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RMJ

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Everything posted by RMJ

  1. RMJ
    If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.
  2. RMJ
    They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means. However, the way the result is presented does look like it is below the limit of what their test can measure, so that is good.
  3. RMJ
    I agree with @trents, they should have run a total IgA. What was the normal range for the DGP IgA test? Different labs use different units thus have different normal ranges.
  4. RMJ
    Your total IgA is normal. This test is run because if you are deficient in IgA the celiac specific IgA tests might not be valid (might not detect celiac disease). Hopefully some of those other tubes of blood will include other tests for celiac antibodies which might include Tissue transglutaminase (TTG) IgA and IgG, Deamidated gliadin (DGP) IgA and IgG,...
  5. RMJ
    I agree with @trents that the IgA you listed sounds like a total IgA, not celiac-specific, if 114 is normal. Were any other antibody tests run?
  6. RMJ
    So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1. Genetic testing. Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With...
  7. RMJ
    The normal ranges can vary for the tissue transglutaminase and gliadin antibody celiac tests because the units aren’t absolute. Could you please tell us what the normal ranges are for the laboratory used? If her tissue transglutaminase results are 10-fold above the normal range some would diagnose her on that alone. Endomysial antibody ranges are m...
  8. RMJ
    Is there any xanthan gum in your recipes? I find that it can have a funny aftertaste, depending on the brand used, I like this one xanthan gum. I also have not had much success just substituting gluten free flour into my old recipes. I’ve had much better success using recipes from the company that makes the gluten free flour I’m using. I can now mak...
  9. RMJ
    Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result.
  10. RMJ
    I’m glad you have a clear answer. Some endoscopes have enough magnification for the doctor to see the damage during the procedure.
  11. RMJ
    This is not standard when looking for celiac disease. Is it CT enterography? That type of CT can be used when looking for Crohn’s disease or IBD. CT will see more of the small intestine than can be seen during an endoscopy, as well as the large intestine.
  12. RMJ
    It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
  13. RMJ
    I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and g...
  14. RMJ
    I think Tierra Farms is a gluten free facility, at least that is what it says on the bag of walnuts that I have.
  15. RMJ
    I’m so glad they listened to your concerns! I hope you get some answers from the MRI.
  16. RMJ
    I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
  17. RMJ
    I wasn’t clear, glucagon and gadolinium were intravenous. I drank about 5 cups of the prep during 45 minutes. I feel very tired now, probably partly because I was nervous, and partly because I had to fast for 6 hours beforehand and wasn’t very hungry when I got home.
  18. RMJ
    The solution I had to drink contained sorbitol and mannitol. I was in the MRI, lying on my back, for about 40 minutes. I was given glucagon partway through, and a gadolinium contrast agent. After I got home there was some diarrhea from the prep solution.
  19. RMJ
    I’m having this type of MRI this afternoon, What specifically do you want to know? From what I’ve read, not all facilities use the same drink prep.
  20. RMJ
    A much better suggestion than that of the new doctor!
  21. RMJ
    Not only is the doctor being ridiculous, having her make herself ill so he can re-diagnose her already diagnosed celiac disease, but one week of gluten, while able to cause GI symptoms, might not be enough to cause new damage visible with a biopsy. So if she follows his advice he might say she doesn’t have celiac disease! She needs a different doctor. ...
  22. RMJ
    The incidence of autoimmune diseases in general, including celiac disease, has increased. There are various theories as to why. The environment we live in, diet we eat, toxins we’re exposed to, stress levels, activity levels and infectious diseases to which we are exposed are all quite different now. A robust immune system that would have been an advantage t...
  23. RMJ
    Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before. I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
  24. RMJ
    It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
  25. RMJ
    It can take longer than 6 months for antibodies to drop to the normal range, My DGP IgA took a few years as I got stricter and stricter about being gluten free But having symptoms again could also mean you’re getting some gluten in your diet.
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