Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

RMJ

Advanced Members
 View Profile  See their activity

  • Posts

    1,550

  • Joined

  • Last visited

  • Days Won

    49

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Here is an update from Gluten Free Watchdog, indicating that the high results on at least one item may be false positive. I am a scientist and used to develop ELISAs, the type of test used. Non-specific binding such as is described can be a real problem with these tests, so this is a scientifically reasonable explanation. possibly false positive
  2. RMJ
    Per this article it is possible. Look under “Etiology.” Intestinal lymphangiectasia
  3. RMJ
    I hope you can find the help you need. Have you stopped eating oats and dairy?
  4. RMJ
    What sort of management and treatment are you looking for? The only treatment is a gluten free diet. You may get better support on this forum than from any doctor. My celiac specialist likes to see me once a year but just orders antibody tests and sent me to a dietician when I requested that.
  5. RMJ
    I’m not sure what you mean about using Mayo Clinic’s guidelines to put your TTG IgA as a weak positive. Results should be compared to the standard range of the lab doing the test, because different labs use different units. So per Quest, your TTG IgA is negative and IgG is positive and fairly high. It is great that your doctor ordered the full pan...
  6. RMJ
    Some blood tests are very specific for celiac disease. Without more information on exactly what blood test was run it is difficult to say what yours could indicate. I haven’t seen the terminology “level” used in describing celiac blood test results before. Were you seeing a dermatologist for a rash? Were they looking for dermatitis herpetiformis, whic...
  7. RMJ
    For an accurate diagnosis you should continue to eat gluten until you have the endoscopy. How long have you been gluten free?
  8. RMJ
    You need to go completely gluten free in order to heal your intestines.
  9. RMJ
    Yeast extract and natural flavors might contain gluten, depending on how the yeast is grown and how the flavors are made. Some recommend that if these ingredients are present the food should only be used by someone with celiac if it is also labeled gluten free.
  10. RMJ
    Welcome! People with celiac disease differ greatly in their sensitivity to gluten contamination. I’m super sensitive. I couldn’t get my antibody levels down to the normal range until almost all gluten free processed foods I ate were certified gluten free. I definitely avoid ”may contain” and am wary of “made in a factory…”. That last statement isn...
  11. RMJ
    Would an article like this help? If so I can look for more. Case of coeliac disease presenting in the psychiatry ward
  12. RMJ
    I get mine from Nuts.com. If I copied the link correctly, this should take you to their certified gluten free selections: Certified gluten free nuts
  13. RMJ
    It would be very interesting to know how the duplicate samples were prepared, and how close the numbers were. If genuine duplicates with hot spots, I’d expect the two numbers could be quite different.
  14. RMJ
    I’m not sure what you mean by “blood work shows a growth deficiency.” I hope you get some answers at the Monday appointment.
  15. RMJ
    My initial TTG IgA was 110 with a normal range of 19 or less. My DGP IgA was 143 with the same range. I had an endoscopy after being on a gluten free diet for 3-1/2 years (delay unrelated to celiac) when my TTG IgA was down to 3 (normal) and DGP IgA down to 29 (high) and I still had Marsh 3A damage.
  16. RMJ
    Has your daughter had repeat antibody tests? If so, are they in the normal range or still elevated?
  17. RMJ
    The units used to report celiac antibody results can be quite different from lab to lab because they are not absolute weight/volume measurements. Even within a lab they can change. The lab where I’ve had celiac tests done has used tests with normal ranges of 0-19, then 0-3, and now 0-4.99. What is the normal range for normal for your test? Also, ...
  18. RMJ
    I think you have a good hematologist and a good gastroenterologist! With positive antibody results, positive visual results of the endoscopy (scalloping), some microscopic pathology results (increased epithelial lymphocytes), another autoimmune disease (Hashimoto’s) and a first degree relative (son) with celiac disease, it is VERY likely that your h...
  19. RMJ
    Thanks for the update! It’s great that they did have the more detailed descriptions and lot numbers, and provided a revised certificate. However, if they had a decent Quality department, the original certificate never would have been issued. It’s hard for me to believe that they’re ISO 17025 certified with that poor a certificate.
  20. RMJ
    LabCorp doesn’t seem to offer that test anymore, but they certainly don’t mention celiac disease in your quote. As discussed above, the antibody tests for celiac disease will likely give a false negative if you’ve not been eating gluten.
  21. RMJ
    Or it could be a test like the one described here, which is NOT a test for celiac disease. The one described here has the same normal range which the original poster listed. IgG gluten test That’s a good reason to get tested! Do you know what laboratory performed your IgG gluten test? Maybe we can figure out what type of test it really w...
  22. RMJ
    I’m not sure what an “IgG Gluten” test is, could you give the full name so we can evaluate if it is a standard test for celiac disease? If it is: If you have the genetics to allow celiac disease, other autoimmune problems, some family history, a positive antibody test, and feel better gluten free, why put yourself through the torture of a gluten chall...
  23. RMJ
    We’ll just have to disagree then. When I think of food allergies I think of anaphylaxis and epipens, and I don’t mind using an inaccurate term if it will keep me safer from being served food contaminated with gluten.
  24. RMJ
    To add to what @trents wrote, sometimes using the term “allergy” can help at restaurants, even though celiac disease is NOT an allergy scientifically and medically speaking!
  25. RMJ
    Too many errors from HRI. Vanilla cookies listed on certificate of analysis when chocolate chip was provided for testing, item descriptions not detailed enough (for example: can’t tell what type of King Arthur gluten-free flour was tested), telling you they used a test that canNOT give the quantitative results they reported, and not all items on certificate o...
×
×
  • Create New...