Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

RMJ

Advanced Members
 View Profile  See their activity

  • Posts

    1,550

  • Joined

  • Last visited

  • Days Won

    49

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Trents, a slice of bread has a lot less gluten than 25 grams! It only has a few grams of protein per slice, I looked at a few labels online and a slice has approximately 2-4 grams of protein. So two slices of bread would be 4-8 grams of protein. Assuming all of the protein is gluten, 4-8 grams gluten per day should be plenty.
  2. RMJ
    I’m glad it had an easy explanation! That makes sense, crying,breathing hard, breathing out more CO2, leading to a lower level.
  3. RMJ
    This link has some information. Why was it tested? It isn’t a routine test. Carbon dioxide in blood
  4. RMJ
    I’m very glad to hear your wife is doing better with prednisone, even if the doctors don’t have a clear diagnosis. Thanks for the update!
  5. RMJ
    It took 6 years for one of my celiac antibodies (DGP IgA) to come down into the normal range. At first I just read labels and if purchasing processed foods avoided those with gluten-containing ingredients. Antibody levels were lower but still high. Then I switched to processed foods actually labeled gluten free. Antibody levels still lower, but still...
  6. RMJ
    Ingredients are listed at the bottom of page 1. Paxlovid labeling
  7. RMJ
    I can see how crumbs on a doll could be a worry. I know enough to wash my hands after touching something that may have had gluten on it. Would your niece be willing to wash her hands every time she was done playing with the doll, before she might put her fingers in her mouth? Does she ever kiss her doll? One of my celiac antibodies didn’t return t...
  8. RMJ
    You’ve had the 5 standard blood tests for celiac (TTG IgA and IgG, DGP IgA and IgG, and EMA (Endomysial Antibody). You don’t have to have all five positive to have celiac disease. Some people are only positive on one, so your results are normal. Eating gluten once in a meal if one has celiac disease is a definite concern. Think of it as a booster sho...
  9. RMJ
    This is the only paper I can find about your question. In this case there were stressful events within a year of celiac disease onset, mean 5.5 +/- 4.1 months. Life Events and the Onset of Celiac Disease Any such research would have to be purely observational, looking backwards from the time of diagnosis - it would obviously be unethical to try...
  10. RMJ
    The endomysial antigen test is very specific for celiac disease. They make serial two-fold dilutions of serum - 1:5, 1:10, 1:20, 1:40, 1:80, etc. Then they apply the serum to a microscope slide that has a type of tissue on it that includes the endomysial antigen. Celiac antibodies bind to the antigen. They then wash and add another solution that enables...
  11. RMJ
    Were your husband’s, sister’s and your tests run at the same lab? One can only compare tests made by the same manufacturer because the units for these tests are arbitrary, not absolute. That said, if at the same lab, I wouldn’t call<2 and 2 different. If the exact same sample is run multiple times the results can easily be a little different each ...
  12. RMJ
    I don’t know, but there is a DH forum as part of celiac.com - you might ask there. DH forum
  13. RMJ
    Since you have a referral to a dermatologist, I would ask him to do a skin biopsy for dermatitis herpetiformis.
  14. RMJ
    I don’t think there is a “usual” for Phase 3 length. There are a lot of factors that can affect how fast subjects can be enrolled: number of clinical sites, prevalence of disease in the population, how hard the investigators (doctors) work to enroll patients, how strict the inclusion/exclusion criteria are, etc. My guess is that enrollment really slowe...
  15. RMJ
    Translation: The observed benefit (improvement of symptoms) was very small. FDA requires statistically significant results. In order to see a statistically significant result for a small change, a lot of subjects are required. It looks like they will be analyzing the data to see if there is a subgroup of patients that the drug helps more. For...
  16. RMJ
    I worry about getting contaminated by something that contains gluten. I worry about eating something that might be contaminated with gluten. But I don’t worry about getting contaminated by something that might be contaminated with gluten. At that point I feel the risk, and the possible amount of gluten, would be extremely low.
  17. RMJ
    Gluten is in a lot of processed foods besides bread. I didn't eat much bread before my diagnosis but still got enough gluten for high antibody levels. Hopefully now that you have a diagnosis and will soon have iv nutrients you’ll start feeling better and will become less and less scared. We’re here to support you.
  18. RMJ
    If you WANT to have it in your medical record, to be really accurate you could say “abnormal celiac antibody test.” That is what was in my record prior to my endoscopy.
  19. RMJ
    I don’t think there’s any reason to believe one of the tests over the other, so that really leaves you with no answer! Perhaps your doctor would be willing to reorder that test, and add in the rest of the celiac panel? TTG IgA (repeat) TTG IgG DGP IgA DGP IgG
  20. RMJ
    I want to feed my dog gluten free dog chow, not for her health but to have less chance of gluten contamination for myself. I do not want to feed her grain free because there might be possible health issues with that. In case someone is interested, I have found two dog chows that include grains but do not include wheat, barley or rye in the ingredient...
  21. RMJ
    In the US it is unusual to have a result of zero. Very low results are usually listed as less than some number (for example, <2). I would at least ask the doctor for a printout of the results.
  22. RMJ
    No, antibodies cannot drop that fast. Something about this is strange. Was the test run by the same lab? Was it the TTG IgA test both times? There are other blood tests for celiac antibodies - did the doctor order a different one?
  23. RMJ
    After two years of normal antibody results I had a low positive DGP IgA result. I decided it was either from an antibiotic that I took, or from gluten free (but not certified) flours that I was using. The antibiotic was short term, and I switched to certified gluten free flour, and it went back down to normal.
  24. RMJ
    FYI - Zea mays is corn, so Zea mays starch is corn starch.
  25. RMJ
    With all four positive it’s very likely celiac. Be sure to feed him all of his favorite gluten-rich foods between now and his endoscopy. You don’t want the damage to heal before the endoscopy by going gluten free too soon, plus he’ll probably be gluten free afterwards.
×
×
  • Create New...