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RMJ

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Latest Celiac Disease News & Research:

Everything posted by RMJ

  1. RMJ
    How frustrating that they did not do blood tests for celiac! Serpl mcnc is mass concentration in serum or plasma. So as cycling lady said, just checking your immune system.
  2. RMJ
    Those labs do not look like celiac tests. The first three MIGHT just be measuring total antibody levels of the three different classes, but on the very right it has IgA Serp (Serp cut off?) and I don't know what the Serp is referring to. The first column is the test name, the second column your value, the third column the units of measure, the fourth...
  3. RMJ
    Be sure to get a copy of your biopsy pathology report, too. In case the GI doesn't tell you about minor changes.
  4. RMJ
    I have biopsy plus blood test diagnosed celiac. I have no relatives with celiac. I don't have "typical" symptoms. I am strictly gluten free so my body doesn't attack itself with autoantibodies (antibody against tissue transglutaminase). I am glad you are having her labs repeated. They do not all have to be positive to indicate celiac disease - it only...
  5. RMJ
    Just a warning since a different doctor ordered your new tests. The ranges can be different in different labs. If a different lab is used you may not be able to compare the numbers from the first test to the new one. I hooe you get some answers!
  6. RMJ
    Original source - but you have to be a member of the American Association for the Advancement of Science (or perhaps pay) to see it. I'm a member and will be reading the whole thing - a challenge because it is not my scientific field! Open Original Shared Link
  7. RMJ
    The original article written by the researchers is in a journal called Science, a highly respected scientific publication. It is quite technical and I am slowly working my way through it.
  8. RMJ
    If your antibodies go down on a gluten free diet that would be evidence that gluten is an issue for you.
  9. RMJ
    Antibody reactions to a given amount of antigen (gluten) vary greatly from person to person. Even if you're trying to create antibodies in very, very inbred animals that are almost identical genetically, the amount of antibodies they will create varies a lot. If you're lucky you won't be in the super sensitive geoup.
  10. RMJ
    Yes you were but that's ok, sometimes the layout of lab reports can make them quite confusing, Your EMA IgA is negative and your total IgA is in the normal range (meaning your celiac specific IgA tests are valid). It is quite possible to have celiac with only one of the blood tests being abnormal. Be sure to let us know the results of your endoscopy...
  11. RMJ
    I await your photo!
  12. RMJ
    I see you were writing your response as I was writing mine. That is an unusual way to report. I hope you get clearcut results with your endoscopy.
  13. RMJ
    87 to 352 is not in the typical format for an EMA (endomysial antigen) normal range. It looks more like the normal range for total IgA.
  14. RMJ
    Might the EMA (endomysial antigen) be 1:64? Usually the EMA is reported in that format. It is a measure of how far they can dilute your blood and still get a positive result. 1:64 would typically be a positive for the EMA, the range does not vary a lot from lab to lab. Does your lab report onclude the normal ranges? It is unusual for the tTG IgA...
  15. RMJ
    Deamidated gliadin is the "new" test, the old one is just gliadin (if I understand what you are asking. Definitely a positive and not normal.
  16. RMJ
    This seems like another good reason to eat whole foods - but I never would have guessed that plain yogurt, with cultured milk as the only ingredient, might not be "whole."
  17. RMJ
    Here is an older thread on the subject: I'm having trouble finding FDA labeling requirements. It is considered GRAS (generally recognized as safe). The GRAS document I looked at gives examples of use in yogurt, tofu, and various baked goods. It might be considered a type of processing aid in which case it might not be required to be on the label...
  18. RMJ
    Here is some information about labeling (or lack of) in other countries. Open Original Shared Link
  19. RMJ
    If used in "formed meat" in the US it is supposed to be listed as an ingredient. Here is information from the USDA. I will see if I can find something from the FDA about its use in other foods. Open Original Shared Link
  20. RMJ
    Yeah! Make sure he eats plenty of gluten between now and then - perhaps his favorite breads, cakes etc in case he has to give them up afterwards.
  21. RMJ
    On the findmeglutenfree website, after you enter a city and get results you can check a box in the column on the left (at least that is how it looks on my iPad) and limit the list to dedicated gluten free facilities.
  22. RMJ
    I'm glad you're starting to feel better!
  23. RMJ
    Some people with celiac have trouble with the lactose in dairy products until their intestines have healed.
  24. RMJ
    Kareng is correct. I am a scientist and used to develop similar tests. If you ran a sample of water you probably would not get a zero!
  25. RMJ
    I'm not sure you need to avoid dairy. Some celiacs avoid it at first because their villi are so damaged that they don't make the enzyme that digests lactose and they have intestinal troubles due to the subsequent lactose intolerance. If it doesn't cause digestive troubles for you, why avoid it? I never cut it out.
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