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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    I think your doctor is being ridiculous. I have blood tests done at a lab instead of through my doctor because it is cheaper - and my primary care doctor and GI specialist both accept them.
  2. RMJ
    Here's how I think about it. I was tested because of migraines. No GI issues. I didn't have a biopsy due to an unrelated medical reason. But my feeling is - I had a positive blood test that said my body was attacking itself (TTG IgA is an antibody against a normal protein). I was willing to go on a gluten free diet to keep my body from attacking itself...
  3. RMJ
    I was diagnosed with celiac because of migraines. I used to get them 1 to 3 times a month (for almost 30 years) but after being gluten free for a few months I started a nine month period without one. I hope that your migraines will show a similar response to the gluten free diet.
  4. RMJ
    IgA is a type of antibody, but just saying IgA doesn't say what "antigen" the antibody recognizes. IgA 202 is your total IgA level. This is checked because some people with celiac don't make much IgA - if that had been the case and the other IgA tests were negative, one couldn't say yes or no to celiac and then would have to test IgG antibodies. But yours...
  5. RMJ
    After being gluten free for a year my DGP IgA test was still positive, although lower (all of the other tests had returned to normal range). In some people it can take quite a while for the antibody levels to come down to the normal range.
  6. RMJ
    I'm not good at advocating for myself, but since no one else has replied yet I wanted to say, YES you are welcome to post here!
  7. RMJ
    With negative being 0-3, I was a 76 for TTG IgA.
  8. RMJ
    In FDA's search engine for inactive ingredients it only lists gluten, wheat and wheat starch as an inactive ingredient in tablets and capsules, not injectables. If you're getting a brand name (not generic) drug you can google the name plus "prescribing information" and you should be able to find the package insert (you may have to click on a button that...
  9. RMJ
    If the lab says <4 is antibody not detected then your result of 3 is great! Good job being gluten free.
  10. RMJ
    The Ttg AB IgA and IgA serum are reported in different units so the serum level being lower than the ttg level is not an issue.
  11. RMJ
    Are you eating gluten free oatmeal? Oats are often contaminated with wheat.
  12. RMJ
    In my 23andMe technical report for celiac for gene HLA-DQA1 they have SNP rs2187668 and say "We only report data on one subtype of HLA-DQ2. Of all the risky HLA-DQ subtypes, this subtype, called HLA-DQ2.5, is most often associated with Celiac Disease". Someone recently had a very nice post explaining how these are all related. DQA1 and DQ2.5 are not...
  13. RMJ
    Thanks for the report, I'll try to go tomorrow.
  14. RMJ
    Gottaski, please let us know how the Gluten Free party is, I haven't yet decided if I want to go or not.
  15. RMJ
    In case anyone is interested, I also asked Nestle about their Tollhouse cocoa: "Nestlé® Toll House® Baking Cocoa - Made in the same facility as products that contain gluten ingredients." I have tried Scharffen Berger cocoa - good but pricey.
  16. RMJ
    Just wondering why you feel Ghirardelli is ok? The label on their cocoa (my favorite) changed recently to "may contain wheat." I contacted them and they said it is now made by a "co-manufacturer" on shared equipment. I stopped using it and have been trying to convince myself that I like Hershey's cocoa.
  17. RMJ
    I'm very sensitive to many, but not all, adhesives. I once had huge oozing blisters from the adhesive tape used to apply a bandage after abdominal surgery (the nurses come quickly when you say something is oozing from under your bandage). I can handle silk tape and sheer bandaids. When I have blood drawn I remove the bandaid as soon as I am out of sight...
  18. RMJ
    Finally found the guideline I was thinking of for when it is ok to diagnose children without a biopsy, it is from the UK: Open Original Shared Link Similar European guideline: Open Original Shared Link Not everyone agrees with them: Open Original Shared Link
  19. RMJ
    I don't know abut the IgA level, but I can say that you don't need to worry about the Hematology department phone being answered as a Cancer center. I see a hematologist because I have a bleeding disorder (totally unrelated to celiac). Hematology and Oncology are grouped together as specialties. It seems that most hematologists are also oncologists, but...
  20. RMJ
    I think it would be unlikely to have a lab error on all of the tests, the EMA is run in a completely different way than the others. There are some guidelines for diagnosing children without biopsy if a number of the blood tests are really high - but I can't find the guideline right now, and don't remember the age of children where this is used, or how high...
  21. RMJ
    Could you get help from the nutritionist to calculate how many calories you are eating per day? From your description it doesn't sound like many calories, although it would depend on serving sizes. (I sympathize, my BMI is lower than yours. The only way I can gain weight is to eat when I'm not hungry, and eat plenty of peanut butter).
  22. RMJ
    Cocoa does not naturally contain gluten but some companies process it on shared equipment. Ghirardelli now processes their cocoa on shared equipment and the container says it may contain wheat. Hershey's cocoa and all Scharffenberger chocolate is gluten free per Hershey website. Nestle Tollhouse baking cocoa is made in a facility that also processes wheat...
  23. RMJ
    I was diagnosed with celiac because of migraines, not digestive symptoms, although I have had minor nausea/stomach pain on and off for years. I've been gluten free for about 1.5 years. Last weekend I visited my father, and he insists on eating out. I questioned the servers, and didn't have anything with gluten ingredients, but there was a chance of contamination...
  24. RMJ
    Is the rash on exposed skin or skin that is covered with clothing? (In other words, is it from contact with something, or due to something you ingest (eat or breathe))? Could you wear a mask and long sleeves while working at Pizza Hut until you find a new job?
  25. RMJ
    Definitely a question for your doctors. I didn't have an endoscopy/biopsy because I have a bleeding disorder.
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