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RMJ

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Everything posted by RMJ

  1. RMJ
    What brands do you use for: Chicken (fresh only): I assume by fresh you mean raw, that you then cook. I just check to be sure there are no flavorings added (unusual but I’ve seen it in frozen raw chicken). Eggs: Any that are still in the shell. Rice: Lundberg (certified gluten free) Fruits: Anything fresh. Just give them a wash, which I...
  2. RMJ
    I haven’t been for a while but I had no trouble in Paris. I had a book “Paris sans gluten.” I found one published in 2025: Paris sans gluten
  3. RMJ
    What is the normal range for the TTG IgA at that lab. Different labs use different units. A positive TTG IgA and villous blunting with intramucosal lymphocytes certainly sounds like celiac disease. Sorry that’s probably not what you wanted to hear.
  4. RMJ
    Hopefully @cristiana will see this question, as she also lives in the UK.
  5. RMJ
    Here is some information on disaccharide (i.e., sucrose, maltose) intolerance. Disaccharide intolerance
  6. RMJ
    I would not eat it. Some people are more sensitive to small amounts of gluten than others. Until you know how sensitive you are It is probably best to be extra careful. Is this a crustless pizza? I looked on the Papa Murphy website, clicked on nutrition and filtered by “avoid gluten”. The only pizzas that it said were gluten free were crustless sli...
  7. RMJ
    Welcome to the forum! Did your doctors run any tests for low thyroid? I don’t see any in what you have posted. Hypothyroidism can cause chills.
  8. RMJ
    This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
  9. RMJ
    If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.
  10. RMJ
    They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means. However, the way the result is presented does look like it is below the limit of what their test can measure, so that is good.
  11. RMJ
    I agree with @trents, they should have run a total IgA. What was the normal range for the DGP IgA test? Different labs use different units thus have different normal ranges.
  12. RMJ
    Your total IgA is normal. This test is run because if you are deficient in IgA the celiac specific IgA tests might not be valid (might not detect celiac disease). Hopefully some of those other tubes of blood will include other tests for celiac antibodies which might include Tissue transglutaminase (TTG) IgA and IgG, Deamidated gliadin (DGP) IgA and IgG,...
  13. RMJ
    I agree with @trents that the IgA you listed sounds like a total IgA, not celiac-specific, if 114 is normal. Were any other antibody tests run?
  14. RMJ
    So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1. Genetic testing. Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With...
  15. RMJ
    The normal ranges can vary for the tissue transglutaminase and gliadin antibody celiac tests because the units aren’t absolute. Could you please tell us what the normal ranges are for the laboratory used? If her tissue transglutaminase results are 10-fold above the normal range some would diagnose her on that alone. Endomysial antibody ranges are m...
  16. RMJ
    Is there any xanthan gum in your recipes? I find that it can have a funny aftertaste, depending on the brand used, I like this one xanthan gum. I also have not had much success just substituting gluten free flour into my old recipes. I’ve had much better success using recipes from the company that makes the gluten free flour I’m using. I can now mak...
  17. RMJ
    Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result.
  18. RMJ
    I’m glad you have a clear answer. Some endoscopes have enough magnification for the doctor to see the damage during the procedure.
  19. RMJ
    This is not standard when looking for celiac disease. Is it CT enterography? That type of CT can be used when looking for Crohn’s disease or IBD. CT will see more of the small intestine than can be seen during an endoscopy, as well as the large intestine.
  20. RMJ
    It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
  21. RMJ
    I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and g...
  22. RMJ
    I think Tierra Farms is a gluten free facility, at least that is what it says on the bag of walnuts that I have.
  23. RMJ
    I’m so glad they listened to your concerns! I hope you get some answers from the MRI.
  24. RMJ
    I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
  25. RMJ
    I wasn’t clear, glucagon and gadolinium were intravenous. I drank about 5 cups of the prep during 45 minutes. I feel very tired now, probably partly because I was nervous, and partly because I had to fast for 6 hours beforehand and wasn’t very hungry when I got home.
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