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RMJ

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Everything posted by RMJ

  1. RMJ
    During hard cheese manufacture most of the lactose is broken down into its parts, galactose and glucose. These do not cause the same digestive problems as lactose.
  2. RMJ
    My doctor is at a university hospital and has a very good endoscope with great magnification. She was able to see the blunted villi during the endoscopy, confirmed by the biopsy.
  3. RMJ
    If the link works it should be a list of dedicated gluten free facilities. Open Original Shared Link
  4. RMJ
    I just saw a paper on this today: Open Original Shared Link
  5. RMJ
    I'll answer question 2. Linear. Linearity is one of the things FDA looks at with such tests prior to approval.
  6. RMJ
    Here is the report of my biopsy, although my biopsy was after 3 years of trying to be gluten free. Combined with serology I was diagnosed as celiac. "Duodenal mucosa with patchy mild increase in intraepithelial lymphocytes and focal mild villous blunting."
  7. RMJ
    I could not have a biopsy when I first got my blood test results (due to an unrelated medical/doctor issue). But I was high positive on EMA, TTG IgA and IgG and DGP IgA and IgG. I am thin but did not have GI symptoms - I was tested due to migraines. I was not diagnosed with celiac, the official diagnosis was abnormal celiac panel. Doctors left it up...
  8. RMJ
    This seems odd. No SIGNIFICANT villous blunting. Was there mild villous blunting? Increased intraepithelial lymphocytes?
  9. RMJ
    I was in the hospital once for six days and had nothing except the glucose in the iv solution- and I survived. Since it is only for two weeks I wouldn't worry about a balanced diet, or getting every nutrient every day. Some celiacs react to oats, but lots of steamed rice would be good for getting calories. If you took nuts that would add both fat and...
  10. RMJ
    It seems strange to be tested for celiac or gluten sensitivity if you have no symptoms, unless you have a close relative with celiac. It will be interesting to see what sort of test was actually performed.
  11. RMJ
    How frustrating that they did not do blood tests for celiac! Serpl mcnc is mass concentration in serum or plasma. So as cycling lady said, just checking your immune system.
  12. RMJ
    Those labs do not look like celiac tests. The first three MIGHT just be measuring total antibody levels of the three different classes, but on the very right it has IgA Serp (Serp cut off?) and I don't know what the Serp is referring to. The first column is the test name, the second column your value, the third column the units of measure, the fourth...
  13. RMJ
    Be sure to get a copy of your biopsy pathology report, too. In case the GI doesn't tell you about minor changes.
  14. RMJ
    I have biopsy plus blood test diagnosed celiac. I have no relatives with celiac. I don't have "typical" symptoms. I am strictly gluten free so my body doesn't attack itself with autoantibodies (antibody against tissue transglutaminase). I am glad you are having her labs repeated. They do not all have to be positive to indicate celiac disease - it only...
  15. RMJ
    Just a warning since a different doctor ordered your new tests. The ranges can be different in different labs. If a different lab is used you may not be able to compare the numbers from the first test to the new one. I hooe you get some answers!
  16. RMJ
    Original source - but you have to be a member of the American Association for the Advancement of Science (or perhaps pay) to see it. I'm a member and will be reading the whole thing - a challenge because it is not my scientific field! Open Original Shared Link
  17. RMJ
    The original article written by the researchers is in a journal called Science, a highly respected scientific publication. It is quite technical and I am slowly working my way through it.
  18. RMJ
    If your antibodies go down on a gluten free diet that would be evidence that gluten is an issue for you.
  19. RMJ
    Antibody reactions to a given amount of antigen (gluten) vary greatly from person to person. Even if you're trying to create antibodies in very, very inbred animals that are almost identical genetically, the amount of antibodies they will create varies a lot. If you're lucky you won't be in the super sensitive geoup.
  20. RMJ
    Yes you were but that's ok, sometimes the layout of lab reports can make them quite confusing, Your EMA IgA is negative and your total IgA is in the normal range (meaning your celiac specific IgA tests are valid). It is quite possible to have celiac with only one of the blood tests being abnormal. Be sure to let us know the results of your endoscopy...
  21. RMJ
    I await your photo!
  22. RMJ
    I see you were writing your response as I was writing mine. That is an unusual way to report. I hope you get clearcut results with your endoscopy.
  23. RMJ
    87 to 352 is not in the typical format for an EMA (endomysial antigen) normal range. It looks more like the normal range for total IgA.
  24. RMJ
    Might the EMA (endomysial antigen) be 1:64? Usually the EMA is reported in that format. It is a measure of how far they can dilute your blood and still get a positive result. 1:64 would typically be a positive for the EMA, the range does not vary a lot from lab to lab. Does your lab report onclude the normal ranges? It is unusual for the tTG IgA...
  25. RMJ
    Deamidated gliadin is the "new" test, the old one is just gliadin (if I understand what you are asking. Definitely a positive and not normal.
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