
laura1959
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by laura1959
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ARCHIVED Gluten Intolerant But Not Celiac
laura1959 replied to laura1959's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The genetic testing is in, and I do not have the marker at HLA-DQ2.5 that is most often associated with celiac disease. However, I do have things at other places that place me at slight risk for non-specific inflammatory problems that can be associated with celiac disease. Here's what the report says: 4q27 region This SNP is located near... -
ARCHIVED Gastritis Far Worse Since Going Gluten Free
laura1959 replied to laura1959's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks; since I wrote this I went back to gluten for a bit, and now am back to gluten free. I'm doing okay. The gastritis has resolved, though I had another bout of something which I really think from the symptoms was a very mild case of pancreatitis(!) but that has resolved, as well. Taking things a day at a time. -
ARCHIVED Wheat Bran - Try It - It's Great!
laura1959 replied to Candy's topic in Gluten-Free Recipes & Cooking Tips
Okay, I take it back I wouldn't have believed it, but it is true there is lots of misinformation out there! -
ARCHIVED Wheat Bran - Try It - It's Great!
laura1959 replied to Candy's topic in Gluten-Free Recipes & Cooking Tips
I'm relatively new here, and I have to say that you all should relax about the newbies. Being new does not equal being stupid or gullible. This is an obvious troll. No one is going to take this seriously unless they remain completely uneducated about gluten in all other respects. Even if the bran didn't contain gluten itself, the mere fact that it... -
ARCHIVED New To Site, New To Maybe Celiac, On Overload
laura1959 replied to maltobella's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It will get so much easier, especially when you really start to process that you're feeling so much better and it's all because of the diet! I related to so much of what you wrote, the random pains, the not waking up feeling refreshed, and have also noticed that these things get better when i eat gluten-free. Once you really wrap your head around how much... -
ARCHIVED Two Interesting Things (Wheat Germ And Low Weight)
laura1959 replied to laura1959's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks, everyone. It's probably the classic age-related weight gain. The ice cream didn't help, either! -
ARCHIVED Two Interesting Things (Wheat Germ And Low Weight)
laura1959 replied to laura1959's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah, I understand what you are saying. I just wonder-- does that happen to other people here before getting on the gluten-free diet? Does the metabolism change with age and bring with it the usual weight problems even if you are celiac? I guess I'm trying to tease out whether my inability to gain at a younger age might have something to do with gluten... -
ARCHIVED Two Interesting Things (Wheat Germ And Low Weight)
laura1959 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I guess I'll continue to post in this pre-diagnosis forum, since I probably will never have an official diagnosis. I thought I'd ask the group about a couple of things. The first is wheat germ. I used to love this stuff, but even back in the day I discovered that, when I'd eat it, I'd get terrible indigestion and stomach pain. I never had this with... -
ARCHIVED Gluten Intolerant But Not Celiac
laura1959 replied to laura1959's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you all for making me feel welcome. Yes, it's an odd thing to have the clear benefit from not eating the stuff, but to have all the testing come back with no indications of disease. It's clear even after only a few days of not eating gluten again that I have much more energy and focus without that in my diet. Whatever-- I guess I don't need to hang... -
ARCHIVED Gluten Intolerant But Not Celiac
laura1959 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was here a few weeks ago with a strong suspicion that celiac is my problem. Since then, I got copies of my antibody test results and decided that they were pretty strong indicators that I do not have celiac. Before anyone asks, I am sufficient in IgA, so it's not that. I also discovered that my gastroenterologist did suspect celiac as one possible diagnosis... -
ARCHIVED Gastritis Far Worse Since Going Gluten Free
laura1959 replied to laura1959's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks. This was a big shock to me, too. I had so many problems with my digestive system that I never realized were there. I knew I had occasional problems with my stomach, but nothing like this. They looked at just about everything except the small intestine when they did the endoscopy and the colonoscopy last month. I so wish we had thought to... -
ARCHIVED Gastritis Far Worse Since Going Gluten Free
laura1959 replied to laura1959's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, Barrett's esophagus. I do not know if I have celiac; they did the endoscopy before there was suspicion of celiac and did not go far enough in to get biopsies from the right area. Antibody tests were "normal" I was told but I am waiting for them to send me the actual results so I can investigate that further. My doctor asked me to go gluten free as... -
ARCHIVED Gastritis Far Worse Since Going Gluten Free
laura1959 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Does anyone have an explanation for this? I have a diagnosis of gastritis made through endoscopy, but I've never really had much stomach pain-- only occasional, intermittent problems. I also have GERD which is severe enough to cause cellular changes in my esophagus, and I never had a lot of pain with that, either. The gastroenterologist gave me a prescription... -
ARCHIVED Third Week On Gluten Free Diet
laura1959 replied to laura1959's topic in Coping with Celiac Disease
Thanks! You all give me hope, and that's fantastic. I'm very glad to hear that others are starting to feel more active, too! Answerseeker, I think my moods have been affected for a long time; I'm just now starting to feel like the person I used to be, mood wise. I have been so irritable and depressed for a long time. I hope this all continues to get... -
I'm heading into the third week of eating gluten-free, despite the normal test results on the celiac panel. My doctor wants me to stay on for at least eight weeks anyway, to see if I notice a change. Observations so far: I am starting to feel less bloated, and I *seem* to have regained some of the mental agility that had gone missing in recent years...
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I also get cramping in the area below my navel, which I'm pretty sure is related to my intestinal issues and chronic constipation (I'm guessing that is what "C" means here? Not sure.) In my case, it often precedes an urgent need to use the bathroom, but not always. Had my gallbladder removed about a year and a half ago, and also have occasional stabbing...
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ARCHIVED Struggling As A Celiac:(
laura1959 replied to lexibrowning's topic in Coping with Celiac Disease
Thanks, Lexi. I was worried about you, and not being around too much so far, I made assumptions. Sounds like you are working out what you need to do to make this hard transition. I admire you for that; not sure I would have been able to be that strong about it when I was your age! -
ARCHIVED Another Issue Explaining Cross Contamination To So
laura1959 replied to BelleVie's topic in Coping with Celiac Disease
I had little success trying to explain any of this to my husband. What I ultimately did was find some good articles on cross contamination and send him an email with links, asking him to read the articles. In the email I told him that I didn't think he would take it seriously coming from me so maybe if he read it on his own in someone else's words he would... -
ARCHIVED Struggling As A Celiac:(
laura1959 replied to lexibrowning's topic in Coping with Celiac Disease
That's good to know! I don't mean to be a meanie, but I get a bit rankled when I see parents taking their kids' health concerns too lightly. I hope Lexi will continue to stay here and work toward figuring out how to protect her health. It's a lot to take on, for sure, even for those who have excellent support systems at home. Butting out now. -
ARCHIVED Struggling As A Celiac:(
laura1959 replied to lexibrowning's topic in Coping with Celiac Disease
Thanks for this clarification. I am new here. I haven't read through the whole thread or all of her posts and concluded that she was a minor based on her reliance on her parents to feed her, from this thread and others I've seen. It sounds like she is struggling with coming to terms with the need to take matters into her own hands as a young adult... -
ARCHIVED Struggling As A Celiac:(
laura1959 replied to lexibrowning's topic in Coping with Celiac Disease
Honestly, I am appalled at this thread. I can't understand why a parent would willingly give gluten containing foods to a child in their care after a diagnosis of celiac, and I can't understand why society would allow it. What would we think if a parent withheld insulin from a diabetic child? We'd call that abuse, and we'd have that parent hauled in front... -
ARCHIVED Warning About Amy's Frozen Meals
laura1959 replied to ChamomileTea's topic in Gluten-Free Foods, Products, Shopping & Medications
I have been eating these, figuring I should take it easy and that I'll do more cooking if I start to feel better in a week or two. Guess I need to rework this strategy. -
ARCHIVED First Experience At Refusing The Food Someone Cooked For Me.
laura1959 replied to Renegade's topic in Coping with Celiac Disease
Since she is also gluten-free (or trying), maybe it would be good for both of you to look over information about cross-contamination together and then go through the cupboards and get rid of everything that might be a source for CC. It sounds like all you'd need to do to make this work would be to get her to step up her game on the gluten front a bit. This... -
ARCHIVED Should I Eat Gluten?
laura1959 replied to lexibrowning's topic in Coping with Celiac Disease
Didn't I read in another thread that you tested positive for celiac? If that's true, then you really need to start thinking of gluten as a poison to your body. Your parents need to think that way, too. Just because it doesn't kill you instantly doesn't mean it isn't going to kill you. I'm new to celiac/gluten intolerance myself, and this is the way... -
ARCHIVED De-Glutening The Kitchen
laura1959 replied to laura1959's topic in Coping with Celiac Disease
This is funny, we were both posting about the thin cutting mats at the same time. That's exactly what I ended up buying.