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RMJ

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Everything posted by RMJ

  1. RMJ
    There is this list, although it hasn’t been updated since 2019. Gluten Free Drugs You can also search for the drug on this NIH website: Daily Med Enter the name or NDC# of the drug, click the search symbol (magnifying glass), then scroll down to Ingredients and Appearance. If you have the drug already the container should have the NDC# ...
  2. RMJ
    It looks like you have two tests that indicate celiac disease. One does not need to have all of the tests positive in order to have it.
  3. RMJ
    How great that you want your friend to have a healthy living environment! To answer your specific questions: Oven: I’m assuming this oven does NOT have a fan in it. Unless there is dry wheat or rye flour loose in the oven it should not be a problem sharing at separate times. If cooking at the same time it should even be ok if the gluten free i...
  4. RMJ
    I don’t know anything about My Spice Sage, but spices at Spicely.com are certified gluten free and you can order online from them or via Amazon.
  5. RMJ
    I wouldn’t always call it a pattern of negligence. I had trouble with flours from a very well respected company that is frequently recommended by those with celiac disease.
  6. RMJ
    I know you said it wasn’t a question, but as an asymptomatic celiac I can give an answer. I don’t know if I’ve been glutened unless it is a prolonged exposure that shows up in increased antibody levels at my yearly checkup. Therefore I have to be extra careful.
  7. RMJ
    That sounds like a biopsy of the stomach. Are there any biopsy results for the duodenum?
  8. RMJ
    King Arthur’s gluten free flours (Measure for Measure and All Purpose) are fortified with iron and some B vitamins.
  9. RMJ
    You can eat while others are eating as long as they’re not distributing crumbs all over the table. My husband is not gluten free and often eats meals containing gluten at the same table where I’m eating my gluten free meal. A simple brush down of crumbs and hand wash should be fine as long as your food is on a plate or similar and not touching the act...
  10. RMJ
    My Ttg level normalized in a year but took me 6 years to get my DGP IgA level down to the normal range. I thought I was eating gluten free but to be in the normal range, if I eat processed foods they have to be certified gluten free. If your result was reported as >250, who knows how high it really was! You’ve gotten it down a lot and your symptoms h...
  11. RMJ
    Before even considering an endoscopy the next step would be a full panel of blood tests for celiac antibodies. TTG IgA and IgG, DGP IgA and IgG, and total IgA (a control to ensure other IgA tests are valid). Some doctors will diagnose based on these tests alone.
  12. RMJ
    I saw one after a few years because I couldn’t get my DGP IgA down to normal range. I got some suggestions that didn’t help, and finally figured it out on my own.
  13. RMJ
    It is very normal to take one or more biopsies, even if the doctor didn’t see anything suspicious with the endoscope.
  14. RMJ
    If you mean the toothpaste tube that should be fine. If actual toothpaste hit the floor I wouldn’t use that bit of paste whether I had celiac disease or not!
  15. RMJ
    As long as the top of the inside of the microwave is clean you should be fine.
  16. RMJ
    The units of measure for this test are not absolute. Each lab uses different units for this test so one has to go by the lab range. An example of what I mean by different units: Imagine someone is measuring length, and one person says something is three bananas long, and another says the same thing is six oranges long.
  17. RMJ
    Yes!
  18. RMJ
    I found that sleeping with a pillow under my knee helped a lot.
  19. RMJ
    You might look up meralgia paresthetica to see if it describes your thigh symptoms. I used to have it, due to a nerve being compressed, and it was worse at night when I was lying flat on my back.
  20. RMJ
    Perhaps your doctor used the term “allergy” because most people understand that better than “celiac disease”? Inflammation in the duodenum plus a positive tissue transglutaminase does sound like celiac disease. Were you told to go gluten free?
  21. RMJ
    The extremely simplified explanation of the biopsy: the only abnormal finding was a mild increase in a type of white blood cells within the layer of cells lining the first part of the small intestine. Hope that helps! This abnormality is typically seen in celiac disease. It is a bit unusual that this is the only thing that was seen, especially...
  22. RMJ
    Your original post said your blood test wasn’t terribly high, but a 46.2 with a reference normal range of <20.0 is a definite positive!
  23. RMJ
    I was not able to get an endoscopy and biopsy when my antibody levels first showed celiac disease. My doctor put “abnormal celiac antibody panel” as my diagnosis. I eventually did get an endoscopy and even after 4 years trying to be gluten free there was some damage and I got the official celiac disease diagnosis.
  24. RMJ
    Some doctors are just very resistant to giving a diagnosis of celiac disease! Hopefully your villi will have healed after two years on a gluten free diet. If this were my doctor I would want to know in advance how she would interpret the results, either with healthy or flattened villi.
  25. RMJ
    The test she had was total IgA (determined by the units and range). In addition to the deamidated gliadin antibody tests that Trents mentioned, she should have TTG (tissue transglutaminase) IgA and IgG tests.
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