Jump to content

Lock

Advanced Members
 View Profile  See their activity

  • Posts

    47

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Lock

  1. Lock
    Giving up sugar at the same time you give up gluten will probably do wonders for you. You are right to see a connection between the two. What got me thinking I might have a wheat problem was going "low carb" and cutting out most breads and sugars of any kind. I had been in that Hell emilykay describes. I was on a huge sugar/gluten roller coaster. It got real...
  2. Lock
    I agree with you, with the positive biopsy and the DNA, it is case closed. Technically, I think it is three out of four, if you include the DNA. So if OP responds to the gluten free diet, then there is three out of the four. CeliacinSenegal, I've been told just being celiac can cause you to get a lot of parasites you normally wouldn't get. I'm sure that...
  3. Lock
    I think you are on the right track. I would be surprised if they don't give you a positive diagnosis for celiac. Although there are other conditions that can cause your symptoms. I'm interested in hearing the results of your "guts" investigation. It certainly is warranted. You've put up with extreme symptoms for long enough, and you are too young to go on...
  4. Lock
    Yes, all of those symptoms could be related to gluten, however, they might not be directly related, but rather indirectly related. It is possible that over the years gluten has done damage that might not be undone very easily. For example the heart burn. It may go away immediately on a total gluten-free diet, or it may not. If you have developed further...
  5. Lock
    I think you have nailed the problem. But you have been so good about being gluten free it might not be worth trying to go all gluten to be tested. The blood tests for antigens and the biopsy tests both need you to be on gluten to be accurate. However, you can get the DNA test at any time and do not need to be eating gluten. If I were in your situation...
  6. Lock
    Gravy I'd bet nearly always contains gluten. However, the eye pain is a little random, it may or may not be connected to your digestive problems. Besides gravy, are you trying to eat gluten free? Have you been checked for thyroid levels, and have you seen an eye doctor about the eye pain?
  7. Lock
    If you have celiac and your antigens are "burned out" you may test negative on the blood tests. Did the tests include total IgA? Also, I don't believe a colonoscopy will tell you anything one way or the other about celiac. They have to see the upper small intestine. I'm glad you have the appointment for further evaluation. I bet they will schedule you for...
  8. Lock
    Whether you get yourself and your son tested is up to whether you want to spend the money and go through the trouble but yes, the gluten sensitive/celiac genes are in your family and it is probably good for all of you that you are gluten free. For your 5 year old, from my perspective with my children now in their twenties, I no longer have any control over...
  9. Lock
    I can't really answer the thyroid question. But I wonder if you have researched all the micronutrients and make sure you are getting enough iodine and others. You say you eat natural meat. Does that mean organic? Grass fed? And do you eat only lean meat, or do you eat fat and organ meat? The fats and the organs are very dense with nutrients. Once your...
  10. Lock
    You can always have the genetic test. Being off gluten won't effect that at all. But I wish your doctor had drawn blood for the serum tests BEFORE you cut out the gluten. At this point, it doesn't seem worth going backward, but I agree with what the others said about cross contamination and dairy. When I first cut way back on gluten, I was not even trying...
  11. Lock
    1. How careful do you need to be. For true celiacs/NCGS you need to be 100% careful. You may feel better at 90% gluten elimination, but there are subtle ways damage can still occur. If your immune system detects ANY gliadin whatsoever, it could crank out the antibodies that attack your intestine or other organs. So the technically correct answer is if you...
  12. Lock
    Thank you! Now I will change gears and begin de-glutenizing my life. The kitchen? The grocery shopping? The lotions, creams, shampoos? The prescription pills? Eating out in restaurants? Talking to my family about cross-contamination? And on and on... this will be a full time project! From now on I will probably be posting in...
  13. Lock
    My decision... I'm going gluten free. I LOVE my doctor! I saw her yesterday and she told me that despite the negative blood test, she thinks that I am probably positive and that the test was a meaningless negative, and that while if positive the test is reliable, that's not so when it is negative. This proved to me that she understands about the specificity...
  14. Lock
    I know about bread and dairy soothing the stomach. For years, I would eat both those and it seemed the only thing that stopped my discomfort. Paradoxically I know now that I am sensitive to both wheat and cow's milk. I've read that sometimes the very things causing the problem can temporarily make you feel better. I can't remember the technical explanation...
  15. Lock
    All your symptoms are very familiar to me. I am in a similar situation. I need to decide whether to go gluten-free now or wait for conclusive testing. Reading all the posts on this forum I am concluding that they really need to come up with a better way to diagnose celiac. Making people stay on gluten is just cruel, especially reading about the children and...
  16. Lock
    Here are some reasons I can think of: With a positive diagnosis in your record, your doctor should follow you more closely for celiac related problems. The doctors of your family members will consider a celiac diagnosis more seriously in your loved ones if you have a positive diagnosis. For some it is easier to remain on a gluten free diet. For...
  17. Lock
    The same thing happened to me. I went on a "no carb" diet for about four months, and got the blood test. It is negative but my genetic test put me in the highest risk category for celiac disease and my EnteroLab stool tests are positive. I almost feel like the blood test was a waste of time.
  18. Lock
    If it were me, I would go through with the endoscopy IF I trusted the GI doctor to be very thorough and to use the latest techniques to find any villous damage, if the damage exists. If the doctor is not up to speed with diagnosing celiac then a negative result will only confuse you more. But if he is very good, a negative result will assure you that your...
  19. Lock
        I think you should definitely be assertive about being referred to specialists. The eye popping out and inflamed behind it is the thyroid being hyper. It can swing hyper and hypo in the process of failing. The blood levels on any one day are meaningless and can have nothing to do with how you are feeling. My mom's thyroid was "in normal...
  20. Lock
        Hmmm.... I had this all separated out in paragraphs. I must be doing something wrong with my settings.
  21. Lock
    I had mysterious swelling in my case it was usually my left leg. I also had joint pain and ANA that was positive, then later negative, then my rheumy said that may have been a false negative. He treated me with plaquenil among other things. I eventually stopped the plaquenil for fear it might damage my eyes. I was never officially diagnosed with a collagen...
  22. Lock
    I totally know how you feel. Anxiety is a big part of my problem too. Right now I have not yet scheduled a biopsy and I need to decide whether to start eating a lot more gluten or just not have the biopsy. I really want a positive result, strange as that seems, if it were to be negative I will feel like I've lost my ammunition to get my sick family members...
  23. Lock
    Thank you so much for your responses. I already feel better knowing I'm not alone. There seem to be a lot of confused people coming here for help. I feel guilty for feeding my children wheat all their childhoods, having no idea what was going on with their health problems. I can remember both of them having daily stomach pain and the pediatrician telling...
  24. Lock
    I am new on the board and this is my first post. My regular doctor (my PCP) and another doctor at a holistic clinic, have both just told me to go 100% gluten free, but I have not been officially diagnosed with Celiac. I have not had an intestinal biopsy and my dilemma is: Should I go gluten free now like they say, or should I pursue a diagnosis? Four...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.