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DistressedNewbie

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Everything posted by DistressedNewbie

  1. DistressedNewbie
    It's very sad but I have to agree on the whole doctor's always blowing me off thing. I'm a very difficult case because I have so many health issues yet I've gone through tons of tests coming back as normal. They don't want to try helping me because all the easy stuff for them has been done already. I even had one doctor say "well it looks like you just have...
  2. DistressedNewbie
    I would also hate to go back to eating gluten just for a test since this is my longest streak I've been off it and my health is getting pretty bad already for being so young
  3. DistressedNewbie
    It's a bit strange, the doctors I did see did not recommend I get tested because they said it would not be worth it. I've had 3 doctors tell me to just go ahead and start cutting out gluten and see how I feel. One was my endocrinologist. I will be seeing a gastroenterologist soon about the other issues. I've had my symptoms chalked off as "just IBS" for many...
  4. DistressedNewbie
    So I've been trying to go gluten free on and off for a couple years now with no such luck, but now that I'm in a much more emotionally stable place I am ready to give it my all. I have never had the celiac test done on me but I've been having issues with blood in my stool (darker blood), mucus, random attacks of very painful cramps and diarrhea, being...
  5. DistressedNewbie
    My entire family and I are O -
  6. DistressedNewbie
    Hi everyone, I have heard before that Celiac disease can make one lactose intolerant over time due to intestinal damage. I have never been lactose intolerant, at least with symptoms, when I was younger (I am now 20) but now I can't eat even a single slice of cheese without getting either lots of gas, acid reflux or even cramping and diarrhea. I feel...
  7. DistressedNewbie
    Hi everyone again, sorry for the late reply Thank you all for your feedback It seems that a lot here agree I should get tested for Celiac's. While I would love to know there really is a test out there that can tell me once and for all if I have this or not...why does my doctor say testing for Celiac's is not accurate? If the test does come back...
  8. DistressedNewbie
    Yes I have had a blood test for Hashimoto's. My antibodies were extremely high and my TSH was a bit high (not to mention I have had terrible symptoms of it for years and it runs in my family). The one link I clicked on that says "Who should be tested for celiac disease", I fit much of that criteria. My doctor has an MD, but he integrates alternative...
  9. DistressedNewbie
    This is very informative, thank you! I just wish I was able to get an explanation like this sooner. I had no idea gluten antibodies continued to stay in the body even long after one stops exposing themselves to it. I didn't even know there was such a big difference between an autoimmune attack and allergies...I really need to start getting my facts on the...
  10. DistressedNewbie
    Thanks for the replies! Yes, that is correct- I have not been tested for Celiac disease. Hashimoto's Hypothyroidism, from what I have read and from what my doctor tells me, is linked to gluten sensitivity because supposedly our bodies mistake the thyroid for being gluten and begin to attack it, since they are very similar in chemical makeup. It is strange...
  11. DistressedNewbie
    Well that's the thing, it doesn't make me sick, unless I eat tons of it...at least to my knowledge. My doctor for the most part is just assuming that my problem is gluten based on statistics from other people who have the same disease. We really don't know for sure
  12. DistressedNewbie
    Why is it so bad to have gluten every once in a while if you experience no symptoms? I am new to this whole "gluten free" lifestyle I must succumb myself to. I was recently diagnosed at the beginning this year with severe Hashimoto's thyroiditis (I know it's not Celiac's, but they are both both autoimmune diseases triggered by eating gluten and have many...
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