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YankeeDB

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Latest Celiac Disease News & Research:

Everything posted by YankeeDB

  1. YankeeDB
    Crissy (beautiful picture btw!), I think your instincts are right on and doctors sometimes make blanket statements that are wrong. Everyone is wrong sometimes! Trying the gluten-free diet may be your best bet; or, you could consult another gi doctor after inquiring to find one that seems more open/more knowledgable. Good luck to you and your little...
  2. YankeeDB
    Hi Emsmom, I suggest going to your local library and looking for general books on Celiac Disease and cookbooks on gluten-free diets. There are lots of good ones! Also, this site and many others have excellent info for you; it may seem overwhelming at first but it gets easier. The diet is NOT as restrictive as it may seem at first as you can find...
  3. YankeeDB
    Ker, to get research done, your best bet is to find a pulmonologist (who deals with narcolepsy) and a gastroenterologist (who deals with celiac disease) who is well-established in getting research grants! This combination doesn't sound too likely, but you never know. Perhaps a large university research center would have two specialists willing to collaborate...
  4. YankeeDB
    Soy lecithin is gluten free, from what I've read. Some people may have a soy sensitivity, however. I have the Clan Thompson database on my pocket PC and highly recommend it!
  5. YankeeDB
    I had a B12 deficiency and it was through that that I discovered the link with possible celiac disease and was tested for it. B12 can be due to pernicious anemia (lack of intrinsic factor), pancreatic insufficiecy, dietary restrictions (relevant especially for vegetarians), intestinal resection, or malabsorption (particularly Celiac Disease).
  6. YankeeDB
    I've read that coconut oil does not digest in a manner similar to other fats so, Heather, you might want to look into that. You can buy it on the internet. It is a medium-chain triglyceride that does not need to be broken down like other fats and it is high in calories. Just a thought. Best wishes!
  7. YankeeDB
    This is 9:30am to noon April 3 at Mercy SmartHealth Outpatient Center, 1000 Higbee Drive, Bethel Park, PA. Co-sponsored with the Greater Pittsburgh Celiac Group. Free. Registration: 1-800-232-5660.
  8. YankeeDB
    I'm wondering if things other than gluten can cause the same reaction. Here is a quote from the Enterolab web site about their yeast, eggs, and dairy tests:
  9. YankeeDB
    Josephine, I HAVE read that other food sensitivities can cause fatigue so you might want to look into this. Also, I wonder if a carnitine deficiency might be an issue here. Never give up--keep researching. There is always a new avenue to consider. It sounds like you are taking the best possible care of yourself--good for you!
  10. YankeeDB
    Josephine, have you considered other food sensitivities as the source of your ongoing fatigue? What about thyroid testing? Just a couple of thoughts.
  11. YankeeDB
    Debmidge, which anti-depressants did he try? Also, have you looked into light therapy? Is talk therapy a possibility? Depression is SO treatable, it is a shame to suffer from this with all the knowledge and approaches we have now.
  12. YankeeDB
    Every Enterolab report I've read about here anecdoctally says the person was gluten-sensitive. Maybe this is because the negative people never bother to post again. Just wondering...anyone know of a test that came back negative from them?
  13. YankeeDB
    Warpspeed, I suggest you call your doctor's office and talk to them about pre-test diet. My thinking is that if you still have such terrible symptoms and they arise from intestinal damage that such damage will be apparent when they endoscope you regardless of any short-term changes you might make now to try to influence the test. Just my very amateur $...
  14. YankeeDB
    Hi Tasha, That is the test I had and my value was 97. Since going gluten-free, my bowel symptoms are gone; I'm still fighting the fatigue, however, after 2 months. Here are links with more info about the test: Open Original Shared Link Open Original Shared Link
  15. YankeeDB
    Are you saying you now have constipation which is opposite from before or the other way around? If you are constipated, adding fiber should help you. Look into fiber supplements. I especially like FOS as it is supposedly a "prebiotic" in that it encourages helpful bacteria in the intestine. Good luck!
  16. YankeeDB
    Cheese and yogurt? Maybe a dairy problem? Beef cubes might be suspect. Lick any stamps or envelopes? Kiss any gluten-eaters?
  17. YankeeDB
    Hi Eating4Life! I've heard that Outback Steakhouse and P.F. Chang's restaurants have gluten-free menu items. I've eaten out a few times and used a "celiac card" to have the waitperson show the chef about what I can/can't eat. Generally, the fancier the restaurant, the more accommodating they are. In less resplendent places, baked potatoes are nearly...
  18. YankeeDB

    ARCHIVED Fasting

    YankeeDB replied to YankeeDB's topic in Coping with Celiac Disease

    Karina, my understanding (and I hope others will correct me if I am wrong) is that none of the blood tests are considered definitive for Celiac Disease. Only a biopsy of the small intestine will do that. However, many doctors believe that positive results on the blood tests are sufficient for the patient to try a gluten-free diet and if that helps symptoms...
  19. YankeeDB

    ARCHIVED Do You Recommend Biopsy?

    YankeeDB replied to lauradawn's topic in Doctors

    Warpspeed, I'd suggest talking to her doctor(s) and also re-evaluating her diet for hidden sources of gluten. Medications often use wheat as a filler so check those out very closely (pharmacy can usually research these for you). Also look at OTC drugs she may be using. Consider stamps and envelopes (wheat paste) and communion wafers. In essence, you have...
  20. YankeeDB
    laughs8, interesting about the Medipro mix! I'll definitely look into that. I also have foot pain so our symptoms sound rather similar. Did you use the Medipro in addition to regular meals or in place of? Even LaChoy soy sauce (claimed to be gluten free) seems to be bothering me but I'm not sure yet.....
  21. YankeeDB

    ARCHIVED Insomnia

    YankeeDB replied to willow's topic in Related Issues & Disorders

    I'm sure this is obvious but I'll mention these things anyway just for completeness: my insomnia improved when I limited my caffeine intact to 2 drinks before 1 pm and got at least 10 minutes of exercise that day. Also, I limit alcohol consumption to about 1 or 2 glasses of wine per week and never on consecutive nights. Even so, I can usually count on worse...
  22. YankeeDB
    I'm beginning to suspect that other food intolerances besides gluten can be a factor in fatigue. Perhaps poor disgestion allows other chemical to impact us in ways that make us tired. I.e., the body is working SO hard to try to metabolize all this stuff. I've started keeping a detailed food diary with ratings of various things (energy level, sleep quality...
  23. YankeeDB
    seeking_wholeness, you raise some fascinating questions! I can't help seeing the parallels with alcoholism. Indeed, some consider gluten an addictive substance! I wonder if the al-anon techniques would have a bearing here to some degree. On a different track, I think there are ways and there are ways of getting someone to change their behavior....
  24. YankeeDB
    My thoughts are to find a good GI that you trust and follow his/her advice. If you feel that your doctor isn't helping, find another one--you are the customer and you are in charge of your own health. Meanwhile, do your homework reading reliable sources (preferably those that aren't trying to sell you something). Those bumps you have may be DH or something...
  25. YankeeDB
    ...Krispy Kreme has a gluten-free doughnut ...every food vending machine carries gluten-free-labelled snack bars ...at McD's they ask "do you want gluten with that?" ...Home Depot carries gluten-free envelopes ..."gluten accident" is listed on your timesheet as a reason you took a sick day ...gluten containing bulk bin items are on...
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