
Jake'sMom87
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Everything posted by Jake'sMom87
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ARCHIVED Negative Blood Test, Bummed I Still Have No Answer
Jake'sMom87 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So I have been to so many doctors and specialists and have had no answers to my 2 years of symptoms. I had the celiac panel done yesterday and results were negative all the way around. I will post later when I have access to them, but they were definitely negative from what I saw. It's so frustrating I was honestly hoping I had celiac so I would have an answer... -
ARCHIVED Morning
Jake'sMom87 replied to dizzydo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I feel worse in the morning definitely. I'm weak and my legs ache. I feel nauseous and frequently have D upon waking up. I'm getting my celiac blood tests today! -
ARCHIVED Gluten And Neurological Effects
Jake'sMom87 replied to Bnay14's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's great to hear! I forgot about the sweating, that happens to me too. Glad you're feeling better! -
ARCHIVED Gluten And Neurological Effects
Jake'sMom87 replied to Bnay14's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have the same as what you both describe. I'm not diagnosed but am having the celiac tests on Wednesday. These attacks are horrible! It starts by me not being able to feel my legs or arms, blurry vision and I almost feel like I'm not breathing. It's different than a panic attack for sure. Mine happen when I'm active so I went to cardiologist and after testing... -
ARCHIVED Multiple Vitamin Deficiencies?
Jake'sMom87 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi All! I had a lot of blood tests run recently and discovered that I'm deficient or low in almost every vitamin. I have not been diagnosed with celiac but I am waiting to get the blood tests done. I know that malabsorption can cause deficiencies and I'm wonder which vitamin deficiencies are most common in people with celiac? Thanks! -
ARCHIVED New Here...is Gluten My Problem?
Jake'sMom87 replied to Jake'sMom87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes at least they don't think I'm crazy that's true! -
ARCHIVED H. Pylori?
Jake'sMom87 replied to 0range's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah the ulcers healed both times, but every one and while I get that feeling again but it usually passes. Aside from labor it was the worst pain I ever experienced. Good luck I hope you get some relief! -
ARCHIVED H. Pylori?
Jake'sMom87 replied to 0range's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi! I had H. Pylori when I was a teen. I found out because I had horrible stomach pain and I could't walk or sit up. I just laid on the couch curled up in a ball crying. The doctor felt my stomach and then took some blood tests to find it. I had 3 ulcers at the time and supposably that's how I got it. I took several antibiotics for weeks and it cleared up... -
ARCHIVED New Here...is Gluten My Problem?
Jake'sMom87 replied to Jake'sMom87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just an update if anyone is curious. I got the results for my SED rate and ANA. ANA was negative and SED was 11 with a range of 0-20 so normal. My doctor suspects now that I may have Fabry Disease. I had not heard of this one so I googled it and bam sounds like it could be true. So I go next week to have my petechiae reviewed and possibly the blood tests... -
ARCHIVED New Here...is Gluten My Problem?
Jake'sMom87 replied to Jake'sMom87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED New Here...is Gluten My Problem?
Jake'sMom87 replied to Jake'sMom87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi! Yes I've heard the same things about the TSH range, but how do I get my doctor to understand this? It's so frustrating. I'm miserable everyday and they won't look past the result falling within the normal range. That site is great! -
ARCHIVED New Here...is Gluten My Problem?
Jake'sMom87 replied to Jake'sMom87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's interesting. So you don't feel like that anymore? Are you gluten-free? Robin -
ARCHIVED Fatty Stools And Confusion
Jake'sMom87 replied to Macmuireadhaigh's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Can someone explains what constitutes a "fatty stool". My son has gray colored poop and it always sinks. I however have what I believe to normal color but mine float and always have. As far as the fatty part...how would I know? Sorry if that's TMI but it seems to be the norm here. -
ARCHIVED New Here...is Gluten My Problem?
Jake'sMom87 replied to Jake'sMom87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just saw my GP today. He didn't seem concerned with my eye, although most times it looks normal. When it looks larger is when I have pain with it which I wasn't having at the moment. He is testing me for vasculitis and inflammatory issues since I have petechiae. It's not what I wanted, but I'm happy if he wants to test away and let's get to the bottom of... -
ARCHIVED New Here...is Gluten My Problem?
Jake'sMom87 replied to Jake'sMom87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow...thank you so much for all the info. I need to write this stuff down because when I get to the doctor I like totally forget all my reasons for being there. It provokes so much anxiety in my. I keep telling me my mom to go back to the doctor but she said she's fine. Talking to you all has made me feel so much more calm about this whole situation. Answers... -
ARCHIVED New Here...is Gluten My Problem?
Jake'sMom87 replied to Jake'sMom87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have symptoms of both hypo and hyper. My mother has hypo but not very bad. She only went to the doctor for fatigue and weight gain and that's when they found it. She took herself off her medication because it was giving her heart palpitations. My folate is low and my ferritin level is 12 so I think that's low also even though it does fall within my doctor... -
ARCHIVED New Here...is Gluten My Problem?
Jake'sMom87 replied to Jake'sMom87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks again for your replies. I do feel like I have hypothyroid. I have the majority of those symptoms but I thought my Free T 4 was okay. I go back to GP on Monday because he had sent me to a dermatologist for my petechaie and she didn't know what was causing it. I asked her about vitamin deficiencies causing that since I do have deficiencies and she... -
ARCHIVED New Here...is Gluten My Problem?
Jake'sMom87 replied to Jake'sMom87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the advice I will see if I can get those checked, but do I just ask my regular doctor or is there someone else I should see? When I get the pass out feeling it starts by getting sweaty and then I just feel weak all over and it is sometimes accompanied by the feeling like I have to go to the bathroom. A lot like a panic attack although it's not... -
ARCHIVED New Here...is Gluten My Problem?
Jake'sMom87 replied to Jake'sMom87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Okay so I was able to access my most recent thyroid results. My TSH was 4.96 and my free T4 was 1.26 with a referrence range of 0.8-1.8. That is all that was checked. I really think I may have a thyroid problem, but my biggest concern recently is that I feel like I'm going to pass out. It can happen when I'm rest but is more likely to happen when I'm... -
ARCHIVED New Here...is Gluten My Problem?
Jake'sMom87 replied to Jake'sMom87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you both for your answers! I will get the testing done! I have thought that I have hypothyroid, and my doc actually had tested my TSH 3 times in the past 2 years and it went from 2.6 the first time and the last test which was a few months ago it was 4.96. The last time it was tested they also tested free T4 which I don't remember what is was but I will... -
ARCHIVED New Here...is Gluten My Problem?
Jake'sMom87 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi all! I'm new here and just looking for advice/opinions on my situation. I have been suffering many odds symptoms since I had my son 2.5 years ago. Since I was young I've suffered from anxiety, depression, fatigue, and gerd. After I had my son everything went downhill. I am constantly so tired and have zero energy to do anything at all. I also have: Headaches...