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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    If your tissue transglutaminase antibodies normalize after 6-12 months on a strict gluten free diet that would be another indication supporting a diagnosis of celiac disease.
  2. RMJ
    It is unusual not to have numbers, but that doesn’t mean it is wrong! I’m glad you’ll be seeing a GI. Please be sure that the GI knows you are gluten free. Antibody levels go down when a patient is gluten free. We’ve heard plenty of stories on the forum of someone being tested or retested for celiac disease when gluten free and being told they don’t have ...
  3. RMJ
    Next time you buy dog food you might look for some without wheat or barley. I also handle dog food and treats a lot and did this just so I wouldn’t have to worry about that source of gluten. There are a lot of grain free foods out there, and some that only use rice or corn as the carbohydrate.
  4. RMJ
    I think 236.17 is a total IgA result, not a tissue transglutaminase IgA result. 84.5-499 is a reasonable range for total IgA. Tissue transglutaminase IgA results do not have weight per volume (milligrams per deciliter i.e. mg/dL) units. There was another forum member recently whose results were laid out in a very confusing manner on the printout and it...
  5. RMJ
    I don’t think the lactose would be different enough to eliminate lactose intolerance problems. There are different physical options (for example, how fine the powder is) and it is available with or without a water molecule attached to the lactose molecule. There are some pantaparazole formulations without lactose, or perhaps your doctor could prescribe a...
  6. RMJ
    My deamidated gliadin peptide IgA was 143, with a normal range up to 19. Not quite as high as yours, but still high. I’m not sure if this is exactly the same test as yours. Gliadin IgA is an older test, but some labs write that when it is the deamidated gliadin peptide test. High numbers on celiac antibody tests don’t always correlate with severe intestinal dam...
  7. RMJ
    Bob’s Red Mill recommends 1/2 teaspoon xanthan gum per cup of flour for muffins. Your flour mix has 50% more than that.
  8. RMJ
    IF you decide to go gluten free now, you could repeat the celiac antibody test after being gluten free for 6 months to see if the antibody levels decline. However, you must be tested at the same lab that did the original test. Results from different labs usually can’t be compared.
  9. RMJ
    Even if you were to have a negative biopsy, you don’t need a doctor’s permission to try a gluten free diet! (after all testing is complete, of course).
  10. RMJ
    Some researchers are working on it, but currently there is no medically accepted way to test for celiac right now without eating gluten.
  11. RMJ
    This link allows you to look for foods/ingredients certified gluten free by this organization. They are not the only organization that does these certifications however. Product finder
  12. RMJ
    If you have been gluten free for several months, celiac disease is harder to diagnose, because if you had it the healing process will have started.
  13. RMJ
    The recommendation is two slices of wheat bread per day to get enough gluten for the tests to be accurate. That could be a sandwich at one meal, and for the rest of their foods you could try gluten free options to see what they like/dislike.
  14. RMJ
    Maybe stay on gluten for now, and make sure they get to eat plenty of their favorite foods with gluten since they likely will need to go gluten free later?
  15. RMJ
    Congratulations! You’re doing the gluten free diet right!
  16. RMJ
    Immunoglogulin A is total IgA, and only run as a control to make sure you’re not deficient in IgA. If you were, the other IgA tests might not be accurate. So you were only checked for one celiac-specific antibody. I was checked for 4 and they all were positive. Deamidated gliadin peptide IgA is the one that took years to normalize.
  17. RMJ
    I never had the initial endoscopy for reasons unrelated to celiac. I have a bleeding disorder and need to take medication prior to biopsies. I had a hematologist who didn’t believe I could have celiac without digestive symptoms and she wouldn’t prescribe the medication. My endoscopy was after I had a new hematologist and needed a colonoscopy anyway. It ...
  18. RMJ
    Whether the doctor can see celiac damage or not during the endoscopy mainly depends on the magnification available with their endoscope. My doctor was at a university with fancy equipment so she could see the villi. Many doctors don’t have access to such equipment.
  19. RMJ
    While some people with celiac disease have very slow recovery of villi on a gluten free diet, some people do heal nicely. Looks like you are one of those. You certainly know that you should avoid gluten, since eliminating it led to healing of your villi. Most people with celiac disease have a certain genetic pattern, but there is a small percentage...
  20. RMJ
    In addition to seeing if your symptoms go away on a gluten free diet, as Scott recommended, you can see if your antibody levels go down.
  21. RMJ
    I am sorry you are having such an upheaval in your life. I hope you can find peace by leaving the emotionally abusive situation. This map shows restaurants/hospitals/senior living facilities that have been well-trained in gluten free procedures. Unfortunately, there aren’t many of them. In my state the only things that show up are two restaurant c...
  22. RMJ
    It sounds like you know what you plan to do. Sometimes endoscopy results (if positive) can help to convince OTHER people that your child needs to be gluten free. But that may not be a good enough reason to put your child through it.
  23. RMJ
    You’re correct, washing your hands with soap and water should remove any gluten you may have picked up by touching the counter!
  24. RMJ
    I am quite sensitive but share a kitchen. My husband and I have separate food prep areas. We have separate dishes because we don’t have a dishwasher and when my husband washes dishes I can see residue on them. If we had a dishwasher I’d share dishes. We have separate shelves in cupboards, refrigerator and freezer. Mine are above his so not...
  25. RMJ
    I’m so glad you’re feeling better!
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