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tarnalberry

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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by tarnalberry

  1. adding to what Connie said: both calcium and the b-vits can help with cramping. they helped mine.
  2. My statement came from a combination of two things: One was a letter someone posted from Dr. Fine responding to the issue of not publishing any of his results. I'm afraid I don't remember exactly what he said, but it left me with the impression of an arrogant man who couldn't be bothered to talk to anyone who would have the audacity to ask a question...
  3. I'm also skeptical of Enterolab, dewey. While I understand why people choose to use them, and completely and totally agree that improvement on a gluten-free diet is the true answer to the matter, Dr. Fine's refusal to have his work peer-reviewed and share the results and methods with other doctor's causes suspision in my mind. He may be doing it to monopolize...
  4. One other possible reason (this coming from a self-diagnosed celiac who isn't going back on gluten for a real diagnosis any time soon): Some medications may have gluten right? Particularly generics, I would guess. But your insurance company may not cover a gluten-free alternative to a medication unless there is PROOF that you CANNOT take the particular...
  5. I'm a self-admitted food snob, and avoid most prepackaged foods, so this list may or may not work for you... All the same meats (turkey, beef, pork, chicken, fish) and fruits and vegetables (the list is endless!) I used to eat, pretty much cooked how I always have cooked them (grilled, stir-fried, baked, stewed, broiled). Rice (brown, wild, white) ...
  6. Oh, sorry about the confusion (I've been sick and my brain no function well :-) ). I meant that I'm taking testosterone to get my levels back up to normal. It's a compounded, sublingual form because the compounded cream I tried just wasn't very effective for me. (My test results started at <0.2 (undetectable) and are now at 0.7 - smack in the middle...
  7. Yep, I have low testosterone. I don't know if it was the celiac, the pill, or other factors. But I take a supplement and have noticed a difference.
  8. Depending on your other symptoms, you may try convincing your doctor to test your testosterone levels. Many of the symptoms overlap, and just because you're young, it doesn't mean you can't have low levels. I think celiac may contribute to it - if it's affecting your thyroid, and if you've been on the birth control pill, that could lower your levels as...
  9. I thnk it would work, but haven't tried it myself. Last Thanksgiving, I made rice stuffing (a wild rice/brown rice mix, with onions and mushrooms) for the "stuffing". There are a lot of rice-based stuffing recipes (that are naturally gluten free) out there that I'm sure the family would love.
  10. he should definitely wait until AFTER his test to start a gluten-free diet. otherwise, the test may return a false result. as for the diet itself... it gets much easier after a while. well, I think it does, but I tend to cook from scratch and don't buy prepackaged items. (no, I don't spend hours in the kitchen :-) ) this site (celiac.com) has a lot...
  11. Yep, it's made a difference for me as well. I mean, if you've got something causing your immune system to act up, you may well end up getting more histamine in your system (as it's part of the inflammatory response as well).
  12. One option is to just cook larger portions and put some of it in the freezer. (My mother-in-law, not gluten-free, does this every weekend.)
  13. well, I guess you could call it inconclusive, but until you can otherwise verify that she's not celiac, you can't call it a false positive. celiac is NOT an IgE mediated response (from my understanding it can also cause an IgE response due to inflammation, but that's not the primary mechanism) (that's a "classic" allergy), and if he didn't do a total IgA...
  14. If you notice a difference with shoes, do try to get in to see a podiatrist and be evaluated. The feet are where everything else ends (so to speak) and a misalignment there can cause problems up the rest of your body. In PT, they'll often do a combination of heat to warm the joint, exercises, massage or manipulation, e-stim (the use of current through the...
  15. Is it my dumb luck, or living in California - land of the fruits and nuts? My GP did the blood work for me (a good panel), and when only one test (and not the tTg) came back slightly positive, she suggested I do a dietary challenge, and has accepted my verbal report of my results to her. My gyn specialist accepted it at face value as well, but he's gotten...
  16. Yep. The right SI joint would "stick" causing the left one to be put into an odd angle that hurt like the dickens. (My orthopaedist, good doctor though he is, didn't notice this, but the PT he sent me to did.) As a separate issue, I also have tailbone pain, because of an enlarged joint "two up from the bottom", as it were. Since doing the PT, I've seen...
  17. I'm 25, and it was about three years ago that the doc didn't want to test me, even though I was probably low then as well. It's probably worth checking to see if saliva testing is as accurate as a blood test before having it done; I really don't remember. I haven't had a problem finding supplemental testosterone, but I do have to have it made at a compounding...
  18. One thought is that if you were having depression like issues before going gluten-free, simply changing your diet may not be enough to stop that pattern. (And if it makes you feel any better, try looking up "dysthymia" - it's a very mild, but longer-term form of depression that usually doesn't actively interfere with life, just makes it not as happy as it...
  19. And here I was, a female with celiac and low testosterone, thinking that the article might talk about low testosterone in both genders, not just testosterone conversion! (Oh, wait, am I being bitter about the lack of attention given to various women's heath issues?!? ;-) (Seriously, I had a doctor tell me I couldn't have low levels because of my young age...
  20. I haven't seen too many that were NOT gluten-free.... Hmm... I have gotten ones from Trader Joe's and Wild Oats, but that's just because I haven't shopped at a Ralphs(Kroger), Vons (Safeway), or Pavillions in months due to the strike... As the other person said, ingredients are usually just corn and lime (sometimes a bit of salt...), so if your store is...
  21. We've got Outback and PF Changs and Wendys, though I haven't seen a Chick-Fil-A down here in Orange County (south of LA). But there are all kinds of health food stores. (Californians are health nuts... sometimes.) Whole Foods, Mother's Market, Trader Joe's, Wild Oats, and the plethora of heath food stores will keep you well stocked, and some basics can...
  22. No, it is an older form of wheat, and is NOT gluten-free.
  23. It's a derivative from the cell wall of a bacteria. It adds "stickiness" and "structure" to bread in a similar (but not identical) way that gluten does, so that the bread can hold itself together.
  24. I think your responsibility - and your rights - are rather limited. Yes, you are married; yes, you have kids. But he is his own person in his own body and has control over it alone. While I don't have a good reason to believe that my husband has celiac (though I'd find it nice if he'd get tested just to put my worry-wart mind at east), he has a family...
  25. Their website discusses why they include the label about possible milk contamination - and the bars that are wrapped in their own plant which are completely free of milk.
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