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RMJ

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Everything posted by RMJ

  1. RMJ
    Yes, it can take a while for them to come down to normal, but they should at least be decreasing. It took me 6 years to get all of my antibody levels into the normal range. The TTG-IgA was really stubborn. Have your levels come down at all? Were the tests run by the same lab? Results from different labs can’t be compared easily.
  2. RMJ
    I would just wash the clothes. To be extra careful you could wash them separately from other clothes and do an extra rinse, although probably not necessary. Can you just gently hose off the whole boot? Or wipe with a wet rag? I would worry about how to get them dry if you get them too wet. Exposing to the elements will NOT remove or destroy gluten.
  3. RMJ
    Celiac tests can look at either IgA and IgG antibodies. If she is IgA deficient she should have the IgG tests. Can you post the full names of the tests that she has had? Sometimes only the IgA tests are run.
  4. RMJ
    Welcome to the forum! Yes, with those results your doctor should diagnose you with celiac disease. I’m glad your doctor thought to test for it and glad you’re already feeling better!
  5. RMJ
    I was going to say basically the same thing as trents. Perhaps she has developed an intolerance to another food.
  6. RMJ
    I wonder if your request actually went to the doctor or was just denied by other staff. Perhaps some references to scientific articles would help to make your point: Gluten induced cognitive impairment (brain fog) in coeliac disease Cognitive impairment in celiac disease… Celiac Disease and Neurological Manifestations: From Gluten t...
  7. RMJ
    Reading your other posts, some anxiety about your situation sounds reasonable! It’s just gotten away from you. Your recognizing that it is a cycle is a great first step to breaking that cycle. Can you perhaps talk to a therapist to help with that? Possibly even get some anti-anxiety or antidepressant medication to help just until you’ve gotten out of ...
  8. RMJ
    Monk fruit is considered a “high intensity sweetener” by the FDA and is not required to be listed as a sugar in the nutrition facts. Monk fruit sweetener is often mixed with erythritol, which is a sugar alcohol. Erythritol is only required to be listed in the nutrition facts if the labeling includes a statement about its health effects. Manufacturers may...
  9. RMJ
    I don’t remember how long the sedation lasted but there was no discomfort afterwards. If I ever need another I won’t be worried about the procedure at all!
  10. RMJ
    That is for the nutrition facts label which is separate from the ingredient list. I tried to make that clear in each of my posts. I give up.
  11. RMJ
    I don’t disagree that sugar alcohols can cause digestive problems, or that Americans eat too much sugar/sweeteners. I just disagree with the labeling (mis)information. Maybe it’s different in Germany where the Sabine Hassenfelder is from, but I don’t find anything in FDA laws or regulations exempting sugar alcohols from the ingredient lists of foods...
  12. RMJ
    I think sugar alcohols have to be listed on the ingredient portion of a food label. They do NOT have to be included on the Nutrition Facts portion of the label unless certain claims are made about the food.
  13. RMJ
    Have the GI specialists found blood in your stool? An endoscopy can’t see the whole small intestine. Sometimes doctors will use a capsule (basically a tiny camera that you swallow) to look at the whole small intestine. Lack of red blood cells can either be from bleeding, something destroying the red blood cells, or the body not making red blood cells. ...
  14. RMJ
    The 9/21/23 tests include two celiac antibody tests which would be affected by a gluten free diet, and a total IgA test which is in the normal range (good!). (If the total IgA had been too low then different celiac tests might have been necessary).
  15. RMJ
    Yes, the first two would be affected by a gluten free diet (deamidated gliadin and t-Transglutaminase). “Negative” is a strange result for total IgA (Immunoglobulin A, Qn, serum). Was there a number and a range? This looks like total IgA which is tested to be sure the other IgA tests are valid.
  16. RMJ
    In the EMA test the patient’s serum is diluted and added to a microscope slide with a certain type of tissue. If there are a lot of antibodies in the serum it can be diluted a lot and still give a positive result. For example, a 1:160 dilution would mean more antibodies in the sample than a 1:20 dilution. Has your daughter continued to eat gluten a...
  17. RMJ
    A reaction to or damage from gluten will be related to the dose. So one time contamination from a tiny stain on a plate will be a tiny, tiny dose of gluten and shouldn’t cause much, if any damage. Many people with celiac disease can handle the amount of gluten in a small crumb or two of bread. If the dishwasher cycle couldn’t remove the material it ...
  18. RMJ
    Were you eating gluten prior to the testing? From your previous posts it looks like you try to be gluten free.
  19. RMJ
    Damage cannot always be seen visually. It depends on the magnification of the endoscope. That is why biopsies are taken.
  20. RMJ
    Spicely makes certified gluten free spices!
  21. RMJ
    Based on the normal ranges, it looks like the four sets of results were performed by three different labs, so different test manufacturers. Numbers can’t be compared unless they are from the same manufacturer’s test because the units are not absolute (weight/volume) but set by each manufacturer. Your numbers that can be evaluated have gone down bet...
  22. RMJ
    My celiac antibody tests have been ordered by doctors in the same Gastroenterology department in the same health system for 12 years. The TTG-IgA test has had three different normal ranges in that time! Original normal range 0-19 units Next normal range 0-3 units New normal range 0.00 to 4.99 FL units The DGP tests have only...
  23. RMJ
    As has been answered in your other posts, unless you’ve had additional serology testing (deamidated gliadin peptide antibodies, IgA and IgG) you did not have a full celiac antibody panel. Without these additional tests it is not correct to say you have negative serology.
  24. RMJ
    They fix and stain the samples so it takes a few days to get results (or weeks if they’re really slow).
  25. RMJ
    Someone did a great job testing you - doing the IgG tests because your IgA was low. I hope you get a definitive answer from the endoscopy! Damage to villi can’t always be seen during the endoscopy - it depends on the magnification of the endoscope. So if the doctor says he didn’t see any damage don’t lose hope for a diagnosis, the histopathology on th...
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