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RMJ

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Everything posted by RMJ

  1. RMJ
    I’m not sure I’d agree with this phrase from the paper (in the section on intestinal autoantibodies): IF biopsy specimens were only processed to look at IgA deposits, it could be a problem, but I don’t think that is routine. Most celiac biopsy specimens are stained with dyes (for example H&E - hematoxylin and eosin - which are what give speci...
  2. RMJ
    It’s a little unusual to have the TTG IgA positive but not confirmed by the EMA. They look at the same antigen in different ways. There’s no way to guess what the endoscopy will show. I had an endoscopy 4 years after trying to go gluten free. My TTG was negative, but the DGP IgA was 29 (normal 0-19). I still had damage. I hope you get a clearcut res...
  3. RMJ
    That is odd - there should be numbers and a reference range. Here is a link to a sample report on the LabCorp website. Someone isn’t giving out the full information. LabCorp sample report
  4. RMJ
    One of the exclusion criteria for the clinical trial was being positive for HLA-DQ8 (DQA1*03, DQB1*0302) Does that mean the drug isn’t expected to work in these patients? Interesting. Open Original Shared Link More information: Open Original Shared Link
  5. RMJ
    I found this on the Anokion website:
  6. RMJ
    Unfortunately the answer is maybe. If the Quest test is positive, it would give you your answer. If negative, it might be because your antibody levels had declined once gluten was removed. It took years for my antibody levels to all normalize, but some people recover much, much faster.
  7. RMJ
    A vaccine booster challenges the immune system with a protein that the body hasn’t seen for a while, with the purpose of increasing antibodies. I envision eating gluten in the same way. Since I don’t want my autoimmune antibodies increased, I would never knowingly eat gluten-containing foods.
  8. RMJ
    Antibodies don’t disappear instantly when you stop ingesting gluten. 250 to 150 in five months is a wonderful decrease and in line with what scientists call the half life of an antibody. How high was your TTG when diagnosed? Has it been going down steadily?
  9. RMJ
    Some doctors just will not give an official celiac diagnosis without the endoscopy. Luckily, you can treat yourself with a gluten free diet without it! Due to reasons unrelated to celiac disease, I could not get an endoscopy right away. My official diagnosis was “abnormal celiac antibody panel.” As time went on my gastroenterologist considered me to be ...
  10. RMJ
    You say you’re really trying to watch the gluten, but you just posted on another thread that you eat the toppings off of a gluten-containing pizza crust. You clearly need to be much more careful about gluten contamination.
  11. RMJ
    That is NOT a good idea if you have celiac disease. There will be a lot of gluten contamination of the toppings.
  12. RMJ
    Smooth stainless steel should be fine, as should your oven. Just give them all a good cleaning.
  13. RMJ
    Some doctors have endoscopes with better magnification than others. If your doctor didn’t have one with excellent magnification, the duodenum could have looked healthy, but biopsies still show celiac disease under the microscope. That is why biopsies are performed.
  14. RMJ
    I hope you get a definitive answer from your biopsies!
  15. RMJ
    I agree, the “jelly” is probably mucus. The large intestine can put out copious quantities of mucus if it is especially irritated. Nausea is the only celiac digestive symptom that I had.
  16. RMJ
    Trents, a slice of bread has a lot less gluten than 25 grams! It only has a few grams of protein per slice, I looked at a few labels online and a slice has approximately 2-4 grams of protein. So two slices of bread would be 4-8 grams of protein. Assuming all of the protein is gluten, 4-8 grams gluten per day should be plenty.
  17. RMJ
    I’m glad it had an easy explanation! That makes sense, crying,breathing hard, breathing out more CO2, leading to a lower level.
  18. RMJ
    This link has some information. Why was it tested? It isn’t a routine test. Carbon dioxide in blood
  19. RMJ
    I’m very glad to hear your wife is doing better with prednisone, even if the doctors don’t have a clear diagnosis. Thanks for the update!
  20. RMJ
    It took 6 years for one of my celiac antibodies (DGP IgA) to come down into the normal range. At first I just read labels and if purchasing processed foods avoided those with gluten-containing ingredients. Antibody levels were lower but still high. Then I switched to processed foods actually labeled gluten free. Antibody levels still lower, but still...
  21. RMJ
    Ingredients are listed at the bottom of page 1. Paxlovid labeling
  22. RMJ
    I can see how crumbs on a doll could be a worry. I know enough to wash my hands after touching something that may have had gluten on it. Would your niece be willing to wash her hands every time she was done playing with the doll, before she might put her fingers in her mouth? Does she ever kiss her doll? One of my celiac antibodies didn’t return t...
  23. RMJ
    You’ve had the 5 standard blood tests for celiac (TTG IgA and IgG, DGP IgA and IgG, and EMA (Endomysial Antibody). You don’t have to have all five positive to have celiac disease. Some people are only positive on one, so your results are normal. Eating gluten once in a meal if one has celiac disease is a definite concern. Think of it as a booster sho...
  24. RMJ
    This is the only paper I can find about your question. In this case there were stressful events within a year of celiac disease onset, mean 5.5 +/- 4.1 months. Life Events and the Onset of Celiac Disease Any such research would have to be purely observational, looking backwards from the time of diagnosis - it would obviously be unethical to try...
  25. RMJ
    The endomysial antigen test is very specific for celiac disease. They make serial two-fold dilutions of serum - 1:5, 1:10, 1:20, 1:40, 1:80, etc. Then they apply the serum to a microscope slide that has a type of tissue on it that includes the endomysial antigen. Celiac antibodies bind to the antigen. They then wash and add another solution that enables...
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