apparently has plenty of this enzyme floating around in the multiple chambers of its stomach. But I'm not a cow living exclusively on grass, although of course I...
  9. Mr J
    I know loraleena said the enzymes need to be taken at the start of the meal and ursula suggests the opposite. I agree with both suggestions! To me its not contradictory coz of the different types of enzymes. I dose myself with the following categories of over the shelf enzymes 1. fiber digestive enzymes eg cellulase. this can be taken at the start without...
  10. Mr J
    well that may be true for the world champion competetive eater! - a young Japanese fellow I believe who can pack away an incredible amount of hot dogs.... but not all of us have that digestive capacity. your nutritionist is assuming a working pancreas with all the nerve feedback loops in place to make it operate properly. That statement is like saying...
  11. Mr J
    there is a theory that proteases (protein digesting enzymes) will clean up ulcerated intestines and act as a a sort of antiseptic to aid that sort of healing, I don't know if thats true. A lot of enzyme instructions come with a warning not to take if stomach ulcers are present - which sort of contradicts that theory. My only personal experience on this matter...
  12. Mr J
    its nice to know where all the noise is coming from and should be a comfort to the borborygmi (what an expressive sounding name! never heard of it before this thread, sounds latin to me) afflicted to understand that the stomach is an autonomous mixing machine. you can try finding a socially appropriate human and get them to put their ear on your stomach...
  13. Mr J
    all systems can malfunction even the alarm system itself i have found out. despite my best efforts to control the fans at work they sometimes produce a stream of spurious alarms. i'm also inclined to think the noise from stomach rumbles isn't meant to be an alarm signal but more just a side effect of a necessary function. In the same way that the cooling...
  14. Mr J
    just thought I'd mention that "Tong Rong" can be used in a similar context to the western phrase of "bless you" so if a stomach gives a particularly loud rumble can say simply "Tong Rong". And it said in positive good natured context. also so as not to confuse anyone who read my first post, a rumbling stomach in my case is not an alarm signal that i've...
  15. Mr J
    symptoms V alarms as i was explaining in post 19 above, the machine i program at work provides me with a useful analogy to help understand the rumbling/singing, which thankfully has returned to my stomach. the machine is futuristically loaded with silicon chips which are working quite hard and need some fairly hefty cooling fans to stop them from burning...
  16. Mr J
    <groan> I do enjoy puns :-) </groan> my wife is Thai and we prefer to use the Thai phrase for rumbling stomach - phonetically written is "Tong Rong". Tong means stomach and Rong means sing, so literal translation is "stomach is singing" as i was describing in post 15 and the one above, i used to be in the opposite situation to everyone else...
  17. Mr J
    happy rumbling following on from my post on stomach rumbling in the above link, I find it fascinating that all our autonomous functions seem to operate on a feedback loop from various sensors scattered around the body. alright, I suppose stomach rumbling isnt 100% autonomous, there are times when looking at tasty food can provide signals for one of the...
  18. Mr J
    the rumbling comes from the contractions of the stomach smooth muscle. Smooth muscle is in the walls of the bag which forms the stomach - not to be confused with the stomach and abdomen muscles on the outside of the body. Smooth muscle is autonomous muscle. Autonomous means it acts independently of your will, you can contract your abs at will when you do...
  19. Mr J
    i gave cow yoghurt a brief test about 2 months in to my CF free diet (too early according to some online advice i've seen), no immediate reaction, but then i don't immediately react to anything - my worst moment was when micro amounts of gluten consumed over a period of about a week shut down my stomach smooth muscle function - left me bewildered as to what...
  20. Mr J
    yeah, bloody ridiculous isn't it that products that advertise themselves as non-dairy have written in their ingredient list "SODIUM CASEINATE (A MILK DERIVATIVE) **" where "**" is "Not a source of Lactose" - thats really contradicting the "... IS A NON-DAIRY, LACTOSE FREE, and CHOLESTEROL FREE CREAMER" which is much more prominently displayed on the packaging...
  21. Mr J
    er yes, a general problem i have with msg boards is that when i start to mentally formulate my reply i find various things need to be taken into considereation to cover various aspects of my response. then things start to get too complicated and i give up responding. Once in a while i get my act together and manage a reply but it can be rather long. fortunately...
  22. Mr J

    ARCHIVED Chelation?

    Mr J replied to SurreyGirl's topic in Coping with Celiac Disease

    Open Original Shared Link is a very good msg board, i have followed it for enzyme info, but there are a lot of chelation experts on board, although chelation is not always the topic of the moment cheers, Mr J
  23. Mr J
    yes I think youve highlighted the reason behind denial - when the symptoms aren't major enough to strike fear then denial becomes a tempting option. I would describe my condition as major so I had the opposite of denial - I thoroughly embraced my newfound positive antibody status from the futuristic enterolab. I remember being very happy and full of...
  24. Mr J
    hello MallysMama, it was far from obvious what was happening to me - i just couldn't seem to digest. The gastroparesis diagnosis was circumstantial observation by my docs, i tested normal via the barium test - real-time x-ray of barium liquid drink as it leaves stomach - inability to leave in timely manner is the gastroparesis diagnosis - but a lot of gastroparesis...
  25. Mr J
    i'll have a go at answering that question, which i evaded in my original reply. It seems that everyone is different when it comes to health issues. I also seem to remember that there is some sort of law of statistics that says if it can happen it will happen (or am i having some foggy memories from hitchhikers guide to the galaxy?) I'm someone who recovered...
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