Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

RMJ

Advanced Members
 View Profile  See their activity

  • Posts

    1,543

  • Joined

  • Last visited

  • Days Won

    49

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    The test result will never be shown as zero because the most negative the result can be reported as is less than the lowest amount the test can detect. For example, you might see <2. What is the normal range for your daughter’s test? Antibodies can hang around in the body for a while. Even if her result is not yet in the normal range, going from m...
  2. RMJ
    @Wends Thank you for your thoughts. I am going to go to a different GI in September (first available appointment) who will hopefully give me more guidance than my current GI, who has given me none. I would call my antibody levels super sensitive, but not symptoms. Eating purity protocol certified gluten free oats does not affect my antibody levels. ...
  3. RMJ
    I’m frustrated with celiac disease and my current gastroenterologist (GI). I’ve been gluten free for almost 13 years, with normal antibodies for almost 8 years - except for one excursion of my DGP IgA 5 years ago which returned to normal when I changed brands of gluten free flour. All 4 celiac antibodies were positive 13 years ago but I didn’t h...
  4. RMJ
    Celiac testing often includes looking at total IgA levels, because if someone is deficient the IgA tests for celiac disease may not be accurate (false negatives). Did her doctors say anything about how much gluten she should consume? If you change that it could affect her next test results.
  5. RMJ
    Can the rest of your household eat the food with gluten instead of getting rid of it? Can you create one shelf, or partial shelf, for your new food in the pantry, in the fridge and in the cabinets as a start? My husband is not gluten free so we each have a cabinet, and separate shelves in the fridge. If we have to share space the gluten free foods...
  6. RMJ
    Dixonpete, I thought of you when I saw this article, although it may not have anything new for you. Worm inspired treatments inch towards the clinic
  7. RMJ
    I can’t imagine eating 4-6 slices of bread per day, either. You just need wheat, it doesn’t have to be bread and it doesn’t have to whole wheat. If a piece of cake or a doughnut is about the same size as a slice of bread it’s probably roughly equivalent. Or you could do what Trents suggests and just buy powdered gluten. Gliadin X can help by “digest...
  8. RMJ
    Damage with silent celiac exists. I am a silent celiac. I was tested because I have the gene predisposing to celiac disease and migraines. All of my antibodies were high (TTG IgA, TTG IgG, DGP IgA, DGP IGG, EMA). I had a biopsy which showed damage. After going gluten free I felt better overall and have more energy. Unfortunately it didn’t help the migraines. ...
  9. RMJ
    I had an endoscopy where there was no visible damage but biopsies showed damage. I even asked beforehand if the endoscope had good enough magnification to see the villi! I hope you get a clear answer from the biopsies.
  10. RMJ
    Antibodies to Deamidated gliadin peptides. It is another celiac antibody test. The main test is the one you had, TTG, But a full panel will also include DGP IgA and IgG. I was positive on all of them!
  11. RMJ
    Sometimes it can take a long time for antibodies to get into the normal range. My TTG IgA was normal after a year, but just barely and it bounced in and out of normal range for a few years. It took five years to get the DGP IgA normal. You may want to reevaluate your gluten free diet. I started by not eating anything with gluten ingredients. All antibodies...
  12. RMJ
    Yes, it would make sense to go mostly gluten free, since it gives your troubles.
  13. RMJ
    Yay for the normal biopsy! Thanks for the follow up. Were you eating gluten prior to the endoscopy?
  14. RMJ
    I don’t know how common it is, but it happens. Total IgA going up is not necessarily celiac related. The body can make IgA antibodies against all sort of things. But if I understand correctly that until recently you haven’t had a celiac blood test since diagnosis, how do you know that your recent blood tests are a mild rise, vs never going down to ...
  15. RMJ
    Do you have any other results from either of the two labs where you’ve been tested recently? If so, are the newest results from that lab elevated over previous results? It took me 5 years to get all of my antibodies into the normal range. Then 3 years later one went up into the positive range. I realized that I had started baking with a different b...
  16. RMJ
    In testing for celiac disease total IgA is run just to be sure you’re not deficient (in which case the TTG IgA results would not be reliable). Different labs may have slightly different normal ranges, but the units are usually the same and the results can be compared. In your case, what is meaningful for celiac disease is that you were not deficient in t...
  17. RMJ
    Comparing results with different units can be very difficult, or impossible. What are the normal ranges for each result?
  18. RMJ
    Not all of King Arthur’s gluten free flours and baking mixes are certified gluten free. This bread flour is not.
  19. RMJ
    Could you wear a mask at work to reduce your inhalation of flour?
  20. RMJ
    It took me 5 years to get one of my celiac antibodies down into the normal range. A few years later it went up to a low positive. I had started baking with a certain gluten free flour. When I switched to a certified gluten free flour the antibody level went back down to normal. Has anything changed in your diet, supplements, kitchen, etc. that might...
  21. RMJ
    I’ve had both but without salt. The Tierra Farm had a little more flavor, although the almonds were a bit smaller and maybe a tiny bit tougher.
  22. RMJ
    The way these tests are developed is they take a bunch of blood samples from people with active celiac disease, and a bunch of samples from people without celiac disease, and run them. Then they decide where to put the cutoff line for positive such that most samples are on the correct side of the line. So could it really be a low positive? Yes, although...
  23. RMJ
    Is there a minimum time since diagnosis of refractory celiac disease? I really hope I’m not eligible for your study, but looking for it is one reason my gastroenterologist suggested an endoscopy. I’m having it later this month, due to still having GI symptoms on a strict gluten free diet.
  24. RMJ
    I noticed that too! I emailed them to ask if this had always been the case and the labeling changed, or if the manufacturing had changed. Their answer unfortunately didn’t answer my question. The organization (GFFP) they use to certify only requires ONE test per product! Product must test less than 5ppm gluten, so that is good. I can’t tell from the...
  25. RMJ
    Maybe your followup is for the elevated total IgA, and not for celiac. It is strange not to have a numerical result for the tissue transglutaminase. I hope you get answers in the followup with your GP.
×
×
  • Create New...