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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    I do feel good on this diet. Little stomach issues that my doctor discounted, or that I blamed on something else, have gone away. I use Hershey's cocoa. It is not my favorite but it is on their gluten free list.
  2. RMJ
    I think I will count cocoa as a dried bean!
  3. RMJ
    Well, I confess (is there an emoticon for embarassed?) to not following it 100% (it is my idea to do it, not my doctor's). I have added Corn Chex, Lundberg rice cakes, and hot cocoa made with Hershey's unsweetened cocoa and sugar.
  4. RMJ
    Coffee is not listed under beverages, unless you want to stretch things a bit and say it is 100% fruit/vegetable juice. Here is a link to the paper that discusses the diet. I am on the diet at the moment, trying to get my antibody levels down, It is so limiting that it does make shopping easy! Open Original Shared Link
  5. RMJ
    1) It is very, very, very unlikely that celiac diagnosed at your age would lead to cancer, assuming you go on a gluten free diet after diagnosis. Cancer (lymphoma) develops after years and years of untreated celiac, and only in a small portion of those untreated people. 2) Three months on a gluten free diet isn't very long, probably not long enough to...
  6. RMJ

    ARCHIVED How Precise?

    RMJ replied to murphy203's topic in Gluten-Free Restaurants

    Oh, I agree. I'm okay with the commitment, but it would be easier to find the source of gluten contamination if I had symptoms. But on the other hand, I'm lucky that I don't have to suffer through symptoms.
  7. RMJ

    ARCHIVED How Precise?

    RMJ replied to murphy203's topic in Gluten-Free Restaurants

    I am also almost asymptomatic. For two years I've done "no gluten ingredients". Some of my antibodies are back into the normal range, but not all. So that level of gluten free isn't enough for me (I'm now trying the Fasano gluten contamination elimination diet).
  8. RMJ
    Just a thought, if your new doc doesn't know that many foods besides white bread will work perfectly well for a gluten challenge, does he really know how to interpret your previous biopsy results? Can you get a copy and post them here? Enjoy your gluten while you can!
  9. RMJ
    I've tried to be gluten free but my annual blood tests say that I'm not (DGP). Since I don't have symptoms, without that test I wouldn't know that "no gluten ingredients" isn't enough for me.
  10. RMJ
    Another mouthwash that doesn't burn is Therabreath.
  11. RMJ
    Uceris is an extended release version of budesonide.
  12. RMJ
    Corticosteroids such as Uceris can have serious side effects, and the official FDA-approved labeling is for using it for only 8 weeks. Open Original Shared Link My gastroenterologist isn't being very helpful either. She will order blood tests when I request them, but my antibody levels have NOT all gone down to the normal range (2-1/2 years), she gives...
  13. RMJ
    The body tries very hard to maintain calcium levels within the proper range - it does this by removing calcium from the bones if necessary. Normal calcium blood levels with low calcium in bones (osteoporosis) is explainable.
  14. RMJ
    How nice of you to make the whole house gluten free for your son
  15. RMJ
    I would try to get the blood tests as soon as possible IF the doctor understands that you have been gluten free for a few weeks, a NEGATIVE RESULT WOULD NOT MEAN ANYTHING, and that tests might have to be repeated after a gluten challenge. It often takes more than 4 weeks for antibody levels to go back to normal. You might even be able to order the tests...
  16. RMJ
    You could ask to have your anti tTG blood test repeated. If still positive, it is likely you are still eating enough gluten to cause your symptoms (and I agree with the others, based on your description of what you eat it sounds like you are getting gluten contamination). If negative, you might need to look for another cause. I have not eaten foods with...
  17. RMJ
    Tests for antibodies to gliadin and to deamidated gliadin peptides are different tests, the latter being newer and more specific.
  18. RMJ
    This link has information someone says they obtained from Lean Cuisine: Open Original Shared Link
  19. RMJ
    If you go gluten free and the TTG goes down to a normal level, that would be evidence that the high level was due to the gluten. Unfortunately, if it is still 4+ you won't know anything - it could have come down but since they don't give a quantitative result you wouldn't know.
  20. RMJ
    My dog has been gluten free longer than I have! She had chronic digestive problems until we found a food based on potato instead of grain,
  21. RMJ
    Antibodies can be passed through breast milk, but they cannot cause the recipient to make more of those antibodies.
  22. RMJ
    Hi Jennifer, welcome to the forum. I have a few questions that might help us to give you advice. Do you have symptoms or are you a silent celiac? (It is harder to resist gluten if it doesn't cause you any obvious trouble - but it is still damaging on the inside) Is your trouble resisting gluten-containing foods because you want that food (in which case...
  23. RMJ
    Love my marble rolling pin. I think the weight makes it easy to roll the dough. I haven't used it since going gluten free, however.
  24. RMJ
    I would not be bothered at all that nothing was purchased that I could eat. But to be told that she thought about buying something I could eat and decided against it - that would irritate me!
  25. RMJ
    I suspected that oats might be causing my DGP level to remain elevated so, as a scientist, I've tried to find information about it. I have not found any studies where people were fed oats and their TTG levels rose. However, there have been studies in test tubes where the avenins in gluten free oats caused the immune cells of a small percentage of celiacs...
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