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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by RMJ
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UK Member Looking For Help - Recent Test
RMJ replied to LeeRoy83's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Based on the units (g/L) and the normal range having both upper and lower limits, I would think this result is total IgA, not the celiac-specific tissue transglutaminase IgA. Is there another result for that? -
any advice would be helpful
RMJ replied to Jane07's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Were the two tests done by the same lab? Do the tests have the same normal ranges? Each test manufacturer uses their own system of units when reporting results. Have your results gone down at all since diagnosis? Are you sure you’re gluten free? Do you eat at restaurants? I would recommend that you take a really good look at your gluten free d... -
If your celiac antibody tests are still positive that may explain the ongoing symptoms. You might examine your diet and try to get those tests in the normal range before doing something like an MRI or CT scan. It took me almost six years to get all of my antibody tests in the normal range. At first I thought I was eating gluten free by avoiding wheat...
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How frustrating! The Endomysium antibody result is usually given as a titer, 1:5, or 1:10, or 1:20. This indicates how far the serum can be diluted and still give a positive result. It could be going down but the way they show the results you can’t tell. If you click on the “view trends” button on an electronic version of the results does it show any a...
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Global Food Gluten Free Certification
RMJ replied to cvernon's topic in Gluten-Free Foods, Products, Shopping & Medications
Wow. Thanks for following up on this. Paperwork and one test? I used to think that gluten free certification meant something. -
Global Food Gluten Free Certification
RMJ replied to cvernon's topic in Gluten-Free Foods, Products, Shopping & Medications
That is strange. Other pages talk about testing. The one thing I like about GFCO is that the handbook for their certification process is available on their website. I may not agree with the whole process, especially the reduced testing, but at least I can see what the process is. I wish the other certifying organizations would publish their processes... -
Contaminated cooking oils
RMJ replied to Jsingh's topic in Gluten-Free Foods, Products, Shopping & Medications
GFCO does not require testing of each lot, so the “periodic laboratory analyses” fits their requirements. They say testing is done by certified bodies. I’m not sure what that means for an Italian company. The GFCO requirement is less than 10 ppm. Other gluten-free certifying companies may use other limits. -
Contaminated cooking oils
RMJ replied to Jsingh's topic in Gluten-Free Foods, Products, Shopping & Medications
From their email: “rely on analyses that confirm gluten is not detected” This means that they do testing. -
Contaminated cooking oils
RMJ replied to Jsingh's topic in Gluten-Free Foods, Products, Shopping & Medications
The GFCO handbook for the certification process requires testing, at least at first. After a certain number of gluten free batches they can reduce testing. So something doesn’t make sense here. Maybe oil is difficult to test and they made an exception? If so, they should be clear about that. Could it be that they test it at some other stage, rather t... -
3 years with Celiac, now I appear fine.
RMJ replied to Sharke's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Did you have any celiac antibody blood tests? Or just the gastroscopy/biopsy? -
Being present in same room as gluten pasta cooking
RMJ replied to LKMatchett's topic in Super Sensitive People
Good idea! We don’t have a range hood/exhaust fan so I didn’t think of that. -
Being present in same room as gluten pasta cooking
RMJ replied to LKMatchett's topic in Super Sensitive People
Scientist here: Actual steam shouldn’t contain gluten - the gluten molecule is too large and heavy. In distillation the larger/heavier molecules stay with the liquid. However a quick google search shows plenty of people who say they react when pasta is cooked. Vigorously boiling pasta water could also create droplets that are larger than steam droplets t... -
Importance/Necessity of a gluten-free kitchen??
RMJ replied to RShisler's topic in Parents, Friends and Loved Ones of Celiacs
Soap, water and scrubbing won’t “kill” gluten, but it will physically remove it if done well if you also add a thorough rinse step. -
I’ve been to restaurants for lunch with people from work and not eaten anything. One time I just had a bowl of white rice. The restaurant didn’t care and nobody made any nasty comments. It took some bravery on my part to do that but it turned out fine. I just tell people I’m there for their company, which is more important to me than the food.
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I am also asymptomatic. Not everyone with celiac disease reacts the same way to the same amount of gluten, so it is impossible to say for you whether or not such small traces of gluten would be safe. I am tested for tTG-IgA and DGP IgA and IgG annually. My DGP IgA went up once when I was using a certain brand of supposedly gluten free flour, it went...
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Global Food Gluten Free Certification
RMJ replied to cvernon's topic in Gluten-Free Foods, Products, Shopping & Medications
Great investigation! -
Global Food Gluten Free Certification
RMJ replied to cvernon's topic in Gluten-Free Foods, Products, Shopping & Medications
The only good part I see in their response is the gluten free facility. -
What might this EMA result mean?
RMJ replied to Toaster's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
g/L, a weight per volume unit, would be a very unusual unit for a celiac specific (EMA) test. 1.24 g/L would be in the normal range if this was a TOTAL IgA test. Best to ask the doctor. -
A year and a half of test confusion...
RMJ replied to JA917's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Have you considered eating plenty of gluten from now until your capsule endoscopy? If you truly have celiac disease that would increase the chances of damage being seen. -
Vitamin K is also thought to help bone health, although not all scientific studies agree.
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I’ve been taking oral alendronate for 4 years. I haven’t had any doctors be concerned about it. My dentist recommended against the related iv medications because of potential adverse effects on the bones in the jaw - osteonecrosis. Supposedly rare side effect but he had seen it several times. I originally had the same concern as @trents - slowing res...
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Contaminated cooking oils
RMJ replied to Jsingh's topic in Gluten-Free Foods, Products, Shopping & Medications
You can search here for certified gluten free olive oil GFCO productfinder