mamafish

None I know of that are really reliable (there is some stool testing for fat content that can be done, but we found that really hit or miss - someone else here might have a better idea about possible tests). My 10yo's poop has started floating again, even on the fat digestion enzymes, which is one reason we've just gone gluten-free even with negative celiac...

We've had all of those (I have one kiddo on the spectrum, one NT). Definitely all possible food intolerance symptoms. Gluten's the most likely culprit, so I'd try taking that out first and watching the symptoms - but know that if they don't get better, gluten might still be a problem, just not the only one (the other biggies for intolerance are dairy, corn...

It's been a while since we were last gluten-free, but I used gluten-free oats buzzed in the blender for meatballs and stuff where I just needed the absorbency. For things like gluten-free homemade chicken nuggets, where crunch matters, I crushed up potato chips.

Have you had your thyroid antibodies checked? Joint pain can be a symptom of Hashimoto's for some, and it often co-occurs with celiac. (Also, for some people with thyroid issues, soy can aggravate things).

Day 2 gluten-free. Snack... Little fresh mozzarella balls, rolled in olive oil and balsamic vinegar, add 1/2 a dehydrated cherry tomato (we have these ridiculously sweet orange ones), top with a bit of basil. I think fancy people use a toothpick and stuff, but I'm just eating them. So freaking good. It might end up dinner, too. (Okay, probably not because...

I'm dealing with something similar. Very low ferritin, although not quite anemic yet. Also low vitD and a bone density scan showing osteopenia at 43. I have some thyroid antibodies as well - not enough to be Hashi's yet, but definitely not zero, either. And all celiac bloodwork was negative (but it runs in my family). At this point, I've opted to go...

Clearing out crap is definitely a possibility. I don't drink a ton of water usually, so maybe my body is trying to tell me something . Nothing processed yet, and we eat plenty of salt regularly, so I don't think it's anything like that. It was just a curiosity, and definitely hasn't abated yet! We shall see.

We just went gluten-free yesterday, and I've been watching my kiddos with interest. But the first thing I'm noticing is in me. I'm way thirstier than normal. Is that just a strange anomaly, or have other people noticed this? (I'm not diagnosed celiac, this is an experiment to see if it impacts all the other numbers that are apparently out of whack...

It totally is . One that makes me feel much better to eat, and seemed optional for my kiddo. I think it really varies person to person.

Yup, we ran everything we could. tTG was negative, but IgA was low normal for both me and my daughter. Waiting on the IgG-DGP now. Couldn't get EMA done, unfortunately. We'll be trialing gluten-free no matter what the tests say, but I wanted to run them first where we could.

I'm 43. I'll race you to the weights .

You're biopsy-confirmed celiac and she's got overwhelmingly positive antibodies? I'd take that as pretty conclusive. The good news is, if you can get this autoimmune disease quieted, maybe she *won't* get some of those nasty things she carries genes for (we have that problem in my family too). Gluten-free isn't easy, but I'd way prefer it to a lot of...

Sadly he's in research. I'd happily get on a plane to go see him otherwise ;-P. But he was hugely helpful in walking me through how I might sort out celiac likelihood before I am sick enough to test positive. Like he said, if other things in your body are going awry, get a baseline. If going off gluten fixes them... someday that will get people an official...

My story with grain-free/paleo... I think it *really* depends on the person. We have tried several different approaches all trying to figure out the best diet for my son. I went through a lot of them with him because I nursed him for 3 years. We've also tried some different things since then. End result, he does very well grain free, so long as he...

Yup, from what I've read and the opinions of docs presenting at celiac/endo conferences, the blood tests have a big false negative rate for people with silent/latent/potential/early celiac. One doc explained it to me like this. It's kind of like cancer - they used to detect it at stage III/IV, when patients were already really sick/affected. Now they can...