Jump to content

defeatwheat

Advanced Members
 View Profile  See their activity

  • Posts

    24

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by defeatwheat

  1. defeatwheat
    Get an IGA/TTG blood test for Celiac. Even if you were negative five years ago you could be positive by now. That should tell you everything you need to know. Just curious, did they do a biopsy when you got scoped? My GI said I was fine and then the biopsy came back positive as well as the blood test. Some of your symptoms seem to match Celiac, but it effects...
  2. defeatwheat
    Have you noticed any link to dairy consumption with the symptoms? I was very slow to go dairy free but after I had switched gastro doctors and he said sorry there is nothing more I can do than what you are doing and the meds you are using and then said a lot of times dairy is a problem for people with Celiac. I tried dairy free and have had good results....
  3. defeatwheat
    If you are diagnosed with Celiac you will want to take vitamins and supplements. Depending on your insurance situation you may want a full blood panel taken to see where your vitamin levels are. If you do have Celiac your vitamin levels will be low so it is kind of a given but your doctors may be able to assist further if they know how bad it is? I was to...
  4. defeatwheat
    Definitely get an IGA/TTG test. That's the blood test for Celiac. I don't know that everything you have explained may be Celiac, but the fatigue, immune system problems and possibly the skin issues as well. Healing after stopping the diet will take a while. I always felt hungry because I was not absorbing nutrients. Upon getting on the diet I lost 20 pounds...
  5. defeatwheat
    I had some improvement almost immediately but other things took some time. Lots of ups and downs. It depends how bad off you were to start and how quickly you can adapt to the new diet. It's hard to look back for me - but it will get better for you. It takes some time to recover and heal. It took some time for my body to get back to itself. Its probably in...
  6. defeatwheat
    Welcome to the group. You'll get some nice advice here. I think your decision will have less impact than some who say have been gluten free for a long period of time and then are told to go back on it and be tested. I doubt your results would be affected either way but I'm no expert on that so I will digress and leave that advice to someone more knowledgeable...
  7. defeatwheat
    Do you have the specific tests ran and the numbers behind them? Sometimes a "negative" could be headed in the direction of a positive. Some people can give up gluten because they feel better and others want to know for sure. For me I think I needed to know it wasn't optional. I had a blood test as well as an endoscopy. I believe the blood test is enough however...
  8. defeatwheat
    I hear you. After an ackward attempt or two, I don't go to potlucks and food events at work. Luckily I have boss who is understanding and fights my cause for me. Food is my enemy as well and if I could live without it I think I would. No wonder there are some issues health issues in our country, all social events revolve around food. I didn't even realize...
  9. defeatwheat
    Sorry, some of them I do not understand. I would find out for sure if you have Celiac via a blood test. IGA/TTG is the test I was diagnosed with. I had half of it years prior but not the other half so there were extra years of misery. I don't understand the others reasons why people do a gluten free diet other than Celiac, but it would find out for sure...
  10. defeatwheat
    The short answer is yes. Have you officially been diagnosed with Celiac? There are a lot of stomach issues out there. Unfortunately I have a lot of them. Some of them I understand, some I
  11. defeatwheat
    Coming from someone who had the blood test and the biopsy, I wish I had just went with the blood test. My dad and uncle who are twins have Celiac, the blood test was positive, etc etc. I know there are others who have different directives or opinions on this. I'm just offering my experience. If I hadn't had a tooth chipped while unconscious and not scared...
  12. defeatwheat
    I had a major birthday a couple weeks ago. After not having had soy ice cream in quite some time and not remembering why I requested ice cream with gluten free cones. I hadn't had a cone in over eight years so I was in heaven and ate 6 of the 8 servings in the container during the day. I woke up not feeling so well and knew something amiss. I'll leave out...
  13. defeatwheat
    Stress definitely does not help my symptoms. As mentioned walks seems to help. I try to leave myself some down time each day if possible, but if your a mom that may be more difficult. Try to let everyone know what you need from them and that if you are having a rough day that they will need to step up their game and be on their best behavior for the day and...
  14. defeatwheat
    Waiting four weeks for a blood test result is brutal. Sorry. Until I read twice I was going to say the blood test is quite reliable I would go with those results thinking you would have them in 2-3 days. See what kind of responses you get. I don't think the scope would change that much in 8 weeks. The blood test would change more quickly I think, but that...
  15. defeatwheat
    I was offering my experience not advice. True I am a stranger but in this forum you have a community of knowledgeable people who have experienced it and are living it. Follow your heart and it will lead you in the right direction. My experience is that the professionals have extremely limited knowledge or understanding of Celiac. I have put out a plea to...
  16. defeatwheat
    I was hoping to see some answers to your post regarding energy. I have energy issues. I know exactly what you mean by the stars aligning and having energy. I think I would do anything to keep it that way, I just don't know what causes the low energy. I'm thinking it is part of Celiac but I can't help but hope there is a better answer than that.
  17. defeatwheat
    Is there anyone who has found something that will work to help anxiety without irritating the system? I only have one herb that helps and that is St Johns Wort. All other antidepressants just start to work when they start to make me sick. Some times during a good stretch I look back and go wow, I was really paranoid, stressed or anxious for no reason. By...
  18. defeatwheat
    IGA/TTG is the test you are looking for. I got tested for half of it not the whole thing and ended up taking years more to get diagnosed. You need to be on a wheat based diet when you have the test. I had a biopsy and had pizza when coming out of anesthesia. It was the last wheat based pizza I ever ate. I'm feeling much better once diagnosed and following...
  19. defeatwheat
    No, but I have immense anxiety over not eating things at social events. For the most part I just do not go. I do not tell anyone except family and work - that's a tough one to hide so work knows. I don't suggest this approach but after longer than eight years that is where I am still at. I lost twenty pounds rather rapidly when first diagnosed. I think that...
  20. defeatwheat
    When asking if there was a test to see if I was lactose intolerant the physicians assistant's nurse could hardly tell me the response from the physician's assistant with a straight face. She said to tell you to drink a quart of milk and see what happens. I immediately said I am not going to do that! I haven't actually got much help from the doctors...
  21. defeatwheat
    Corn on the cob is a very hard thing to digest. I don't eat corn on the cob even though I eat every other form of corn. As for gluten free oats you may not be accustomed to the amount of fiber in them. Balancing fiber is a very difficult thing for me. I've heard of avoiding all grain, in theory I don't think it is a good idea and I really don't want to do...
  22. defeatwheat
    I've become somewhat of a germ a phobe, initially because my immune system was so weak that every cold or flu felt like it could kill me. Now with the cross contamination issues it has stuck because it is still so important. Things get easier with time and there really are getting to be more options becoming available. I went to my second restaurant where...
  23. defeatwheat
    Hang in there! It's hard to get used to, but if you stick to it your health will get better. There will always be some who do not get it and may never get it, but those who care about you most will accept you. They may never "get" it but they will be accepting more and more over time. I have a brother who brings it up every single time I see him and he says...
  24. defeatwheat
    Have you had an IGA/TTG blood test? This is the test for Celiac. When they looked inside me they said all was well until the biopsy results came back and then it was clearly Celiac. The results of this blood test can give an indicator if you are headed in the direction of Celiac. I believe some result numbers are posted on this site and what they mean. Doctors...
  25. defeatwheat
    I have followed the gluten free diet strictly for about nine years after being diagnosed with Celiac and have been dairy free for about a year. I still get bouts 2-4 times a year where I bloat up, get constipated sometimes to a scary extreme and am exhausted and feel horrible. My gastro doctor has said every test that can be ran has been ran. I take Chlord...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.