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RMJ

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Everything posted by RMJ

  1. RMJ
    Finally found the guideline I was thinking of for when it is ok to diagnose children without a biopsy, it is from the UK: Open Original Shared Link Similar European guideline: Open Original Shared Link Not everyone agrees with them: Open Original Shared Link
  2. RMJ
    I don't know abut the IgA level, but I can say that you don't need to worry about the Hematology department phone being answered as a Cancer center. I see a hematologist because I have a bleeding disorder (totally unrelated to celiac). Hematology and Oncology are grouped together as specialties. It seems that most hematologists are also oncologists, but...
  3. RMJ
    I think it would be unlikely to have a lab error on all of the tests, the EMA is run in a completely different way than the others. There are some guidelines for diagnosing children without biopsy if a number of the blood tests are really high - but I can't find the guideline right now, and don't remember the age of children where this is used, or how high...
  4. RMJ
    Could you get help from the nutritionist to calculate how many calories you are eating per day? From your description it doesn't sound like many calories, although it would depend on serving sizes. (I sympathize, my BMI is lower than yours. The only way I can gain weight is to eat when I'm not hungry, and eat plenty of peanut butter).
  5. RMJ
    Cocoa does not naturally contain gluten but some companies process it on shared equipment. Ghirardelli now processes their cocoa on shared equipment and the container says it may contain wheat. Hershey's cocoa and all Scharffenberger chocolate is gluten free per Hershey website. Nestle Tollhouse baking cocoa is made in a facility that also processes wheat...
  6. RMJ
    I was diagnosed with celiac because of migraines, not digestive symptoms, although I have had minor nausea/stomach pain on and off for years. I've been gluten free for about 1.5 years. Last weekend I visited my father, and he insists on eating out. I questioned the servers, and didn't have anything with gluten ingredients, but there was a chance of contamination...
  7. RMJ
    Is the rash on exposed skin or skin that is covered with clothing? (In other words, is it from contact with something, or due to something you ingest (eat or breathe))? Could you wear a mask and long sleeves while working at Pizza Hut until you find a new job?
  8. RMJ
    Definitely a question for your doctors. I didn't have an endoscopy/biopsy because I have a bleeding disorder.
  9. RMJ
    In 2012 your body was making antibodies against itself - definitely not a good thing. After removing gluten from your diet, your body is no longer attacking itself. Sounds like a great reason to continue gluten-free. (I am in a similar situation. My GI doctor could not do a biopsy due to another health issue. The doctor handling the other issue was...
  10. RMJ
    There are no official standards for the tTG IgA antibodies, so each lab prepares their own and assigns their own arbitrary units. I posted more about this in a different thread. https://www.celiac.com/forums/topic/105883-comparing-results-with-difference-reference-ranges/
  11. RMJ
    I just substituted cornstarch for flour in my Grand Marnier Souffle recipe and it came out great! Grand Marnier Souffle with Creme Anglaise Souffle: 2 T butter 3 T cornstarch 1 cup milk 5 eggs, separated 1 cup sifted powdered sugar 1 t grated orange rind (optional) 1 t vanilla 1/3 to 1/2 cup Grand Marnier Preheat oven to 350 F. Prepare 1 or...
  12. RMJ
    When my husband and I were dating I made him a box of "bachelor chow". It was meant as a joke, but he ate it! To the OP, I think it is wonderful that you want to cook healthy foods for your wife.
  13. RMJ
    Antibody levels won't fluctuate large amounts in a day. Probably would take weeks. Having said that, if the same blood sample is tested twice it could easily give readings that are different by 5% or even more. Were all of the tests run by the same lab? A different lab could give very different numbers because they don't all use the same units.
  14. RMJ
    I made a Grand Marnier Souffle with Creme Anglaise for dessert last night. First time I've made it since going gluten free. I just substituted cornstarch for flour and it came out fine.
  15. RMJ
    I was tested for celiac because of migraines. I had positive antibody tests, but no endoscopy. I find that people are very supportive when I say that gluten gives me migraines. People understand headaches/migraines.
  16. RMJ
    Prothrombin time will be prolonged with a vitamin K deficiency. Looks like your doctor is trying to see how much of a problem your low vitamin k level is.
  17. RMJ
    If you just want to check your progress you could have the blood tests repeated. They may not be back to normal after only 6 months gluten free but they should be closer to normal.
  18. RMJ
    Those numbers look good. My TTG IgA was still above normal after 4 months. It was finally normal after a year, although my DGP IgA was still high after a year.
  19. RMJ
    If the company has a list of gluten free items but doesn't list this one, it might be made on shared equipment.
  20. RMJ
    I chose my primary care doctor based on the school she attended plus this description she gave of herself: "It is a joy and a privilege to partner with my patients in helping them achieve their best health possible. I enjoy long-term relationships with my patients. A good physician must combine empathy with good listening and communication skills and a...
  21. RMJ
    I think I got the link fixed. I must have changed it when fixing a spelling error.
  22. RMJ
    Here is a link to the full article in Clinical and Experimental Immunology: Open Original Shared Link
  23. RMJ
    Here is the URL for the full article (I'm not sure if it will be a clickable link or not - this is only my 2nd post here). Open Original Shared Link
  24. RMJ
    I've been lurking here for a while, but finally registered because I believe I can answer this question by explaining how such tests are developed. You may notice that the results are usually in U/mL, meaning units per milliliter. There are no official standards for the tTG or DGP IgA or IgG antibodies, so each lab prepares their own and assigns their own...
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