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Mr J

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Everything posted by Mr J

  1. Mr J

    Happy birthday and may God bless you today!

  2. Mr J
    I once had candida overgrowth of the intestines and elevated cortisol (enough to get tested for cushings syndrome, but the docs decided it wasn't elevated enough for that). I never made the connection between the two at the time, but maybe there was - anyway thats back to normal now. candida was self diagnosed, docs don't recognise it and I couldn't be...
  3. Mr J
    the fact that I take reglan every day means i have weighed up the pros and cons and am prepared to deal with the side effects. i am under the influence of this drug right now and I had mentally composed an explanation of hwo its a dopamine antagonist but now I'm too sleepy its got a strong bitter taste. for my condition it should be taken on an empty...
  4. Mr J
    hello e&j if its in use for GERD on the message board you visited i am obviously mistaken in my original belief that reglan wasn't meant as a direct fix for GERD. However I am quite sure that it works by making the stomach empty into the small intestine. because of my gastroparesis i spent a fair bit of time on the yahoo message board, of all the drugs...
  5. Mr J

    ARCHIVED Gastroperesis

    Mr J replied to cindyf's topic in Food Intolerance & Leaky Gut

    omeprazole - PPI, GERD is one of the symptoms of gastroparesis. my non medical wayof finding out that I had it was to get my hands on the drugs "reglan" and "domperidone", because these fixed my symptoms it more or less confirmed that I had it. In my case gluten-free helps but doesn't cure me, I need these drugs. I've had many years of unecessary underweight...
  6. Mr J
    I take one 10mg tablet every day in the evening (see my recent posts on the food intolerances forum) for gastroparesis. I am an adult weighing about 123lb, it muddles my brain and makes me very drowsy. I deal with it by sleeping for a couple of hours after ingesting it prior to my evening meal. I don't like this drug at all but I need to eat! this drug...
  7. Mr J

    ARCHIVED Gastroperesis

    Mr J replied to cindyf's topic in Food Intolerance & Leaky Gut

    just in case some forum members have this problem without realising it here are my symptoms (although like a lot of these obscure gastro diseases symptoms vary) 1. poor/no appetite 2. underweight 3. bloating after eating 4. food just seems to sit in the stomach without digesting. 5. Just about any food causes this problem, although tough foods such...
  8. Mr J
    I have got hold of this drug motillium, first my wife knows a chemist in Thailand and got me an illicit supply with which I dosed myself. Then my request to get a second opinion from another GI doc at kaiser got me a supply from Canada. I have been using this drug for 2 months now. It more or less solves all my problems, this means that I do not have...
  9. Mr J

    ARCHIVED Gastroperesis

    Mr J replied to cindyf's topic in Food Intolerance & Leaky Gut

    in my case yes, it took 2 weeks of absolutely no cheating completely gluten free before my stomach started to operate its churning mechanism again. See my signature and my posts on the eosinophilic disorders thread. Not many forum members here report it, but from some of the symptoms being described I think some others have it. cheers, Mike
  10. Mr J
    hello azmom, the allergy doc spotted a previously ignored result - low chloride and sent me for the sweat test and gene test. I tested borderline leaking of chloride thru sweat and negative for (if I remember rightly 25 mutations of) CF genetics. Apparently there are hundreds of mutations, so although the subset that was tested catches most cases it won't...
  11. Mr J
    someone who is lactose intolerant (milk sugar) but not intolerant to the protein in milk would show that symptom. Cheeses and sour cream have had much of the lactose digested away by the bacteria culture that turns ordinary milk into those products. I suppose if you are brave you could test that by drinking a glass of "lactaid" milk, if you are ok with...
  12. Mr J
    i have now had my appt with the gastro doc last wed and corresponded with him by email since. The experience makes me angry. so the summary of the situation is that I asked him about the raised eos levels by email but got no answer, I then politely argued with him about various things during my appt. with an outcome of not running extra tests which I asked...
  13. Mr J
    bile from the small intestine, thats the Pyloric Sphyncter malfunctioning - the valve that lets food out of the stomach into the small intestine, but normally prevents travel in the opposite direction. Ordinary GERD involves malfunction of the LES (Lower esophageal sphycter- the valve located where the tube from the mouth to the stomach joins with the stomach...
  14. Mr J
    cheers for the probiotic suggestion SurreyGirl, I didn't realise the friendly bacteria made b12. I've only been tested for H-pylori, was negative (the only thing my docs understand). I'm actually taking in 3 to 4.5 billion of the little friendlies every day Together with the Houston No Phenol brand of enzyme they keep the candida at bay for me, makes a big...
  15. Mr J
    I found pissing fluorescent yellow a bit disconcerting, so did a web search and it seems that everyone who was prepared to post on that subject exhibits that phenomenon after taking b complex tabs. further web searches indicate that it is B2/riboflavin which is yellow and responsible. A B12 colour search revealed: Because of the striking dark red...
  16. Mr J
    everyone has their unique set of digestive idiosyncrasies so i'm no going to dispute someone who says that carbs calm their gerd. i've certainly got my own unique set of digestive misery - currently unknown cause. However the above statement from Nancym applies to me. If I say take a mix of protein and complex carbs eg. eggs and rice, I am asking for...
  17. Mr J
    an endocrinologist once explained to me that just about every regulatory mechanism in the body is based on the principle of a "feedback loop" so whats happening there is that you are adding some new input for the acid production feedback loop to adjust itself. the acid in apple cider vinegar enters the small intestine and this causes 2 things to happen...
  18. Mr J
    the barium test wasn't one of the fun moments in my life but I wouldn't go so far as to say it was awful. From memory it involved drinking large quantities of a liquid somewhere in between the consistency of thickened cream and toothpaste thru a big bore straw. I also seem to remember having to gulp a fizzing liquid which inflated my stomach. Just need some...
  19. Mr J
    oh yes that's a lot better than my lazy gastro doc who has so far told me to go home just continue the way I am. Yesterday I sent him a series of 3 emails describing my condition (kaiser limit the size of email msgs). I also sent them to my general doc who replied with a big thumbs up regarding what I wrote, so I know I didn't write anything stupid. This...
  20. Mr J
    hello jayhawkmom, the fact that we have found this message board means none of us here are clueless, but know what you mean about the frustration of searching for answers. The problem is that some of us have to deal with doctors who are clueless. So this is where we have to do what happygirl suggests and arm ourselves with knowledge. it is good for...
  21. Mr J
    based on reading the link in happygirl's signature, I think the following happens. 1. eosinophils are present in the esophagus. This means that an abnormal amount of those special white blood cells are in the wall of the tube that leads from the mouth to the stomach. 2. the eosinophils irritate and damage the esophagus. 3. the base of the esophagus where...
  22. Mr J
    thanks for replying happygirl, I just spent a couple of hours reading some of the links you posted and there is still plenty more to read. I have an appointment with my lazy gastro doc next week, so I'll arm myself with some more information on eosiniphilic disorders before then and mention the subject in a prior email to give the doc a chance to read up...
  23. Mr J
    ok, you did say any theories welcome oh yes gluten sensitivity can be insidious! when I ingest it, no brain fog (actually get sharp and hyper), no immediate nausea, no immediate anything for that matter and then continued ingestion builds to the point where it switches off the vagus nerve. This is the nerve that supplies motility to the stomach...
  24. Mr J
    I have raised eosinophils, the lab test says EOSINOPHILS %, AUTOMATED COUNT 12 High > 4 did any of you have raised levels? The doc's vague conclusion was "may be related to an allergy". the only thing the allergy tests showed was allergy to dustmites. I have unknown digestive misery - I suspect south of the stomach, I describe some of it on this...
  25. Mr J
    shortly after I wrote that my digestive system seems to have taken another backwards step. I ate a snack of nuts for some energy and took with it 2 ZymePrime brand multi enzymes - mainly protease and amylase and not much lipase even though nuts have a lot of fat. But its difficult to find hi lipase multi zymes over the counter and this is a good enzyme product...
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