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RMJ

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Latest Celiac Disease News & Research:

Everything posted by RMJ

  1. RMJ
    Two days without gluten should not affect your tests results. Antibodies stay in the bloodstream for much longer than that.
  2. RMJ
    You know you have celiac, you know your antibodies are still high. Thus they could still be causing all of your symptoms. Celiac is associated with many diverse symptoms; here is a link with 300 symptoms from the University of Chicago Celiac center. Open Original Shared Link This paper describes a gluten contamination elimination diet. I am tryng it...
  3. RMJ
    It does not take years for the body to clear itself of gluten. For someone with celiac, after going gluten free it may take many months for the antibody levels to decrease and even longer for severe damage to heal.
  4. RMJ
    You could try corn on the cob if you are just trying to see if corn bothers you.
  5. RMJ
    If some of your tests are still high you may still be getting gluten. I thought my diet was gluten free when I avoided gluten-containing ingredients, but that wasn't enough for me. I was getting contamination somewhere. Maybe tell us more about what you eat?
  6. RMJ
    Could you wrap your sandwich filling in a corn tortilla? Although they can get crumbly.
  7. RMJ
    Is anything above a 0 positive? NO, That is not the way the tests are developed.
  8. RMJ
    When you were diagnosed did they do any other blood tests? Could you have anemia or a vitamin deficiency?
  9. RMJ

    ARCHIVED Lost

    RMJ replied to beth01's topic in Coping with Celiac Disease

    Does your boyfriend eat gluten? Does he brush his teeth before kissing you?
  10. RMJ
    Three weeks isn't long enough, sorry. You should go a few more. But two slices of bread a day should be enough. This paper describes the time course of the antibody increase. Open Original Shared Link
  11. RMJ
    Transcript of meeting now available. Open Original Shared Link
  12. RMJ
    Thank you for this very helpful review!
  13. RMJ
    Thank you for asking this question. Occasionally I feel anxious but not about anything specific. Next time that happens I'll evaluate what I've eaten for possible gluten contamination!
  14. RMJ
    Not everything with soy has gluten. Soy SAUCE, unless it is the gluten free type, is made with wheat and soy.
  15. RMJ
    The FDA had a workshop in March about development of treatments for Celiac. This webpage has the presentations (below the IBS presentations). Open Original Shared Link I learned some interesting things. For example, the blood tests are not actually approved for monitoring recovery, just for aid in diagnosis. The FDA is supposed to issue a transcript...
  16. RMJ
    Another form of evidence would be to go gluten free and see if the antibody levels normalize.
  17. RMJ
    I can't think of a particular food or recipe, but if it were me, knowing what I do now, I'd go out to a restaurant with friends. Maybe a pizza place. Some place I couldn't trust to be gluten free.
  18. RMJ
    It definitely is unusual to have TTG negative and EMA positive. I searched the medical literature and found one paper that suggested it could be early celiac (see section on latent celiac): Open Original Shared Link The lab that my doctor now uses doesn't even do the EMA unless the tTG is positive. And it is strange, and very annoying, that Labcorp doesn...
  19. RMJ
    Endomysial antibody is usually pretty specific for celiac, although it does rely on a human looking through a microscope. Unfortunately, Labcorp only says positive or negative and does not give the titer, which would enable you to know if it was a weak positive or a strong positive. (I tried to get my titer from them but couldn't).
  20. RMJ
    Yikes, you definitely need a new doctor!
  21. RMJ
    The autoimmune reaction starts in the gut, but those antibodies get into the bloodstream and circulate around the whole body. I don't think the biological mechanisms for all of the problems that can be seen in celiacs are known.
  22. RMJ
    Are there degrees of sensitivity? As a scientist I must respectfully disagree and say yes, although this does NOT mean that any celiac should ever knowingly eat something that may have been contaminated with gluten! When the FDA set the acceptable level for labeling gluten free food they evaluated and summarized the scientific literature. Studies have...
  23. RMJ
    Could you be anemic?
  24. RMJ
    Can you call the lab and ask? DGP is deamidated gliadin peptides, so it sort of is a gliadin test. I don't see why they would put DGP in the name if it wasn't relevant to what was done.
  25. RMJ
    If you think lactose bothers you (common in celiacs) I think you may be able to eliminate that now without messing up any celiac tests? Does anyone know for sure?
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