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RMJ

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Latest Celiac Disease News & Research:

Everything posted by RMJ

  1. RMJ
    It would be a good idea to get a printed copy of your test results so you can see the numbers and see whch tests were actually run.
  2. RMJ
    I used to get stomach pain when I wore pants with an elastic waist.
  3. RMJ
    My long hair gets in my mouth frequently so I use gluten free hair products.
  4. RMJ
    You might consider getting the blood tests (soon). If you've only been gluten free for a month, with a few mistakes, it is unlikely that high levels would have normalized. However, you and your doctor would have to realize that although a positive test would support celiac, a negative test would not rule it out since you are gluten free.
  5. RMJ

    ARCHIVED Brownies

    RMJ replied to Eddy W's topic in Gluten-Free Recipes & Cooking Tips

    I've used various pre-mixed flours. I add xanthan gum if it is not already in the flour.
  6. RMJ
    I'm glad the new little stones came through without major pain, and glad you caught them for analysis!
  7. RMJ

    ARCHIVED Brownies

    RMJ replied to Eddy W's topic in Gluten-Free Recipes & Cooking Tips

    I just use my regular brownie recipe from a Hershey's cookbook but substitute gluten free flour.
  8. RMJ
    In some states you can order the tests yourself at www.mymedlab.com, but I don't remember if they have the full panel.
  9. RMJ

    ARCHIVED weight gain

    RMJ replied to janequ's topic in Related Issues & Disorders

    Has he had an endoscopy that show whether or not his intestines have healed? Has he had recent blood tests that show whether his antibody levels are back to normal? Why is he eating less and less? There are plenty of foods one can eat while avoiding gluten and peanuts.
  10. RMJ
    I have no advice but wanted to add my hugs. I had a ureter spasm once which I assume is similar to the pain of kidney stones, and it was awful. I hope you don't have to go through that again.
  11. RMJ
    I used to work with these calculations but it has been a few years! They are technically correct about the 1 in 4 IF (a big if) you are testing one hundred people in the general population, i.e., people that are NOT going to the doctor because of symptoms but are just chosen randomly off the street. The 1 in 4 is the positive predictive value and depends...
  12. RMJ
    A 16 hour fast will not affect antibody levels, but I hope you were tested before you went gluten free three weeks ago?
  13. RMJ
    Zolmitriptan has a number of generic versions. Whether or not it is gluten free may depend on the manufacturer.
  14. RMJ
    You can and should keep eating your cookies and other gluten filled foods until all testing is complete. Otherwise you might get a false negative.
  15. RMJ
    Welcome! I'm so glad you found the answer to your migraines.
  16. RMJ
    I eat at my brothers' houses but I watch them prepare the food and grab every bottle/jar to check the ingredients.
  17. RMJ
    Asian Box is completely gluten free, although that information is not very prominent on their website. I haven't been to the SF location but enjoyed the Mountain View location. It looks like the SF location may be within the Macy's department store.
  18. RMJ
    I eat their chips but not their cocoa. I used to, but then the cocoa label changed to say that it may contain wheat (or is made in a facility with wheat, I forget which). When I asked them about it they said they had changed where the cocoa was manufactured. But since the chips don't say that I feel safe with them. Always good to read the label every...
  19. RMJ
    I did the Celiac Basic, I don't see Celiac Complete but they may have different tests in different areas. Unfortunately the basic doesn't include DGP.
  20. RMJ
    I had my original tests done through this lab without going through a doctor (supposedly one reviews the results before they are posted). They don't operate in every state so don't know if it would help you or not. Open Original Shared Link Good luck getting tested and getting answers!
  21. RMJ
    They seem to be good about saying things may contain wheat when their products are made on shared equipment, for example their ground chocolate which I no longer use. This is the reply I got a year ago (March 2015) when asking about their 60% cacao chips. "Dear Consumer, There is no wheat in our 60% chips and no wheat in our chips facility...
  22. RMJ
    Since you're a fellow scientist, here is a link to the paper that explores the kinetics of a gluten challenge. See figure 2 for the antibody levels. Looks like they go up somewhere between 2 and 4 weeks. Open Original Shared Link
  23. RMJ
    When a lab develops their own test, and only runs it in their own lab, they do not need to go through the rigorous FDA approval process for diagnostics.
  24. RMJ
    Winjer, I don't think one can assume that positive TTG results in a non-celiac are a response to wheat. I haven't seen any scientific literature on the subject, that's just my educated guess.
  25. RMJ
    Celiac antibody tests are immunoassays. They use antibodies to detect antibodies. I am a scientist and used to develop this type of assay. They are NOT perfect. Even those approved by the FDA (or Canadian equivalent) can give false positives and false negatives. However, MOST positives and negatives are real. I looked up the FDA information on...
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